1. < Chronic Pain

Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

jupiterkaren | @jupiterkaren | Jun 3, 2018
In reply to @oregongirl "My prayers and thoughts are with you. I pray she can mentally get thru this. Keep..." + (show)
@oregongirl

My prayers and thoughts are with you. I pray she can mentally get thru this. Keep up updated please

Jump to this post

I'm sad too.

REPLY
springwater | @springwater | Jun 3, 2018
In reply to @springwater "Hi, I am writing for my wife. She has Parkinson's for past 20 years. July 2017..." + (show)
@springwater

Hi,
I am writing for my wife. She has Parkinson's for past 20 years. July 2017 she had a very bad uti infection. She had iv of cipro and a script for it. Also took cephlexin high dose then 250 mg daily for maintenance. Finish script. Has had 3 more utis and taking cipro 4 more times. March 2018 she was given mestinon for low blood pressure. Mestinon is for myasthenia gravis but said would help bp. So April 5 2018 begin taking 60mg 2x day increase to 3x day. She was hot and cold, not sleep, had diarrhea got dizzy when stand fell thought broke wrist. Went to er thought had a virus and Cray wrist. Said all is ok on 7th April. Then got severe thigh and calf charley horses on 8th last 45 minutes very painful. Doc says I do not know what to do. On 3rd day cramps go to very severe pain in legs spreads to back and all over while still in legs. We got no sleep. Pain mostly at night but can hit day time. Went to urologist said no UTI but sent in for culture, called said had UTI and gave cipro. Still pain each night. Daughter drove us to er at mayo clinic. Unlike our little town they were very helpful. Seen a doctor then a neurologist no pain finally at midnight pain hit Neuro was there. Did brain scan, blood work all ok . Admit at 3am and gave 100mg gabetine and did MRI of lower back 6:30am. It was ok. Came home late pm and she was ok for 3 days then pain hit again. Talk to mayo docs very difficult for us to get there, so went to local doc. He went up to 300mg gabetine but she still is in very bad pain every day or night. This morning at 4:30am last to 5:45am was bad. Today is June 3rd. We need help please. I just read yesterday that cipro damages nerve or tendons and maybe I think the mestinon triggered the pain.
Thanks

Jump to this post

I feel sorry for you both we know how you feel, God bless you. I take it you have tried dinger water and honey, spoon full mustard, pickle juice, turmeric, exercise helps release natural pain relief. Just thought would mention.

REPLY
springwater | @springwater | Jun 3, 2018
In reply to @springwater "Hi, I am writing for my wife. She has Parkinson's for past 20 years. July 2017..." + (show)
@springwater

Hi,
I am writing for my wife. She has Parkinson's for past 20 years. July 2017 she had a very bad uti infection. She had iv of cipro and a script for it. Also took cephlexin high dose then 250 mg daily for maintenance. Finish script. Has had 3 more utis and taking cipro 4 more times. March 2018 she was given mestinon for low blood pressure. Mestinon is for myasthenia gravis but said would help bp. So April 5 2018 begin taking 60mg 2x day increase to 3x day. She was hot and cold, not sleep, had diarrhea got dizzy when stand fell thought broke wrist. Went to er thought had a virus and Cray wrist. Said all is ok on 7th April. Then got severe thigh and calf charley horses on 8th last 45 minutes very painful. Doc says I do not know what to do. On 3rd day cramps go to very severe pain in legs spreads to back and all over while still in legs. We got no sleep. Pain mostly at night but can hit day time. Went to urologist said no UTI but sent in for culture, called said had UTI and gave cipro. Still pain each night. Daughter drove us to er at mayo clinic. Unlike our little town they were very helpful. Seen a doctor then a neurologist no pain finally at midnight pain hit Neuro was there. Did brain scan, blood work all ok . Admit at 3am and gave 100mg gabetine and did MRI of lower back 6:30am. It was ok. Came home late pm and she was ok for 3 days then pain hit again. Talk to mayo docs very difficult for us to get there, so went to local doc. He went up to 300mg gabetine but she still is in very bad pain every day or night. This morning at 4:30am last to 5:45am was bad. Today is June 3rd. We need help please. I just read yesterday that cipro damages nerve or tendons and maybe I think the mestinon triggered the pain.
Thanks

Jump to this post

Sorry that is vinegar, water and honey.

