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Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Moderator
Justin McClanahan, Moderator | @JustinMcClanahan | Aug 23, 2018
In reply to @gailb "@grandmar Ronnie, I am again amazed by your positive feelings in spite of your extreme pain...." + (show)
@gailb

@grandmar

Ronnie, I am again amazed by your positive feelings in spite of your extreme pain. You continue to look for the positive in each issue you have. You are an inspiration to others in pain, including me. My pain feels small after reading your posts. I hope your doctors find a conservative treatment for your spine problems. I have a compression fracture in my C7, and when it's inflamed the pain is excruciating. I also have ongoing osteoarthritis, DDD, lumbar issues, spondylitis, etc which I'm sure you've read in my previous posts.

While I am feeling better right now, I notice that my neck and back pain and leg weakness is slowly returning. Your experiences are helping me as I suspect I will be needing additional work one of these months. Thank you so much for sharing your experience and feelings on this site. You're helping so many others in similar positions, in spite of your pain.

Gail
Volunteer Mentor

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I thought this extra information on Tramadol from Mayo Clinic may be helpful, "Tramadol belongs to the group of medicines called opioid analgesics. It acts in the central nervous system (CNS) to relieve pain. When tramadol is used for a long time, it may become habit-forming (causing mental or physical dependence). Physical dependence may lead to side effects when you stop taking the medicine."
https://www.mayoclinic.org/drugs-supplements/tramadol-oral-route/description/drg-20068050

REPLY
grandmaR | @grandmar | Aug 23, 2018
In reply to @gailb "@grandmar Ronnie, I am again amazed by your positive feelings in spite of your extreme pain...." + (show)
@gailb

@grandmar

Ronnie, I am again amazed by your positive feelings in spite of your extreme pain. You continue to look for the positive in each issue you have. You are an inspiration to others in pain, including me. My pain feels small after reading your posts. I hope your doctors find a conservative treatment for your spine problems. I have a compression fracture in my C7, and when it's inflamed the pain is excruciating. I also have ongoing osteoarthritis, DDD, lumbar issues, spondylitis, etc which I'm sure you've read in my previous posts.

While I am feeling better right now, I notice that my neck and back pain and leg weakness is slowly returning. Your experiences are helping me as I suspect I will be needing additional work one of these months. Thank you so much for sharing your experience and feelings on this site. You're helping so many others in similar positions, in spite of your pain.

Gail
Volunteer Mentor

Jump to this post

@JustinMcClanahan
Thanks for the info, Justin.
Of course, Tramadol is the only pain med that works for me.
It was prescribed when I had a tooth infection.
It helped EVERYTHING!
I kept one in case i am in 'need to go to the hospital'pain.
Ronnie (GRANDMAr)

REPLY
Moderator
Colleen Young, Connect Director | @colleenyoung | Aug 23, 2018
In reply to @parus "@gailb I have been reading about genetic testing for different things. Does insurance pay for this..." + (show)
@parus

@gailb I have been reading about genetic testing for different things. Does insurance pay for this type of testing? Probably varies.
A smiling flower face helps me. Hope it helps you and maybe someone else. I do enjoy my small secret garden with BIG color.

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Dr. Jon Ebbert, an addiction specialist at Mayo Clinic, explains how medical marijuana is used to treat pain and disease symptoms, and dispels a few notions about CBD on Mayo Clinic Radio

REPLY
1 reply
cognac | @cognac | Aug 24, 2018
In reply to @gailb "@grandmar Ronnie, I am again amazed by your positive feelings in spite of your extreme pain...." + (show)
@gailb

@grandmar

Ronnie, I am again amazed by your positive feelings in spite of your extreme pain. You continue to look for the positive in each issue you have. You are an inspiration to others in pain, including me. My pain feels small after reading your posts. I hope your doctors find a conservative treatment for your spine problems. I have a compression fracture in my C7, and when it's inflamed the pain is excruciating. I also have ongoing osteoarthritis, DDD, lumbar issues, spondylitis, etc which I'm sure you've read in my previous posts.

