Stage 4 PC Longevity: Anyone have prostate cancer more than 10 years?

Totally agree. I'm not experimenting on myself. I'm following doctor's orders and staying educated about current treatment options.

So, am I correct that you do NOT have prostate cancer? But you have low T and are treating it with Androgel.

No, I do have low T and have been on Androgel since 2008 until I stopped it a couple of months before my 5 proton radiation treatment for unfavorable intermediate risk prostate cancer. I had 2 cores that were 4-3 and three that were 3-4 all from the area of the 7mm lesion out of the 30 core fusion guided transperinal biopsy. The rest of my 120 gm prostate was clean. My PSA was 2.9 and had been between 2.3 and 2.9 for 5 years and almost did Active surveillance rather than radiation. I had a PSMA Pet scan that showed that the cancer had not spread but I was unwilling to risk it escaping the prostate, so I went with the radiation. I am 74 so the studies show with me the androgen deprivation really made no difference. By stopping the Androgel my testosterone level dropped to 12 ng/dl without a Lupron shot. The boys got really lazy since 2008 and I will be very interested to see what my levels are when I get my first bloodwork back after 7/5/23 which will also give me my first post radiation PSA. I wonder if the boys have made any kind of comeback or are they still asleep. The only reason I stopped taking the androgel since testosterone at my age makes no difference in biochemical reoccurrance or overall survival is I was just hedging my bets.

Thanks for sharing. Prayer does help.

What did they put you on to get PSA so low and how long did it take Describe your journey pls

I am 61 years old. I was diagnosed with metastatic de novo PC July 27 2022. My birthday of all days. Cancer showed up in my bones - spine, ribs, and hips. I had intense pain at first - I could not lay on my back. After an emergency Gall Bladder surgery - I still could not lie on my back. Went back to the ER - had CT and Bone scans which confirmed adenocarcinoma PC. Started Casodex (30 days) and 10 cycles Radiation to spine and 5 to ribs. Pain disappeared and has never come back. PSA started at 32 and quickly dropped to 1.005. A month later I started Darolutamide and Chemo therapy. I had 10 cycles of Docetaxel because my blood was other-worldy and 10+ cycles of chemotherapy has greater overall survival (OS) stats. Because I could handle chemo very well my doctor asked if I wanted to continue - so I did. At the end of my 10th chemo cycle my PSA dropped to 0.238 and continued to slowly drop to undetectable. I am a slow PSA dropper. All Genetic and Genomic testing also came back negative. I have Zometa infusions every month and eat a 60% plant based diet, exercise (bands & walking) and I work every day. My recent Bone scan showed great improvement and several spots are now resolved. My treatment was patterned after the ARSENS trial. It has been 5+ years since the ARSENS trial ended. At this time Overall Survival (OS) and time to Castration Resistance still has not been reached from the ARSENS trial.

Lastly, I do not look at or except the SARS data. The SARS data is based on ADT alone. This is a Chronic Disease - the medical community does not know how long anyone will live with this disease. I expect to live 20+ more years. Lastly, I find rest and peace with my relationship with Jesus.

Apologies, I meant to say SEERS instead of SARS. SARS is COVID. SEERS data is men who where treated with just ADT and the data is old.

I’m 48; and was diagnosed on June 2022 stage IV wit bone Mets

First of all dont dwell on too much on the trials and published stats. They are written mostly for professionals, subject to questions and answers at the time of publishing. That can be some time ago. As such, they are pretty scary. A friend who is a GP told me that 70% of cancer patients die from fear!!!!
Dont mind me. I am just another layman trying to make some sense of the whole thing.

Just passed 10 years. October 2013. STAGE 4 GLEASON 9. Now 62 and nothing has changed except the medicines and treatments.