REPLY
jupiterkaren | @jupiterkaren | Jun 3, 2018
In reply to @springwater "Hi, I am writing for my wife. She has Parkinson's for past 20 years. July 2017..." + (show)
@springwater

Hi,
I am writing for my wife. She has Parkinson's for past 20 years. July 2017 she had a very bad uti infection. She had iv of cipro and a script for it. Also took cephlexin high dose then 250 mg daily for maintenance. Finish script. Has had 3 more utis and taking cipro 4 more times. March 2018 she was given mestinon for low blood pressure. Mestinon is for myasthenia gravis but said would help bp. So April 5 2018 begin taking 60mg 2x day increase to 3x day. She was hot and cold, not sleep, had diarrhea got dizzy when stand fell thought broke wrist. Went to er thought had a virus and Cray wrist. Said all is ok on 7th April. Then got severe thigh and calf charley horses on 8th last 45 minutes very painful. Doc says I do not know what to do. On 3rd day cramps go to very severe pain in legs spreads to back and all over while still in legs. We got no sleep. Pain mostly at night but can hit day time. Went to urologist said no UTI but sent in for culture, called said had UTI and gave cipro. Still pain each night. Daughter drove us to er at mayo clinic. Unlike our little town they were very helpful. Seen a doctor then a neurologist no pain finally at midnight pain hit Neuro was there. Did brain scan, blood work all ok . Admit at 3am and gave 100mg gabetine and did MRI of lower back 6:30am. It was ok. Came home late pm and she was ok for 3 days then pain hit again. Talk to mayo docs very difficult for us to get there, so went to local doc. He went up to 300mg gabetine but she still is in very bad pain every day or night. This morning at 4:30am last to 5:45am was bad. Today is June 3rd. We need help please. I just read yesterday that cipro damages nerve or tendons and maybe I think the mestinon triggered the pain.
Thanks

Jump to this post

Fell on shoulder went to er went to dr did a c cleanout in shoulder removed bone spurs. Constant pain. Went to 2 neuros no answers ortho said he's fine (not) 2 shots one in neck one in shoulder no relief. Feeels someone stabbing him. Can't find answers. Silently dismissed. Our lives have become insane. Have appointment with Cleveland Clinic Friday. Exhausted , sad, etc....oh 2 trips to e. R . Drugged let him go....really? I called insurance company asked for patient advocate, asked hospital for social worker both times in e r. Never sent anyone. Pity party today forgive me for complaining, but we have no answers., hub lost 40 pounds, upset, in bed every day, and the world around us goes on.....

REPLY
lioness | @lioness | Jun 3, 2018
In reply to @springwater "Hi, I am writing for my wife. She has Parkinson's for past 20 years. July 2017..." + (show)
@springwater

Hi,
I am writing for my wife. She has Parkinson's for past 20 years. July 2017 she had a very bad uti infection. She had iv of cipro and a script for it. Also took cephlexin high dose then 250 mg daily for maintenance. Finish script. Has had 3 more utis and taking cipro 4 more times. March 2018 she was given mestinon for low blood pressure. Mestinon is for myasthenia gravis but said would help bp. So April 5 2018 begin taking 60mg 2x day increase to 3x day. She was hot and cold, not sleep, had diarrhea got dizzy when stand fell thought broke wrist. Went to er thought had a virus and Cray wrist. Said all is ok on 7th April. Then got severe thigh and calf charley horses on 8th last 45 minutes very painful. Doc says I do not know what to do. On 3rd day cramps go to very severe pain in legs spreads to back and all over while still in legs. We got no sleep. Pain mostly at night but can hit day time. Went to urologist said no UTI but sent in for culture, called said had UTI and gave cipro. Still pain each night. Daughter drove us to er at mayo clinic. Unlike our little town they were very helpful. Seen a doctor then a neurologist no pain finally at midnight pain hit Neuro was there. Did brain scan, blood work all ok . Admit at 3am and gave 100mg gabetine and did MRI of lower back 6:30am. It was ok. Came home late pm and she was ok for 3 days then pain hit again. Talk to mayo docs very difficult for us to get there, so went to local doc. He went up to 300mg gabetine but she still is in very bad pain every day or night. This morning at 4:30am last to 5:45am was bad. Today is June 3rd. We need help please. I just read yesterday that cipro damages nerve or tendons and maybe I think the mestinon triggered the pain.
Thanks

Jump to this post

@jupiterkaren Have you tried anti-inflammatory medicine or muscle relaxer Dr.prescription.Maybe a chiropractor would be able to help or accupunctur .Ive studied holistic medicine for along time and some I've found to help me with my pain are ginger-Tumeric tea from Trader Jo,s,Arnica cream CVS .These two help me everyone is different but it's worth a try ,there is also heating pad Epsom salts or vinegar water to relax the muscles,hope any of these suggestions will help.