While I am feeling better right now, I notice that my neck and back pain and leg weakness is slowly returning. Your experiences are helping me as I suspect I will be needing additional work one of these months. Thank you so much for sharing your experience and feelings on this site. You're helping so many others in similar positions, in spite of your pain.

Gail
Volunteer Mentor

Jump to this post

@grandmar and @JustinMcClanahan, yes. I totally agree. Tramadol is certainly my drug of choice. Unfortuunately, my doctor has decided to no longer prescribe ANY opoids, so I take 6 to 9 ES Tylenol each day while I search for another avenue of relief. They aren't as good as Tramadol, and I know they are slowly eating my liver, but at this juncture I'm ready to try most anything. Lyrica doesn't work. Take care, @cognac

REPLY
1 reply
Stephen | @wsh66 | Aug 24, 2018
In reply to @gailb "@grandmar Ronnie, I am again amazed by your positive feelings in spite of your extreme pain...." + (show)
@gailb

@grandmar

Ronnie, I am again amazed by your positive feelings in spite of your extreme pain. You continue to look for the positive in each issue you have. You are an inspiration to others in pain, including me. My pain feels small after reading your posts. I hope your doctors find a conservative treatment for your spine problems. I have a compression fracture in my C7, and when it's inflamed the pain is excruciating. I also have ongoing osteoarthritis, DDD, lumbar issues, spondylitis, etc which I'm sure you've read in my previous posts.

While I am feeling better right now, I notice that my neck and back pain and leg weakness is slowly returning. Your experiences are helping me as I suspect I will be needing additional work one of these months. Thank you so much for sharing your experience and feelings on this site. You're helping so many others in similar positions, in spite of your pain.

Gail
Volunteer Mentor

Jump to this post

Tell your Doctor to wake up, Tramadol is not an opiod

REPLY
1 reply
jmgndph | @jmgndph | Aug 24, 2018

New Daily Persistent Headache began November 13, 2017. The pain range has been 6-9 and never-ending since that time. Have been treated at Mayo Clinic in Family Medicine, Neurology, Infectious Diseases, Physical Therapy, Urology, Cardiology, Audiology, Internal Medicine, Employee and Community Health, Integrated Community Specialties, Opthamology (sic), Radiology, and perhaps a few other departments I can't recall. I have received acupuncture from the Mayo Clinic and from a private practitioner. I have received chiropractic care and ultrasound. I have tried a cephaly device through the Clinic Store.. I have had a lumbar puncture to test my spinal fluid. I have had cortisone injections to block my occipital (sic) nerves. I have had two dental exams and an exam from a dentist specializing in TMJ/head and neck pain. I have had my furnace checked for carbon monoxide. OTC medications have included tylenol, aleve, ibuprofin, allegra, aspirin, salonpas patches, pseuphedrine, dietary supplements, cremes/lotions. Prescription medications have included tylenol with codeine, neurontin, doxycycline, several different antibiotics, nortryptiline, cymbalta. Have tried hot showers, cold showers, ice packs, heating pads. I practice mindfulness, muscle relaxation, biofeedback. I practice principles of cognitive behavior therapy, dialectical behavior therapy, rational emotive therapy, social rhythms therapy, acceptance and commitment therapy. I practice the principles of Emotions Anonymous. I pray and turn my life over to God every morning. I have missed church, community education programs, symphony concerts, funerals, parties. I have not traveled outside my home state of Minnesota for over a year. My quality of life has suffered greatly. My wife's quality of life has suffered greatly. The only time I do not feel a headache (all over, tingling, pulsing, reverberating, pounding, dull, aching pain including teeth and ears and eyes accompanied by sound and sight sensitivities) is when I am asleep, so I sleep -- a lot. I am aware I may just be starting out on this journey. Any suggestions/recommendations would be most gratefully received. Thank you. Oh, have been approved for medical cannabis, too. No results.

REPLY
2 replies
lioness | @lioness | Aug 24, 2018

@jmgndph You didn't mention a CT scan of the head or enceplogram ,have you had any of these? A brain scan would be called for just a suggestion.

