Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

@cb772

@jerid, would you please post it again?

Jump to this post

@cb772 Gosh, all the posts here have certainly been an education for those who may not be in a chronic pain situation. I have to wonder if there are people reading this group, following along, who are not chronic pain sufferers, and have no idea what we experience everyday. I wonder if they might "get it" just a little bit more, now?

Like all of you, I also suffer with chronic pain. And like others, there are several underlying factors. And several pathways towards getting some relief. Some work for some, others work for others. So often, as you have said @cb772, it takes a trial period of things to see what combination will do the best for us as an individual. Hearing what people have tried, and their experiences, is good information to have in our arsenal. Finding medical professionals who will take our pain seriously, and seriously attempt to work with us for relief, is critical to our well-being. Becoming discouraged when that doesn't happen, is easy. Getting up each day to fight the good fight of being as pain-free as possible, may not be so easy some days.

I hope you can find relief for yourself, today and each day. Please don't be discouraged. You have people here who understand and support you. I would like to hear back from you, how you are doing?
Ginger

REPLY

Ginger I want to hear about pain meds and help with it there's to much chitchat I'm not interested in it's like a social group now I'm hurting today and this isn't what I wanted to hear

REPLY
@lioness

Ginger I want to hear about pain meds and help with it there's to much chitchat I'm not interested in it's like a social group now I'm hurting today and this isn't what I wanted to hear

Jump to this post

Social? That’s Facebook

REPLY
@bustrbrwn22

@faithwalker007 I am so sorry someone would respond in that way. Real, chronic pain that never relents is unbelievably unbearable to deal with. Funny how we commoners can’t get reasonable doses of pain meds but I just read about another celebrity who’s in rehab for an ungodly amount of OxyContin daily. But it keeps happening for celebrities and billionaires. Sorry if I come across spiteful but it isn’t fair.

Jump to this post

That’s one reason why our Advocacy Committee (WYDPAC) is pursuing legislation to protect the little guy in Wyoming like New Hampshire did.
If you want to help, sign out petition and share it. Show your support and help us get the word out.
http://chng.it:JvBk9hB6Md

REPLY
@faithwalker007

A “movement” is exactly what we need. I’ve started a petition for legislation in Wyoming. I guess I can make a wider one if need be.
We need to stop being silent. The ADA protects us but we won’t use it.
Wyoming has a suicide rate over twice the National Average. 30/100,000 people. I’m not claiming it has everything to do with chronic pain but it is a factor but we only have 15 Pain specialists in the entire state and its getting harder and harder to get treatment. It’s a recipe for disaster.
I know what the DEA is doing to the pharmacies and physicians here, I was on the receiving end. And I know Wyoming isn’t the only place it’s happening.
If we don’t start speaking out, we won’t be able to.

Jump to this post

Maybe this is the link to the petition now: http://chng.it/JyyQdwcf

REPLY
@lioness

Ginger I want to hear about pain meds and help with it there's to much chitchat I'm not interested in it's like a social group now I'm hurting today and this isn't what I wanted to hear

Jump to this post

@lioness These threads may morph into conversations like we have around a coffee table, but in here I see that we stay pretty much on topic of chronic pain. The remedies we try, our frustration with the medical community not always hearing us, and venting is productive as we work through and weed out things to assess and possibly try.
Ginger

REPLY
@gingerw

@lioness These threads may morph into conversations like we have around a coffee table, but in here I see that we stay pretty much on topic of chronic pain. The remedies we try, our frustration with the medical community not always hearing us, and venting is productive as we work through and weed out things to assess and possibly try.
Ginger

Jump to this post

@gingerw @lioness
Linda, I hear you. And certainly Ginger really hears you. I know you are hurting. My Lnda is hurting today too, bigtime. She had to cancel a Dr. appt. today because she was just hurting too much and could not make the drive (she is VERY stressed in the car). I understand your frustration about not getting info you want to have regarding things such as pain medications that might help. But really, what would they be? The usual, you know the drill. You are a veteran of Connect, and you know how difficult it is for any of us here to find the answers to our (in my case, my wife's) pain. But one thing everyone is pretty good at here is venting, including you! Good for you that you are, and good for all of us. PN is becoming an old and need I say it, BORING problem that we wish someone would just resolve, finally. My heart is with yours sweetheart. Hang in. Love to you, Hank

REPLY
@jesfactsmon

@gingerw @lioness
Linda, I hear you. And certainly Ginger really hears you. I know you are hurting. My Lnda is hurting today too, bigtime. She had to cancel a Dr. appt. today because she was just hurting too much and could not make the drive (she is VERY stressed in the car). I understand your frustration about not getting info you want to have regarding things such as pain medications that might help. But really, what would they be? The usual, you know the drill. You are a veteran of Connect, and you know how difficult it is for any of us here to find the answers to our (in my case, my wife's) pain. But one thing everyone is pretty good at here is venting, including you! Good for you that you are, and good for all of us. PN is becoming an old and need I say it, BORING problem that we wish someone would just resolve, finally. My heart is with yours sweetheart. Hang in. Love to you, Hank

Jump to this post

@jesfactsmon Thanks Hank I was just venting as everyone here can . Its tough for us all I know but so frustrating also.Thanks to you and Ginger Hope your Linda feels better today

REPLY
@lorirenee1

@suzanne2 I was on Gabapentin for foot neuropathy, and it did very little to help. As the Neurologist raised the dose, it still did not help, but did give me balance problems. Eventually, I just weaned off, and my balance returned. No, Gabapentin did not help me. Lori Renee

Jump to this post

@lorirenee1 Thanks for your take on the gabapentin. I also have noticed my balance is off! I have been thinking of lowering the gabapentin dose because my pain level is so high, it can't be helping.

REPLY
Please sign in or register to post a reply.