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Hypersensitivity pneumonitis interstitial lung disease (HSID)
Lung Health | Last Active: Dec 27, 2023 | Replies (13)Comment receiving replies
Vic- I tapered down with the protocol that my doctor gave me. My last pill was a 5mg. I don't remember the exact times but it seemed like forever that I was on it. Sixty mg was a lot. I couldn't believe that he was making me do that much. I thought for sure it would be 45 mg.
Over a span of 26 years, I have had two lobectomies, three SBRTs, and chemo once. I am not on any daily medications but do an inhaler. I have never taken any type of immunotherapy.
I will definitely take a look at the information about RRP. Thank you so much.
Replies to "Vic- I tapered down with the protocol that my doctor gave me. My last pill was..."
Hi Merry
I found this recent article regarding "Management of Lung Cancer in the Patient with Interstitial Lung Disease". It is much easier to understand than the other article about immunotherapy and RRP.
My CT scans also indicate interstitial disease with fibrosis (present from the first CT scan). Based on this article, many treatment options could pose some risk for pneumonitis.
https://academic.oup.com/oncolo/article/28/1/12/6847063
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Is there a permanent thread on Connect for Multifocal? We have this chronic form of lung cancer and information is limited so it would be interesting to get an idea of how various cases are playing out. Like how many years since diagnosis, how many nodules do they have, various treatments and complications. I am two years since diagnosis with 2 VAT surgeries and one SBRT with Radiation Induced Pneumonitis. My oxygen levels fall with exertion, could be several reasons.
With which SBRT did you have your flareup? Not with all of them?
Now that tests are posted and one tries to understand them, I looked at my pulmonary function tests. During my pneumonitis, I was almost qualifying for portable oxygen. After Prednisone, my test results came back up but not to the level they were in April - only half way.