Living with Neuropathy - Welcome to the group

Hello @ladydi48, I would like to add my welcome to Connect along with @randymor and others. You might find the list of complementary and alternative treatments for neuropathy on the Foundation for Peripheral Neuropathy's site helpful - https://www.foundationforpn.org/treatments/.

Have you tried any other treatments for your conditions?

Thank you I will talk to my doctor about this treatment.

Was Senaxes covered by insurance?

Yes

I am the unlucky one being diagnosed with Covid-19 for the 4th time. The reason I bring it up here is because for at least 2 of these infections my PN in my feet dramatically "flamed up" and persisted for hours. I don't know if this is part of it or a just me situation.

Hello all!

My name is Tori and I am a 47-year-old woman suddenly living with severe nerve damage in my left calf and foot. In September I had bone spur surgery on my left big toe and they gave me a nerve block. Somehow, the anesthesiologist damaged multiple nerves with the nerve block. An EMG done by a neurologist showed severe damage to multiple nerves as well as muscles. What should have been a surgery with a quick recovery has become life-altering. I am in constant pain and NEVER get a break from it. At first, I couldn't walk on my left foot. Now, I can go short distances in the house, but any pressure is so painful that I can't go far. Going to work and any outings is done on a knee scooter, which has its challenges. I can barely stand wearing socks for any length of time and even having blankets laying on my foot is bothersome. There's so much that I can't do and I am struggling with this sudden change. I am on Gabapentin and it doesn't help at all. Other than that, there's apparently nothing to be done. My neurologist said it would take over two years if it can heal, but he's not sure if it can due to the extensive damage. I hope to find support and tips on this site, as I don't know anyone else with this issue.

Thank you in advance for any advice!

Tori

Hello Tori @mayamae, Welcome to Connect. I'm really sorry to hear your neuropathy came about from nerve damage during surgery. You are definitely not alone and others may have some things to share also. I shared my neuropathy journey story in another discussion here - https://connect.mayoclinic.org/comment/310341/. My best advice/suggestion that I can share is the one that helped me when I first joined Connect - learn as much as you can about the condition, the symptoms and the various treatments available that might provide some relief. One of the best sources I've found for that task is the Foundation for Peripheral Neuropathy. They have many webinars you can view on their YouTube channel and a good list of complementary and alternative treatments along with the standard treatments used for neuropathy pain. Here are a few of their links:

--- Foundation for Peripheral Neuropathy YouTube Channel: https://www.youtube.com/channel/UCLtOWy1tDeZLdUsMXz_bnfQ.
--- Treatments: https://www.foundationforpn.org/treatments/
--- Living Well with Neuropathy: https://www.foundationforpn.org/living-well/

You mentioned that the gabapentin doesn't help the pain. Have you looked into any complementary or alternative treatments?

Hello John,

Thank you for the provided resources--I'll look into them. I have not looked into other treatments yet. I have an appointment at the University of Iowa neurology department this Thursday and hope they can give me some guidance.

Tori

Hello, I have S.F.N. All of a sudden my body jumps when I'm laying down? Does anyone have the same?
Also have Sojgren's Syndrome but I don't that has anything to do with the jumping.

Hi @penn, You might want to read through the following discussion to see if it's similar to what you are experiencing.
--- Has anyone experienced internal vibrations?: https://connect.mayoclinic.org/discussion/internal-viberations/