Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

@kodiac6919

Hello,
I'm Darin and i have chronic osteoarthritis pain in back, neck, shoulder and knees. I've tried many approaches and am surviving. I just need some moral and mental support from like minded survivors.We all have good days and bad but are always in need of an ear to bend and shoulder to lean on.Hopefully i can be both as well as receive.thanks for letting me join.

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@kodiac6919 Hi Darin. Along with peripheral neuropathy, I have osteoarthritis, so I have an idea how you feel. I have it in my neck, shoulders, hands and knees. Meloxicam and Tylenol keep the pain down to where I can function. The hardest place for me is my hands because I'm a pianist, and it limits my playing, especially my right thumb joint. Sometimes I rub on Volteran gel, which is temporary but it helps me go to sleep.

Jim

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@jimhd

@kodiac6919 Hi Darin. Along with peripheral neuropathy, I have osteoarthritis, so I have an idea how you feel. I have it in my neck, shoulders, hands and knees. Meloxicam and Tylenol keep the pain down to where I can function. The hardest place for me is my hands because I'm a pianist, and it limits my playing, especially my right thumb joint. Sometimes I rub on Volteran gel, which is temporary but it helps me go to sleep.

Jim

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@jinhd Hi Jim Have you checked with your Dr. about taking Meloxicam and Tylenol The reason I ask is I'm on Meloxicam for O.A. but the Dr told me not to take any nsaids so I space mine out . If I take a Meloxicam I take my Aleve later in the day Just asking

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@lioness

@jinhd Hi Jim Have you checked with your Dr. about taking Meloxicam and Tylenol The reason I ask is I'm on Meloxicam for O.A. but the Dr told me not to take any nsaids so I space mine out . If I take a Meloxicam I take my Aleve later in the day Just asking

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@lioness Because I had peptic ulcers ten years ago, my doctors don't want me to take nsaids. The pain specialist suggested Meloxicam rather than Ibuprofen because it's easier on the stomach. Tylenol (acetaminophen) isn't an nsaid, so I take it at bedtime, and Meloxicam in the morning. Every doctor I see has a list of the medications I take, and none of them have expressed any concern. I take 15mg in the morning.

I took 800mg of Ibuprofen 4x a day for 20+ years, so no surprise that I had a stomach bleed. After two surgeries on my shoulder I no longer needed the Ibuprofen, so I had backed off to taking it only as needed.

Jim

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@artscaping

@kodiac6919, Welcome Darin. I’ve got a shoulder for you, It’s a replacement, That OK? We have a group of folks with lots of experience as patients and caregivers. We are not medically trained, Just want to be available for sharing and supporting the members of Connect. Of all the approaches you have tried, what has been the most helpful? I hope you are doing a bit better than surviving. Are you currently working with a medical provider?

If you are comfortable, please tell us a bit more about you. Are you working? Have a family? I look forward to getting to know you a little better. Be safe and protected today. Chris

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@kodiac6919 Good evening Darin. I see that you have attracted quite a few shoulders. Looks like you will be able to have your choice. I am wondering if you have been enlightened about some additional options/treatments for supporting your quality of life.

At this point do you have some questions or concerns? One way to stay ahead of the pain is to meet it halfway. I have found that MFR (Myofascial Release) does that for me. As the fascia in our bodies gets constricted and loses its fluidity, compression and restriction occur on the nerves. We all have fascial covering on every structure in our bodies.

To learn more about it we have a discussion page: https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/ . There is also a great video on youtube titled "Strolling Under the Skin". Be comfortable and at ease tonight. Chris

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@jimhd

@lioness Because I had peptic ulcers ten years ago, my doctors don't want me to take nsaids. The pain specialist suggested Meloxicam rather than Ibuprofen because it's easier on the stomach. Tylenol (acetaminophen) isn't an nsaid, so I take it at bedtime, and Meloxicam in the morning. Every doctor I see has a list of the medications I take, and none of them have expressed any concern. I take 15mg in the morning.

I took 800mg of Ibuprofen 4x a day for 20+ years, so no surprise that I had a stomach bleed. After two surgeries on my shoulder I no longer needed the Ibuprofen, so I had backed off to taking it only as needed.

Jim

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@jimhd I was mistaking about Tylenol it is the dangers of the liver I think I was thinking about Remember when some lunatic was spiking the Tylenol then they started with the caps you can hardly get of now . I always tried to stay away from all nsaids and tylenol dosent do a thing for me.

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@lioness

@jimhd I was mistaking about Tylenol it is the dangers of the liver I think I was thinking about Remember when some lunatic was spiking the Tylenol then they started with the caps you can hardly get of now . I always tried to stay away from all nsaids and tylenol dosent do a thing for me.

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@lioness I've found that they really do help my arthritis pain. The Voltaren gel also has some nsaid, but because it's topical it doesn't go to organs. Thanks for pointing it out.

Jim

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@jimhd

@lioness I've found that they really do help my arthritis pain. The Voltaren gel also has some nsaid, but because it's topical it doesn't go to organs. Thanks for pointing it out.

Jim

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Because many folks who suffer from arthritis use non-steroidal anti-inflammatory (nsaids) over the counter, the Univ. of AZ Med School and others used those folks to study other effects of the drugs.. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5882872/ ... One of the positive "effects" was the reduction of getting Alzheimer's Disease... but there are certainly many negative effects as well..

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@jimhd

@lioness I've found that they really do help my arthritis pain. The Voltaren gel also has some nsaid, but because it's topical it doesn't go to organs. Thanks for pointing it out.

Jim

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@jimhd your welcome I tried Voltaren capsules once but it didn't help all that much and I would rather do muscles rubs or Epsom salt rub which I love . I had a bad pain all over last night and bathed in the Epsom salts felt better right away . Yes rubs of any kind get into the body without getting in to the blood stream .

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Absolutely. Tylenol does not help at all for the pain, Again, absolutely. Perhaps for a pain so mild it is insignificant.

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@colleenyoung

Hi all,
I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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Hi I’m Lara a chronic pain patient had 12 surgeries on my chest, my neck has no sponges in to my vertebrae, my back has L2 and three sitting on a nerve. All disc herniated and my lower 6 and 7 out , I also have a chronic illness that causes bone pain, fibro and finally have a doctor that treats me with pain meds. I hare if you go to the ER why are you on this? None of your business. I was at a walk in for back, and this guy goes I have sitaca and was standing fine and saw him stretch his back back wards. I’m like this is unreal , when my sicata goes I can not walk and puss my pants.

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