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Lichen Planopilaris...newly diagnosed

Skin Health | Last Active: Aug 1 2:55pm | Replies (92)
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@maralina

I was recently diagnosed with lichen planopilaris. I am in shock. It is tough to take in. Had some shots and taking oral minoxidil and putting an ointment on my scalp 2 x a day. I have no itching.

I’ve had open heart surgery, skin cancer/Mohs surgeries,
Had many suspicious spots/moles frozen off. Have hypothyroidism. I’m feeling a bit frightened over the whole thing. heard once you get an autoimmune disease likely t9 get more.

Since my quad bypass in 2016 I’ve been on the Plant Paradox diet…..pretty clean.

My dermatologist told me to get all my cancer screenings.

Thanks for any support and insights.

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Replies to "I was recently diagnosed with lichen planopilaris. I am in shock. It is tough to take..."
808style | @808style | Jan 5 12:50pm

@maralina I am sorry to hear about all of your health challenges. I too have recently been diagnosed with LPP and am still in shock. I am very fortunate and do not have any other health problems...so trying to focus on bright side and be grateful. However, I have some fear in the back of my mind that this is the tip of the iceberg and waiting for the other shoe to drop.

As for what works, it is different for everyone. I have just started acupuncture and a low histamine diet. Doing those two things has helped reduce the scalp itch. However, I am not sure if it's helping reduce the hair loss. Also, I am taking biotin supplement, using Minoxidil foam (but going to change to the oil), steroid ointment (2x a day) on scalp, and using a red light cap. Looking to start tai chi to help reduce stress in my life.

Hope some of this information helps.

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