1. < MAC & Bronchiectasis

Had anyone had a gerd test for silent gerd?

Posted by cynthia69 @cynthia69, Dec 6, 2023

Dr Wolf at Cedars LA said he thinks I could have silent gerd and got MAC from aspiration of water with MAC.

Has anyone else taken gerd test?

Thank you,

Cynthia 69

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

becleartoday | @becleartoday | Dec 10, 2023

Happy you found it helpful. Yes, that water issue is a complex one. Many respiratory therapists say to stay well hydrated but then there’s Dr. Huitt and National Jewish’s attitude towards minimizing water intake to prevent reflux.

REPLY
1 reply
minute22 | @minute22 | Dec 11, 2023
In reply to @davis5663 "Yes, I had all the testing over 10 years ago. I couldn't find anyone locally to..." + (show)
@davis5663

Yes, I had all the testing over 10 years ago. I couldn't find anyone locally to help me (Florida) so I ended up seeing Dr Koufman at the Voice Institute in NYC. She did all testing. I was a tough cookie and ended up with fundoplication surgery. That did the trick. I still follow all precautions.

Jump to this post

The ENT that I saw 10 years ago was Dr. Koufman. She also referred me for consult for fundoplication but I didn't go through with it. I hadn't been diagnosed with bronchiectasis or NTM at that time. When I started care at NYU I scheduled a surgical consult to discuss possible fundoplication and the surgeon referred me for GI testing to determine eligibility. The Bravo didn't show significant reflux so that didn't go anywhere. I'm wondering about the chronology of your reflux treatment and your pulmonary condition(s).

REPLY
cynthia69 | @cynthia69 | Dec 11, 2023

Hi Davis,

I have not had any reflux treatment.

I have bronchiectasis MAC and COPD.

Just got a vest and ordered nebulizer and saline. I have an aerobika.

Cynthia69

REPLY
scoop | @scoop | Dec 11, 2023
In reply to @becleartoday "Happy you found it helpful. Yes, that water issue is a complex one. Many respiratory therapists..." + (show)
@becleartoday

Happy you found it helpful. Yes, that water issue is a complex one. Many respiratory therapists say to stay well hydrated but then there’s Dr. Huitt and National Jewish’s attitude towards minimizing water intake to prevent reflux.

Jump to this post

@becleartoday Today and yesterday, I tried the "no more than 6oz of water per hour" advice by Dr. Huitt and honestly I have been thirsty all day.

REPLY
becleartoday | @becleartoday | Dec 11, 2023

I tried it to for a period of time and it didn’t work out for me, either yes,. With that said, I do eat a piece of bread before exercising and I am more mindful about bending over at the waist during the day.

Small changes can make a big difference!
Linda

REPLY
1 reply
scoop | @scoop | Dec 11, 2023
In reply to @becleartoday "I tried it to for a period of time and it didn’t work out for me,..." + (show)
@becleartoday

I tried it to for a period of time and it didn’t work out for me, either yes,. With that said, I do eat a piece of bread before exercising and I am more mindful about bending over at the waist during the day.

Small changes can make a big difference!
Linda

Jump to this post

Good reminders, thank you!

REPLY
View MoreView Less
Please sign in or register to post a reply.