What does your oncologist suggest as far as getting the genetic testing done to confirm WM? At this point, since you’re in an active surveillance stage anyway, it wouldn’t change the situation. But maybe it would be good to know if you have the mutated gene that is causing the condition. I’m not sure how that affects the treatment down the road. But since this is usually a slowly developing type of lymphoma, there would be time for testing in the future.

There is a good discussion in the WM group that you might want to follow if you haven’t already seen it.

WM, What to expect during watch and wait:
https://connect.mayoclinic.org/discussion/waldenstrom/
You’ll be able to connect with other WM members such as @ejrquast @sagenest @lesliemont and many others who share their experiences.

I also found another source of information and guidelines for WM patients.
This from the International WM foundation:
https://iwmf.com/
And this article from the National Comprehensive Cancer Network:
https://www.nccn.org/patients/guidelines/content/PDF/waldenstrom-patient.pdf
Where do you experience the paresthesia? Is this all over or just your extremities?