Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Profile picture for lioness @lioness

@jinhd Hi Jim Have you checked with your Dr. about taking Meloxicam and Tylenol The reason I ask is I'm on Meloxicam for O.A. but the Dr told me not to take any nsaids so I space mine out . If I take a Meloxicam I take my Aleve later in the day Just asking

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@lioness Because I had peptic ulcers ten years ago, my doctors don't want me to take nsaids. The pain specialist suggested Meloxicam rather than Ibuprofen because it's easier on the stomach. Tylenol (acetaminophen) isn't an nsaid, so I take it at bedtime, and Meloxicam in the morning. Every doctor I see has a list of the medications I take, and none of them have expressed any concern. I take 15mg in the morning.

I took 800mg of Ibuprofen 4x a day for 20+ years, so no surprise that I had a stomach bleed. After two surgeries on my shoulder I no longer needed the Ibuprofen, so I had backed off to taking it only as needed.

Jim

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Profile picture for Chris, Alumni Mentor @artscaping

@kodiac6919, Welcome Darin. I’ve got a shoulder for you, It’s a replacement, That OK? We have a group of folks with lots of experience as patients and caregivers. We are not medically trained, Just want to be available for sharing and supporting the members of Connect. Of all the approaches you have tried, what has been the most helpful? I hope you are doing a bit better than surviving. Are you currently working with a medical provider?

If you are comfortable, please tell us a bit more about you. Are you working? Have a family? I look forward to getting to know you a little better. Be safe and protected today. Chris

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@kodiac6919 Good evening Darin. I see that you have attracted quite a few shoulders. Looks like you will be able to have your choice. I am wondering if you have been enlightened about some additional options/treatments for supporting your quality of life.

At this point do you have some questions or concerns? One way to stay ahead of the pain is to meet it halfway. I have found that MFR (Myofascial Release) does that for me. As the fascia in our bodies gets constricted and loses its fluidity, compression and restriction occur on the nerves. We all have fascial covering on every structure in our bodies.

To learn more about it we have a discussion page: https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/ . There is also a great video on youtube titled "Strolling Under the Skin". Be comfortable and at ease tonight. Chris

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Profile picture for Jim, Volunteer Mentor @jimhd

@lioness Because I had peptic ulcers ten years ago, my doctors don't want me to take nsaids. The pain specialist suggested Meloxicam rather than Ibuprofen because it's easier on the stomach. Tylenol (acetaminophen) isn't an nsaid, so I take it at bedtime, and Meloxicam in the morning. Every doctor I see has a list of the medications I take, and none of them have expressed any concern. I take 15mg in the morning.

I took 800mg of Ibuprofen 4x a day for 20+ years, so no surprise that I had a stomach bleed. After two surgeries on my shoulder I no longer needed the Ibuprofen, so I had backed off to taking it only as needed.

Jim

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@jimhd I was mistaking about Tylenol it is the dangers of the liver I think I was thinking about Remember when some lunatic was spiking the Tylenol then they started with the caps you can hardly get of now . I always tried to stay away from all nsaids and tylenol dosent do a thing for me.

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Profile picture for lioness @lioness

@jimhd I was mistaking about Tylenol it is the dangers of the liver I think I was thinking about Remember when some lunatic was spiking the Tylenol then they started with the caps you can hardly get of now . I always tried to stay away from all nsaids and tylenol dosent do a thing for me.

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@lioness I've found that they really do help my arthritis pain. The Voltaren gel also has some nsaid, but because it's topical it doesn't go to organs. Thanks for pointing it out.

Jim

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Profile picture for Jim, Volunteer Mentor @jimhd

@lioness I've found that they really do help my arthritis pain. The Voltaren gel also has some nsaid, but because it's topical it doesn't go to organs. Thanks for pointing it out.

Jim

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Because many folks who suffer from arthritis use non-steroidal anti-inflammatory (nsaids) over the counter, the Univ. of AZ Med School and others used those folks to study other effects of the drugs.. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5882872/ ... One of the positive "effects" was the reduction of getting Alzheimer's Disease... but there are certainly many negative effects as well..

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Profile picture for Jim, Volunteer Mentor @jimhd

@lioness I've found that they really do help my arthritis pain. The Voltaren gel also has some nsaid, but because it's topical it doesn't go to organs. Thanks for pointing it out.

Jim

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@jimhd your welcome I tried Voltaren capsules once but it didn't help all that much and I would rather do muscles rubs or Epsom salt rub which I love . I had a bad pain all over last night and bathed in the Epsom salts felt better right away . Yes rubs of any kind get into the body without getting in to the blood stream .

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Absolutely. Tylenol does not help at all for the pain, Again, absolutely. Perhaps for a pain so mild it is insignificant.

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Profile picture for Colleen Young, Connect Director @colleenyoung

Hi all,
I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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Hi I’m Lara a chronic pain patient had 12 surgeries on my chest, my neck has no sponges in to my vertebrae, my back has L2 and three sitting on a nerve. All disc herniated and my lower 6 and 7 out , I also have a chronic illness that causes bone pain, fibro and finally have a doctor that treats me with pain meds. I hare if you go to the ER why are you on this? None of your business. I was at a walk in for back, and this guy goes I have sitaca and was standing fine and saw him stretch his back back wards. I’m like this is unreal , when my sicata goes I can not walk and puss my pants.

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Profile picture for peach414144 @peach414144

Absolutely. Tylenol does not help at all for the pain, Again, absolutely. Perhaps for a pain so mild it is insignificant.

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@peach414144 Hi Peach hope your day is going well . I have taken Tramadol 50 mg since my 1st fracture in 05 now I have a 2nd fracture and Tylenol doesn't do anything for me . I stick to my Tramadol Had a nice pot luck here for Labor Day . Now making chicken salad . Resting is next . Take care

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Hello. I am a 71 year old woman who has dealt with fibromyalgia for most of my adult life. Fortunately, I have a physician who acknowledges and validates the pain. He has worked with me through the last 10 years to find the right level of medications without having me take more than I should. He has guided me toward appropriate exercise, yoga, massage, cognitive changes, and relaxation. In October, he wants me to take a class about dealing with chronic pain ( which the Mayo system is teaching).

Fibro is not my only challenge. I have had a headache since September of 2014. Botox has helped a little, but it never totally goes away. I have Sjogren’s and Raynaud’s syndromes and take Plaquenil for a high CL level. Last fall I began to lose my sense of taste. Now my tongue stings around the edges. I have GERD. My balance has gradually deteriorated. Neuropathy in my feet has certainly not helped that problem.

In spite of it all, I feel pretty lucky because I’m maintaining some quality of life. Lots of days are not so good, but then some good ones come along, and they really give me hope.

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