REPLY
lioness | @lioness | Jun 3, 2018
In reply to @springwater "Hi, I am writing for my wife. She has Parkinson's for past 20 years. July 2017..." + (show)
@springwater

Hi,
I am writing for my wife. She has Parkinson's for past 20 years. July 2017 she had a very bad uti infection. She had iv of cipro and a script for it. Also took cephlexin high dose then 250 mg daily for maintenance. Finish script. Has had 3 more utis and taking cipro 4 more times. March 2018 she was given mestinon for low blood pressure. Mestinon is for myasthenia gravis but said would help bp. So April 5 2018 begin taking 60mg 2x day increase to 3x day. She was hot and cold, not sleep, had diarrhea got dizzy when stand fell thought broke wrist. Went to er thought had a virus and Cray wrist. Said all is ok on 7th April. Then got severe thigh and calf charley horses on 8th last 45 minutes very painful. Doc says I do not know what to do. On 3rd day cramps go to very severe pain in legs spreads to back and all over while still in legs. We got no sleep. Pain mostly at night but can hit day time. Went to urologist said no UTI but sent in for culture, called said had UTI and gave cipro. Still pain each night. Daughter drove us to er at mayo clinic. Unlike our little town they were very helpful. Seen a doctor then a neurologist no pain finally at midnight pain hit Neuro was there. Did brain scan, blood work all ok . Admit at 3am and gave 100mg gabetine and did MRI of lower back 6:30am. It was ok. Came home late pm and she was ok for 3 days then pain hit again. Talk to mayo docs very difficult for us to get there, so went to local doc. He went up to 300mg gabetine but she still is in very bad pain every day or night. This morning at 4:30am last to 5:45am was bad. Today is June 3rd. We need help please. I just read yesterday that cipro damages nerve or tendons and maybe I think the mestinon triggered the pain.
Thanks

Jump to this post

@springwater Reread the email could this be fibromyalgia? Ask others here who have fibromyalgia I've had it for 30+ yrs and for me no med. helped but a product called Fibro Malic has for me I buy it through Vitacost.com I'm just trying to figure out what might help .Epsom Salt for leg cramps, hot showers,Tens unit for tight muscles ,it relaxes the muscles,for Epsom salts I wring out a wash cloth and apply it to my legs ,cant get in tub.Just some more suggestions

REPLY
jupiterkaren | @jupiterkaren | Jun 3, 2018
In reply to @springwater "Hi, I am writing for my wife. She has Parkinson's for past 20 years. July 2017..." + (show)
@springwater

Hi,
I am writing for my wife. She has Parkinson's for past 20 years. July 2017 she had a very bad uti infection. She had iv of cipro and a script for it. Also took cephlexin high dose then 250 mg daily for maintenance. Finish script. Has had 3 more utis and taking cipro 4 more times. March 2018 she was given mestinon for low blood pressure. Mestinon is for myasthenia gravis but said would help bp. So April 5 2018 begin taking 60mg 2x day increase to 3x day. She was hot and cold, not sleep, had diarrhea got dizzy when stand fell thought broke wrist. Went to er thought had a virus and Cray wrist. Said all is ok on 7th April. Then got severe thigh and calf charley horses on 8th last 45 minutes very painful. Doc says I do not know what to do. On 3rd day cramps go to very severe pain in legs spreads to back and all over while still in legs. We got no sleep. Pain mostly at night but can hit day time. Went to urologist said no UTI but sent in for culture, called said had UTI and gave cipro. Still pain each night. Daughter drove us to er at mayo clinic. Unlike our little town they were very helpful. Seen a doctor then a neurologist no pain finally at midnight pain hit Neuro was there. Did brain scan, blood work all ok . Admit at 3am and gave 100mg gabetine and did MRI of lower back 6:30am. It was ok. Came home late pm and she was ok for 3 days then pain hit again. Talk to mayo docs very difficult for us to get there, so went to local doc. He went up to 300mg gabetine but she still is in very bad pain every day or night. This morning at 4:30am last to 5:45am was bad. Today is June 3rd. We need help please. I just read yesterday that cipro damages nerve or tendons and maybe I think the mestinon triggered the pain.
Thanks

Jump to this post

Yes 3including battleship accupuncture rounds therapy, everything under the sun

REPLY
jupiterkaren | @jupiterkaren | Jun 3, 2018
In reply to @oregongirl "My prayers and thoughts are with you. I pray she can mentally get thru this. Keep..." + (show)
@oregongirl

My prayers and thoughts are with you. I pray she can mentally get thru this. Keep up updated please

Jump to this post

I honestly get it.

