Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

HI Youngtwin,
Always welcome to this group of amazing people. I truly understand about what you are going through. I have severe stenosis and pheriifal neuropothy.
I have had a spinal stimulator implanted and it helps a great deal. I take gabapentin 800 mg and tramadol every 6 hrs., mostly for the neuropothy, sometimes the tramadol for my back when I stand too much or try to walk without my walker. I now have to use a cane or mostly a walker. Now I am having a lot of shaking in both hands. I am not sure if it is a reactions to some of the meds I take.
I am a female 75 yrs of age, in my earlier years I played sports, exercized everyday, work really hard helping my husband build homes.
I did not listen to advise given to take better care of myself, and this is part of why I am in this condition, I accept this.

All I can share about the whole situation for all of us with chronic pain is sense of humor, and attitude. Keep smiling even though you may hurt like the dickens. I so much agree about the opoids situation, I think we should all get in touch with our local Reps and Congressman. Lets complain about the rules they make for make for EVERYONE!
Take care and keep sharing 🙂
PEACE AND LOVE

REPLY

MY NAME IS SHARON I HAVE PLASTICITY I AM 76 YEARS OLD AM CURRENTLY THING ABOUT GETTING A BACLOPHEN PUMP,

REPLY
@sharonalllen

MY NAME IS SHARON I HAVE PLASTICITY I AM 76 YEARS OLD AM CURRENTLY THING ABOUT GETTING A BACLOPHEN PUMP,

Jump to this post

Hello @sharonalllen, welcome to Connect. If you don't mind me asking, what is plasticity?

REPLY

SPASTISICITY IS A CONDITION WERE YOUR LEG MUSCLES(IN MY CASE) ARE SPASTIC ALL OF THE TIME AND CAN NOT MOVE, DIFFICULT TO MOVE. THAT IS THE BEST WAY FOR ME TO EXPLAIN IT, SINCE I AM NOT A DR. MY SPELLING WAS INCORRECT THE FIRST TIME. THIS
HELPS

REPLY
@sharonalllen

SPASTISICITY IS A CONDITION WERE YOUR LEG MUSCLES(IN MY CASE) ARE SPASTIC ALL OF THE TIME AND CAN NOT MOVE, DIFFICULT TO MOVE. THAT IS THE BEST WAY FOR ME TO EXPLAIN IT, SINCE I AM NOT A DR. MY SPELLING WAS INCORRECT THE FIRST TIME. THIS
HELPS

Jump to this post

@justin Clanahan

REPLY

Hi friends! My name is Allison and I was diagnosed with invasive lobular carcinoma in November of 2014. I had a bilateral mastectomy with reconstruction along with an axillary dissection. Then I had chemotherapy followed by 30 days of radiation. I also had my ovaries removed and I just recently had surgery to remove my neuromas in my chest wall. I’ve been in chronic pain on my chest wall since I had my mastectomy. No one knows what to do in order to help me find relief. I have tried everything from PT to acupuncture. Maybe someone out there has a similar situation or maybe someone can offer advice. I hope that no one else has to suffer like this if they have breast cancer. Surgeons need to change their techniques so they don’t cause so much nerve damage. Help!!

REPLY

Hi. I had 20 lymph nodes removed which lead to lymphedema. Now I must wrap toes to crotch 23 hours per day. If any of your pain is due to lymphedema I would first trey Gabapentin. If that works I'd try Lyrica which is similar but is more effective for some. Ten times the price. The other drug I find effective is Amitriptyline, which has many uses, pain, depression, sleep aid. I take it at night. Do you wrap?

REPLY
@bowhunt1969

Hi friends! My name is Allison and I was diagnosed with invasive lobular carcinoma in November of 2014. I had a bilateral mastectomy with reconstruction along with an axillary dissection. Then I had chemotherapy followed by 30 days of radiation. I also had my ovaries removed and I just recently had surgery to remove my neuromas in my chest wall. I’ve been in chronic pain on my chest wall since I had my mastectomy. No one knows what to do in order to help me find relief. I have tried everything from PT to acupuncture. Maybe someone out there has a similar situation or maybe someone can offer advice. I hope that no one else has to suffer like this if they have breast cancer. Surgeons need to change their techniques so they don’t cause so much nerve damage. Help!!

Jump to this post

@bowhunt1969 Welcome to connect I had heart surgery and pain in my incision area The surgeon took xrays and saw the nerves didn't grow back as they should so he sent me to an anesthesiologist who after reviewing the xray injected me but n chest haven't had any pain since but for along time when side sleeping I had to put something in between my breast like a rolled up washcloth

REPLY
@jjwest

HI Youngtwin,
Always welcome to this group of amazing people. I truly understand about what you are going through. I have severe stenosis and pheriifal neuropothy.
I have had a spinal stimulator implanted and it helps a great deal. I take gabapentin 800 mg and tramadol every 6 hrs., mostly for the neuropothy, sometimes the tramadol for my back when I stand too much or try to walk without my walker. I now have to use a cane or mostly a walker. Now I am having a lot of shaking in both hands. I am not sure if it is a reactions to some of the meds I take.
I am a female 75 yrs of age, in my earlier years I played sports, exercized everyday, work really hard helping my husband build homes.
I did not listen to advise given to take better care of myself, and this is part of why I am in this condition, I accept this.

All I can share about the whole situation for all of us with chronic pain is sense of humor, and attitude. Keep smiling even though you may hurt like the dickens. I so much agree about the opoids situation, I think we should all get in touch with our local Reps and Congressman. Lets complain about the rules they make for make for EVERYONE!
Take care and keep sharing 🙂
PEACE AND LOVE

Jump to this post

@jjwest - well said, re: opioids, sense of humor and attitude!

REPLY
@wsh66

Hi. I had 20 lymph nodes removed which lead to lymphedema. Now I must wrap toes to crotch 23 hours per day. If any of your pain is due to lymphedema I would first trey Gabapentin. If that works I'd try Lyrica which is similar but is more effective for some. Ten times the price. The other drug I find effective is Amitriptyline, which has many uses, pain, depression, sleep aid. I take it at night. Do you wrap?

Jump to this post

Why did you have the lymph nodes removed? Do you have Lymphoma? I cannot take Gabapentin. When I take it, I cannot walk. I also cannot take Amitriptyline. It gives me serious heart palpitations. Have you tried Cannabis?

REPLY
Please sign in or register to post a reply.