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2 replies
Mentor
Ginger, Volunteer Mentor | @gingerw | Aug 24, 2018

@jmgndph Oh, my heart simply aches for both you and your wife. As @lioness suggested, has there been a CT scan done? Any blood work for heavy metal exposure, like lead or mercury? Has the water source been checked? What about everyday things like mold in your house/environment or car? Really hoping there is an answer out there for you, soon. Please keep us informed. We care.
Ginger

REPLY
2 replies
grandmaR | @grandmar | Aug 24, 2018
In reply to @jmgndph "New Daily Persistent Headache began November 13, 2017. The pain range has been 6-9 and never-ending..." + (show)
@jmgndph

New Daily Persistent Headache began November 13, 2017. The pain range has been 6-9 and never-ending since that time. Have been treated at Mayo Clinic in Family Medicine, Neurology, Infectious Diseases, Physical Therapy, Urology, Cardiology, Audiology, Internal Medicine, Employee and Community Health, Integrated Community Specialties, Opthamology (sic), Radiology, and perhaps a few other departments I can't recall. I have received acupuncture from the Mayo Clinic and from a private practitioner. I have received chiropractic care and ultrasound. I have tried a cephaly device through the Clinic Store.. I have had a lumbar puncture to test my spinal fluid. I have had cortisone injections to block my occipital (sic) nerves. I have had two dental exams and an exam from a dentist specializing in TMJ/head and neck pain. I have had my furnace checked for carbon monoxide. OTC medications have included tylenol, aleve, ibuprofin, allegra, aspirin, salonpas patches, pseuphedrine, dietary supplements, cremes/lotions. Prescription medications have included tylenol with codeine, neurontin, doxycycline, several different antibiotics, nortryptiline, cymbalta. Have tried hot showers, cold showers, ice packs, heating pads. I practice mindfulness, muscle relaxation, biofeedback. I practice principles of cognitive behavior therapy, dialectical behavior therapy, rational emotive therapy, social rhythms therapy, acceptance and commitment therapy. I practice the principles of Emotions Anonymous. I pray and turn my life over to God every morning. I have missed church, community education programs, symphony concerts, funerals, parties. I have not traveled outside my home state of Minnesota for over a year. My quality of life has suffered greatly. My wife's quality of life has suffered greatly. The only time I do not feel a headache (all over, tingling, pulsing, reverberating, pounding, dull, aching pain including teeth and ears and eyes accompanied by sound and sight sensitivities) is when I am asleep, so I sleep -- a lot. I am aware I may just be starting out on this journey. Any suggestions/recommendations would be most gratefully received. Thank you. Oh, have been approved for medical cannabis, too. No results.

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@jmgndph
I am at a loss for words! It sounds like you have been very proactive. I don't see a diagnosis. What is going on with your wife? She certainly has been tested up one side and down the other. I can only imagine how the quality of life has suffered.

I wish I had words of wisdom to offer.

Bless you both.....
Ronnie (GRANDMAr)

REPLY
grandmaR | @grandmar | Aug 24, 2018
In reply to @gailb "@grandmar Ronnie, I am again amazed by your positive feelings in spite of your extreme pain...." + (show)
@gailb

@grandmar

Ronnie, I am again amazed by your positive feelings in spite of your extreme pain. You continue to look for the positive in each issue you have. You are an inspiration to others in pain, including me. My pain feels small after reading your posts. I hope your doctors find a conservative treatment for your spine problems. I have a compression fracture in my C7, and when it's inflamed the pain is excruciating. I also have ongoing osteoarthritis, DDD, lumbar issues, spondylitis, etc which I'm sure you've read in my previous posts.

While I am feeling better right now, I notice that my neck and back pain and leg weakness is slowly returning. Your experiences are helping me as I suspect I will be needing additional work one of these months. Thank you so much for sharing your experience and feelings on this site. You're helping so many others in similar positions, in spite of your pain.

Gail
Volunteer Mentor

Jump to this post

@cognac
Lyrica did not work for me either.
Good luck in your search!
Ronnie (GRANDMAr)

REPLY
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