REPLY
lioness | @lioness | Jun 3, 2018
In reply to @springwater "Hi, I am writing for my wife. She has Parkinson's for past 20 years. July 2017..." + (show)
@springwater

Hi,
I am writing for my wife. She has Parkinson's for past 20 years. July 2017 she had a very bad uti infection. She had iv of cipro and a script for it. Also took cephlexin high dose then 250 mg daily for maintenance. Finish script. Has had 3 more utis and taking cipro 4 more times. March 2018 she was given mestinon for low blood pressure. Mestinon is for myasthenia gravis but said would help bp. So April 5 2018 begin taking 60mg 2x day increase to 3x day. She was hot and cold, not sleep, had diarrhea got dizzy when stand fell thought broke wrist. Went to er thought had a virus and Cray wrist. Said all is ok on 7th April. Then got severe thigh and calf charley horses on 8th last 45 minutes very painful. Doc says I do not know what to do. On 3rd day cramps go to very severe pain in legs spreads to back and all over while still in legs. We got no sleep. Pain mostly at night but can hit day time. Went to urologist said no UTI but sent in for culture, called said had UTI and gave cipro. Still pain each night. Daughter drove us to er at mayo clinic. Unlike our little town they were very helpful. Seen a doctor then a neurologist no pain finally at midnight pain hit Neuro was there. Did brain scan, blood work all ok . Admit at 3am and gave 100mg gabetine and did MRI of lower back 6:30am. It was ok. Came home late pm and she was ok for 3 days then pain hit again. Talk to mayo docs very difficult for us to get there, so went to local doc. He went up to 300mg gabetine but she still is in very bad pain every day or night. This morning at 4:30am last to 5:45am was bad. Today is June 3rd. We need help please. I just read yesterday that cipro damages nerve or tendons and maybe I think the mestinon triggered the pain.
Thanks

Jump to this post

@jupiterkaren one thing I did forget is Ice ,when I had my toe operation the Dr told.me to just apply a ice pack as ice is good for inflammation.Hope you find some relief just remember we know our own bodies there,s no One fits all remedy good luck

REPLY
springwater | @springwater | Jun 3, 2018
In reply to @springwater "Hi, I am writing for my wife. She has Parkinson's for past 20 years. July 2017..." + (show)
@springwater

Hi,
I am writing for my wife. She has Parkinson's for past 20 years. July 2017 she had a very bad uti infection. She had iv of cipro and a script for it. Also took cephlexin high dose then 250 mg daily for maintenance. Finish script. Has had 3 more utis and taking cipro 4 more times. March 2018 she was given mestinon for low blood pressure. Mestinon is for myasthenia gravis but said would help bp. So April 5 2018 begin taking 60mg 2x day increase to 3x day. She was hot and cold, not sleep, had diarrhea got dizzy when stand fell thought broke wrist. Went to er thought had a virus and Cray wrist. Said all is ok on 7th April. Then got severe thigh and calf charley horses on 8th last 45 minutes very painful. Doc says I do not know what to do. On 3rd day cramps go to very severe pain in legs spreads to back and all over while still in legs. We got no sleep. Pain mostly at night but can hit day time. Went to urologist said no UTI but sent in for culture, called said had UTI and gave cipro. Still pain each night. Daughter drove us to er at mayo clinic. Unlike our little town they were very helpful. Seen a doctor then a neurologist no pain finally at midnight pain hit Neuro was there. Did brain scan, blood work all ok . Admit at 3am and gave 100mg gabetine and did MRI of lower back 6:30am. It was ok. Came home late pm and she was ok for 3 days then pain hit again. Talk to mayo docs very difficult for us to get there, so went to local doc. He went up to 300mg gabetine but she still is in very bad pain every day or night. This morning at 4:30am last to 5:45am was bad. Today is June 3rd. We need help please. I just read yesterday that cipro damages nerve or tendons and maybe I think the mestinon triggered the pain.
Thanks

Jump to this post

Thanks, have done heat pad but not ice.

REPLY
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