Success with Prolia?

Posted by yanice @yanice, Jan 4, 2023

Due to stomach issues, I have been advised to have intravenous injections to treat my osteoporosis. I am leaning towards Prolia. Does anyone have any success stories? It seems all I hear about are the awful side effects.

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I have been on Prolia injections every 6 months for the past 5 years. I started after chemotherapy. I have to have dental extraction and an implant to follow. Prolia although is suppose to strengthen your bones it can produce necrosis in the jaw bone when having an oral surgery. There are many side effects to this medication I never knew about. I am obviously going to find an alternative medication since dental work is something we all will need at some time in our lives and to risk necrosis in the bone is a problem no one needs after surviving Cancer. These medications they give us all have side effects. Especially who thinks of oral surgery and extractions when you are fighting Breast Cancer. Good luck my sisters and brothers ❤️

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Tina, I also need dental work and have been on Prolia for three years. The endocrinologist who prescribed my Prolia knew I have been on steroids for forty eight years and still insisted I needed Prolia because I’ve lost three inches in height. I made a huge mistake by not researching the medication beforehand. As the side effects started to show their ugly face I complained but was told to stop looking things up! What a terrible situation I have myself into. Why do doctors not give us the information we need and allow us to make our own decisions? I don’t understand.

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@kjane322

Tina, I also need dental work and have been on Prolia for three years. The endocrinologist who prescribed my Prolia knew I have been on steroids for forty eight years and still insisted I needed Prolia because I’ve lost three inches in height. I made a huge mistake by not researching the medication beforehand. As the side effects started to show their ugly face I complained but was told to stop looking things up! What a terrible situation I have myself into. Why do doctors not give us the information we need and allow us to make our own decisions? I don’t understand.

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Tina , thank you for letting us know of your issues with prolia . It takes much effort to read through info online AND also find a Dr. that we can trust . Take care

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@louise2023

My doctor only discussed Prolia which she recommended for 5 yrs and then zolendronate 1 dose would be given 6 months after stopping Prolia. I am, however, interested in knowing more about Evenity. Because it is so recently on the market, it is hard to get results from people who have completed the 12 month treatment. Thank you for your perspective.

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I only received one injection of Eventy and got sick. My blood pressure went through the roof. I told her there was no way I was going to consider that. I am now on Prolia with minor side effects. Prolia has gotten a bad rap; yes, there are some who will have side effects. That’s the same with ANY drug. But Prolia will help you fortify your bones in later years.

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@texasmimi

I have been on prolia for almost 4 years. I was kept on it as it is best to use since I am being treated for a precancerous be ready condition after two small masses were biopsies. I have had no side effects (always stay hydrated prior to infusion). My bone scans show slight improvement each year. Hope you can find the most appropriate treatment.

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You mentioned the word “infusion”. Prolia is a subcutaneous injection. Reclast is an infusion. Which one did you get?

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I know this, but it’s listed on my record as an “infusion”. Also the “injection” occurs on the infusion floor at Methodist.

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@lioness2001

I only received one injection of Eventy and got sick. My blood pressure went through the roof. I told her there was no way I was going to consider that. I am now on Prolia with minor side effects. Prolia has gotten a bad rap; yes, there are some who will have side effects. That’s the same with ANY drug. But Prolia will help you fortify your bones in later years.

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Hi @lioness2001 😊
It's very nice to meet you. You mentioned that you experienced some minor side effects from Prolia. I am thinking about starting Prolia and I would love to hear more details regarding the side effects you ran into.... Thank you for sharing your experience!

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@hello1234

Hi @lioness2001 😊
It's very nice to meet you. You mentioned that you experienced some minor side effects from Prolia. I am thinking about starting Prolia and I would love to hear more details regarding the side effects you ran into.... Thank you for sharing your experience!

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The main issue with Prolia, in the absence of side effects, is that it is very hard to get off. If you stop or even miss a dose, bone density can plummet and fracture risk rise substantially, according to my doc and also McCormick's recent well-regarded book "Great Bones." If you do stop at some point, the timing of transition to Reclast or Fosamax needs to be individualized using blood tests *CTX, and P1NP may also be helpful).

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@windyshores

The main issue with Prolia, in the absence of side effects, is that it is very hard to get off. If you stop or even miss a dose, bone density can plummet and fracture risk rise substantially, according to my doc and also McCormick's recent well-regarded book "Great Bones." If you do stop at some point, the timing of transition to Reclast or Fosamax needs to be individualized using blood tests *CTX, and P1NP may also be helpful).

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Wow, thank you so much @windyshores 😊 You are incredibly knowledgeable about all of this. It sounds like you may have an excellent doctor taking care of your osteoporosis. What are the two blood tests that you mentioned? What do they measure? Thank you so much for sharing your helpful information!

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I have been receiving Prolia injections for 5 years and just had cold intolerance when I first started. That was manageable. That side effect went away before my second injection. I have fallen twice since then once a kneecap fracture and a few years later a hip fracture. I am convinced that the Prolia kept my fracture s from becoming serious breaks. My bone density is stable. Hope this helps.

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