Chronic Pain members - Welcome, please introduce yourself
Welcome to the new Chronic Pain group.
I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Why not take a minute and introduce yourself.
Interested in more discussions like this? Go to the Chronic Pain Support Group.
@catcatanzaro60
What sort of pain are you experiencing? I know that five years is a long time to be hurting. That's about the same time my peripheral neuropathy made the leap from tingling and pins and needles in my feet and legs to burning pain, starting in the balls of my feet. Not too long ago it grew to include the tops of my feet and my ankles. It sounds like your pain is interfering with your daily life. The number of OTC and prescription pain meds means it can take forever to find the ones that give relief, can't it. Do you take Gabapentin for nerve pain? I tried it several years ago and it didn't help me, even though my siblings all swear by it. I wish you success in your search for the solution to the pain.
Jim
My pain specialist doctor said that gabapentin and lyrica have to be taken daily on schedule to be effective; the relief is cumulative. They are not pain killers, they are anti-seizure medicine: they calm the nervous system so that it stops sending out false pain messages (my feet and legs feel like there is a fire burning inside but there is no fire anywhere so the message is false but the pain is real). I take 225 mg of lyrica at night (I can't take it during the day because it makes me sleepy) and 1200 mg gaba twice during the day. I started in 2018 with 1 gaba each morning ... as the demise of my nervous system spreads upward, the pain increases so the meds have been increased to compensate. I have learned a lot about neuropathy from the other people on this forum - things that doctors can't tell us because they don't know what this condition feels like unless they have it. My neurologist has RLS (restless leg syndrome) which some of us have - it is nice to have a doctor who has the same symptoms and takes the same meds I take - but I haven't found a doctor who has neuropathy and I'm not looking for one because there probably isn't one. Peggy
Hi everyone! My name is Julie Souther, and I'm a 44 year old wife and mother of 3 beautiful daughters. Currently, I'm a 3rd grade teacher.
I've lived with chronic pain for over 15 years due to migraines, fibromyalgia and bipolar depression disorder. Over the past few months, my "flare ups" with pain have increased in quality and quantity. I have difficulty functioning on a daily basis whether it's going to an event for one of my children, doing housework, going out to see friends, traveling, or even taking a shower without pain. Also, I am in fear of losing my job due to numerous absences, because I could not get out of my bed.
About twice a month I have a flare up of painful symptoms that can last from 3-6 days before I can just enough to get through the day. I will wake up and feel as though I have been hit by a truck. I have terrible pain in my hands, feet, eyes, lower back, hips and legs. Oftentimes, the pain will move from one location to another in my body. I end up with a migraine and in bed for at least a few days. A few weeks ago, I missed an entire week of teaching because of the flare up and a visit to the ER with severe stomach pain and difficulty breathing. In addition, my blood pressure, even with medication, ranges between 165-185 daily for no particular reason. I have neck pain on the left side that will not go away, incontinence, no libido, and sensitivity to heat just to name a few of my symptoms. I've tried various medications, acupuncture, allergy testing, change in my diet, and even reiki, without any significant help.
This year I've had blood work completed that showed nothing concerning. This month I had an MRI on my brain and spine conducted by the MS Center of Atlanta, which showed absolutely nothing wrong. I had an EEG today and am waiting on those results. I'm at a loss and feel like a failure to my family and students. Each month is becoming more of a vicious cycle of flare ups, migraines and depression.
I've never had any physical trauma in my life to bring on these symptoms. There does not seem to be a specific trigger to my flare ups either. Currently, I am on Pristiq, Lamictal, and clonazapam for my depression. I take rizatriptam for migraines even though I've had botox and shots in the past. I am on Lyrica for the fibromyalgia. Do you have any advice or suggestions? I am willing to do anything to try and get back to somewhat of a normal life before all of this pain.
@julie2019 Welcome to Mayo Connect. We are a diverse group of people, patients and caregivers alike, who share their experiences and support to help others along their journey. One thing that stuck out to me was your comment "Each month is becoming more of a vicious cycle of flare ups, migraines and depression." Given your age and other factors, might there be a hormonal component to this all? If you have not had a workup by an internal medicine doctor, or endocrinologist, perhaps that might help solve your current issues? Any changes like a different living situation or work environment might be at play, with a reaction to something environmental. I hope this has given you some thoughts of pathways to pursue, and that you will let us know what you find out.
Ginger
Hi Julie and welcome!
I must say you sound like a brave, persevering woman who seems to be at the end of her rope. No matter the diagnosis, day to day chronic pain is absolutely exhausting. Then sprinkle in the kids, spouse, house, job...
there is only so much pushing one person can do. Important to understand when you've reached your limit. I lived and worked through alot as to not let my family, friends, employer, employees down. Ultimately my perseverance was admirable but, at the end of the day I did no favors for anyone including myself.
I eventually consented to short term disability and worked very hard at figuring out my health, having treatments, trying new medications. Thought I could figure it all out during that time and miraculously get fixed. My story was built around eye disease, chronic migraine and cervical/spinal pain. My temporary disability turned permanent and I later was diagnosed with Small Fiber Poly Neuropathy. This, after 3 years of searching, and alot of trial and error, finally made sense of my random wide spread sensations and pains. I used to wake up and feel like Id been hit by train.
I'm truly sorry to hear your story and do relate. My wish for you is that you recognize your needs, demand to be your best advocate (which you deserve), keep pushing Drs to explore or find new doctors like a neurologist, if you haven't already, to rule things out. Being on Connect is a great way to be your own advocate. Research, look and listen. You will find a wealth of knowledge and experience to learn from.
Good luck in your journey and all the best.
Be well.
Rachel
Hi new here. I have autoimmune issues also chronic fatigue, pinched nerve. Trying the steriod shots soon for neck pain due to pinched nerves. Anyone go down this road?
Thank you so much!! I definitely need to have my hormones checked! Could be very helpful
Thank you so much!! I might have to take a break from work after this school year. Until then, I will continue to talk to various doctors, undergo more testing and trying anything I can to get some answers!!
@rarelybees2889
I have arthritis in several places and bursitis in my shoulder. I'm a pianist, and the pain in the base of my thumb was making playing really painful. I had an excruciatingly painful cortisone injection under x-ray guidance, in four spots. Almost no more pain in the specific places he pumped it in. It will be unbearable again before I get another injection. My wife and I have had injections in shoulder, hip, and knees.
It is so good to have relief. The unfortunate thing is that it is a temporary fix, which is true for many medications and injections. It's almost worth the pain of injections to give me a respite.
I wish you well in your injection treatment. Is the pain non-stop? Do you sleep okay? Often, chronic, non-stop pain drains your energy, and can trigger depression. Are you doing ok mentally and emotionally? I pray that you'll get some relief from the treatments.
Jim
Thank you I feel this is where I get healed