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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 1 day ago | Replies (6806)
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@bowhunt1969

Hi friends! My name is Allison and I was diagnosed with invasive lobular carcinoma in November of 2014. I had a bilateral mastectomy with reconstruction along with an axillary dissection. Then I had chemotherapy followed by 30 days of radiation. I also had my ovaries removed and I just recently had surgery to remove my neuromas in my chest wall. I’ve been in chronic pain on my chest wall since I had my mastectomy. No one knows what to do in order to help me find relief. I have tried everything from PT to acupuncture. Maybe someone out there has a similar situation or maybe someone can offer advice. I hope that no one else has to suffer like this if they have breast cancer. Surgeons need to change their techniques so they don’t cause so much nerve damage. Help!!

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Replies to "Hi friends! My name is Allison and I was diagnosed with invasive lobular carcinoma in November..."
lioness | @lioness | Dec 17, 2018

@bowhunt1969 Welcome to connect I had heart surgery and pain in my incision area The surgeon took xrays and saw the nerves didn't grow back as they should so he sent me to an anesthesiologist who after reviewing the xray injected me but n chest haven't had any pain since but for along time when side sleeping I had to put something in between my breast like a rolled up washcloth

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@sharon | @sharonalllen | Dec 17, 2018

Reply to @bowhunter1969

I agree about the nerve pain the Dr.s need to improve their techniques! I am still looking for things to help with my Spastiscity but one thing I am sure of, that is ; research,research, research, research!!!! If someone says try A go to utube, Google pros & cons. I find for every yes there are 2 nos,and for ever no there are 2 yeses, it all boils down to the answer is yours and yours alone. I truly believe that the real answer lies with stem cells and a lot of trials and research. Use only doctors at places like Mayo Clinic, Baylor Univ, Univ. of Texas, etc. Also I want to get involved with trails to see if they can help! Some day we will fine peace and relief. Also try Meditation.

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