Misdiagnosed Mac

Hi, would you mind sharing more about the holistic approach you are using. How do you take the herbs you mentioned and the vinegar, and how often. I was diagnosed last May with what you have but have had no symptoms. Since June I have had Pneumonia, shingles, flu and Covid. Since October I have had nothing, thank God. My ID Dr. does not want to start me on the Big 3 because of the horrible side effects; however my Pulmo Dr. wanted me to take all 3 at once. I refused. Thank you for sharing.

Hi I saw blog Dr Weil old guy with a grey beard lol that is educated in various illnesses. He suggested besides drugs try mushrooms and garlic. I take 2 large cloves a day and make a smoothie with 5 mushrooms to disguise the taste. I use parsley after raw. Garlic too to kill smell. Also vinegar 2 tablespoons a day and oregano and cloves. A must is the aflo vest for clearance.I wear that vest 1 hour 2x 30 min cycles and clears muscus out out of my lungs. Read that one way to combat Mac is vest and exercise I walk in my home with the vest on passing the sink spitting constantly. I appreciate the coordinator Sue comments that drugs are basically the way to go. Me I don’t like stomach pains diarrhea and vision problems. Good luck God bless

I sent this to another member.

Thanks and Dr. Andrew Weill certainly has an excellent reputation. Thanks again.

What is your recipe for garlic, oregano, clove and vinegar? How do you take the cloves, oragano and vinegar?
Does your pulmonologist order the vest?

Eat garlic raw oregano clove and mushroom this in smoothie and vinegar 2 tablespoons right in my mouth am and pm. Yes vest prescription by pulmonologist

Everyone: When considering complementary or alternative treatments, be open-minded yet skeptical. Learn about the potential benefits and risks. What may work for one person may not for another. If you’d like to integrate complementary therapies or supplements into your management of MAC, talk with your pulmonologist or lung health specialist. They can walk you through potential benefits and risks specific to you and your health status.

Keep in mind that natural substances can also have toxicities, adverse side effects and treatment interactions.

More and more medical centers and specialists, including at Mayo Clinic, are open to discussing and integrating complementary medicine in programs called Integrative Medicine. Here's a link to more information about Mayo Clinic's Integrative Medicine programs
– Integrative Medicine and Health https://www.mayoclinic.org/departments-centers/integrative-medicine-health/sections/overview/ovc-20464567

If you are interested in complementary medicines, please let your doctor. You can also check with your pharmacist to ensure that there are no potential interactions with medications you may need for other health conditions.

I worked in health care for about 40 years. I’d be completely shocked if those records were destroyed. Med record folks are held to very high standards in protecting them. As someone else suggested, due to time, they may be in another folder or archive. Just contact the med record (maybe IT) department at the facility with the test and they can help you locate them.

My first CT was 2013 after an abnormal chest X-ray. Radiologist’s impression was MAC due to nodules & Bronchiectasis. However, cultures done during bronchoscopy grew nothing. Over the years follow-up CT’s showed mild progression with radiologist saying probable MAC, follow-up bronchoscopies (which I believe are more reliable than sputum that you cough up) were always negative. My symptoms remained minimal. And my understanding is that docs are not supposed to treat with the MAC meds unless you grow the bacteria, plus sensitivity studies need to be done on your bacteria to make sure your bug isn’t resistant to drug they prescribe. Finally in early 2023 my CT showed progression into all 5 lobes, and my culture from bronchoscopy was positive. So it took 10 years for me to have a positive culture. I am currently taking Ethambutol and Azithromycin (couldn’t tolerate Rifampin or Rifabutin). I think this disease is tricky and the medications can have serious side effects. Just like doctors shouldn’t prescribe antibiotics for strep unless you have a positive throat culture, even though it looks like strep, I think they have to be careful prescribing for MAC. Glad you’re feeling better.

What kind of mushroom because there are many different kinds of mushroom. Can you please be specific with the recipe? do you mix all the ingredients together?