Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Profile picture for Jennifer, Volunteer Mentor @jenniferhunter

@migizii Ah yes, those famous Minnesota winters... and snow season has already begun. When I had spine surgery in Rochester 3 years ago, we waited an extra day before driving back home because of some snow. There are some books and videos about self treatment on the MFR website that might help, but that won't take the place of working with a therapist. In case a travel option would work for you, John Barnes has clinics in Sedona and Pennsylvania and you can go there for a week of some intensive treatments, kind of working on it all at once. I've never done that, and my insurance wouldn't cover something like that, but it is an option if you can afford it. Even doing Yoga is fascial stretching.

I've been doing MFR for several years and have gotten pretty good at inventing ways to stretch my problem areas and listening to my body, and it complements what my therapist is doing. I have small balls that I can lay on, and a question mark shaped massage thing that has rubber knobs on the end that are great to push and pull on the skin to get a shearing action for fascial stretching. I used that and kept working on a tight spot she had started worked on, and got a breakthrough and significant improvement in that spot just last week. I bought that tool at a discount store ( 5 Below ). It sounds like you live in a remote and beautiful area of the country. When I was growing up, we had a canoe that was built in Bimidji.

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Thx for the ideas. Yes it is beautiful and remote here but can be pretty brutal, weather wise in the winter. I like the idea of taking a week vacation and Sedona is a beautiful place;certainly worth exploring😊

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Profile picture for vklittle61 @vklittle61

Have you seen a neurologist?

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Yes and I’m seeing her again tomorrow. It really and my knees hurt too.

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Profile picture for migizii @migizii

Unfortunately for me, I checked into certified MFR practitioners in my area too late in the year and it’s about a two hour drive to anyone from where I live anwith working full time and winter weather for the next many months, I will need to wait——-but I will check into it next summer!

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Hi Lisa again to update you on my neuropathy journey.
Saw a neurologist this week.
Yes I have neuropathy. In both of my feet, but nerve damage in my hand,
wrist, arm.
Will be doing an EMG. Will be putting a splint on that arm for a long term,
ugh. Crossing fingers though. No pain meds prescribed to me.
But have been told I can take CBD oil-that I have been taking for a month
now. Been sick and oddly the pain was small. Now that I am getting better
from that nasty cold the pain has returned full force. Has anyone else had
That experience with their pain giving them a break with a cold?

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Profile picture for lisash @lisash

Hi Lisa again to update you on my neuropathy journey.
Saw a neurologist this week.
Yes I have neuropathy. In both of my feet, but nerve damage in my hand,
wrist, arm.
Will be doing an EMG. Will be putting a splint on that arm for a long term,
ugh. Crossing fingers though. No pain meds prescribed to me.
But have been told I can take CBD oil-that I have been taking for a month
now. Been sick and oddly the pain was small. Now that I am getting better
from that nasty cold the pain has returned full force. Has anyone else had
That experience with their pain giving them a break with a cold?

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@lisash You know, come to think of it, I have had that experience, also. I think my mind was so busy trying to cope with the cold and its symptoms, my chronic pain had to take a backseat! The medications I was taking to relieve might have also played a role.
Ginger

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Cold medicine I took really isnt that strong. I am not saying that anyone should run out to get cold medicine. I think really that I have been so aggravated with this cough and it took my mind off the pain and onto the cough.

But now the cold is just about gone still have a lagging cough, but the pain is full on back. And worse than I remember.
Thank you for commenting, I was not sure if I was in the right place any more, I never know where to jump in at.

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Profile picture for subaroux01 @subaroux01

Suba here. I've suffered chronic bilateral foot pain for over 20 years. Once an excellent athlete, I can now stand for maybe 10 minutes without suffering. Multiple surgeries for nerve release. Injections. Therapy. Nothing has worked. So I'm here looking for any possible next step. I see some literature on dorsal root ganglion and have hope!

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Have you looked into trying Myofascial release therapy or MFR? I too have had trouble standing or sitting for more than 5-10 minutes before my feet start to burn. Since I’ve been having MFR therapy, I have been able to do much more , still have some pain but is tolerable enough to enjoy life. I too was very active but a fall and 5 back surgeries, including a spinal fusion, a Neuro stimulator, and many more alternative options gave me no hope until I found the benefits of MFR. It’s a specialized form of PT, so if you do pursue, be careful to make sure the therapist has had the special training.
Good luck and hope things improve your quality of life !

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Hello catCatanzaro just saying Hello Chronic pain entered my life the last five years. It is so disturbing. It changes whom you are. I do everything I can to stop the pain. I have pain patches, bio creme pain reliever, and Celebrex, and tens daily. Gabapentin and Flexeril as needed. I do ice and heat. It is hard to carry on at times. Happy Thanksgiving to everyone!

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Profile picture for mlross4508 @mlross4508

Have you looked into trying Myofascial release therapy or MFR? I too have had trouble standing or sitting for more than 5-10 minutes before my feet start to burn. Since I’ve been having MFR therapy, I have been able to do much more , still have some pain but is tolerable enough to enjoy life. I too was very active but a fall and 5 back surgeries, including a spinal fusion, a Neuro stimulator, and many more alternative options gave me no hope until I found the benefits of MFR. It’s a specialized form of PT, so if you do pursue, be careful to make sure the therapist has had the special training.
Good luck and hope things improve your quality of life !

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Thank u I am going to try this

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Profile picture for catcatanzaro60 @catcatanzaro60

Hello catCatanzaro just saying Hello Chronic pain entered my life the last five years. It is so disturbing. It changes whom you are. I do everything I can to stop the pain. I have pain patches, bio creme pain reliever, and Celebrex, and tens daily. Gabapentin and Flexeril as needed. I do ice and heat. It is hard to carry on at times. Happy Thanksgiving to everyone!

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@catcatanzaro60
What sort of pain are you experiencing? I know that five years is a long time to be hurting. That's about the same time my peripheral neuropathy made the leap from tingling and pins and needles in my feet and legs to burning pain, starting in the balls of my feet. Not too long ago it grew to include the tops of my feet and my ankles. It sounds like your pain is interfering with your daily life. The number of OTC and prescription pain meds means it can take forever to find the ones that give relief, can't it. Do you take Gabapentin for nerve pain? I tried it several years ago and it didn't help me, even though my siblings all swear by it. I wish you success in your search for the solution to the pain.

Jim

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My pain specialist doctor said that gabapentin and lyrica have to be taken daily on schedule to be effective; the relief is cumulative. They are not pain killers, they are anti-seizure medicine: they calm the nervous system so that it stops sending out false pain messages (my feet and legs feel like there is a fire burning inside but there is no fire anywhere so the message is false but the pain is real). I take 225 mg of lyrica at night (I can't take it during the day because it makes me sleepy) and 1200 mg gaba twice during the day. I started in 2018 with 1 gaba each morning ... as the demise of my nervous system spreads upward, the pain increases so the meds have been increased to compensate. I have learned a lot about neuropathy from the other people on this forum - things that doctors can't tell us because they don't know what this condition feels like unless they have it. My neurologist has RLS (restless leg syndrome) which some of us have - it is nice to have a doctor who has the same symptoms and takes the same meds I take - but I haven't found a doctor who has neuropathy and I'm not looking for one because there probably isn't one. Peggy

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