Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

@kristacat

Hello :). First time I’m using a chat for medical reasons. I feel quite desperate and thought I would see if I could tap into this community for help. I was recently diagnosed with hip bursitis. I’m only 42 and sometimes the pain is debilitating. It started on my outer thighs but months later is now more painful on the top of my pelvis bone (highest point) and the groin area which sometimes swells up. I have angioadema (my lower lip swells and I get a rash). I was also diagnosed with fibromyalgia a few years ago. I am fortunate that this condition flares up now and again and is not something that I suffer everyday. I do get very tired - I am finding it hard to stay awake during the day. To add to all this I have 7 uterine fibroids. And also restricted blood flow in both lower legs which can make standing still and flying very painful. Such a variety of conditions but I cannot figure out whether any of these could be related or am I just incredibly unlucky ???!!!! If anyone has any insights I would be very grateful. I am aware that I do have some IgG intolerances to certain foods and recently stopped eating dairy. tips on handling chronic pain and tiredness would be greatly appreciated. Thank you so much

Jump to this post

@wsh66

Yes, I had to sign a contract too. I had told the pain doctor I used marijuana since it's legal in California. He told me the same thing you were told and I had drug tests every 6 months. I've never been drug tested before in my life. I passed because I made a commitment not to do other drugs or marijuana. When I make a commitment, I keep it. Of course he didn't know that. I waited until I was not having much pain and was withdrawing from Tramadol before I used it. I don't plan to see the pain doctor again, and I was successfully dismissed from his care. I recommend if anyone is going to try Marijuana, they need to discuss it with their doctors first.

Gail
Volunteer Mentor

REPLY
@kristacat

Hello :). First time I’m using a chat for medical reasons. I feel quite desperate and thought I would see if I could tap into this community for help. I was recently diagnosed with hip bursitis. I’m only 42 and sometimes the pain is debilitating. It started on my outer thighs but months later is now more painful on the top of my pelvis bone (highest point) and the groin area which sometimes swells up. I have angioadema (my lower lip swells and I get a rash). I was also diagnosed with fibromyalgia a few years ago. I am fortunate that this condition flares up now and again and is not something that I suffer everyday. I do get very tired - I am finding it hard to stay awake during the day. To add to all this I have 7 uterine fibroids. And also restricted blood flow in both lower legs which can make standing still and flying very painful. Such a variety of conditions but I cannot figure out whether any of these could be related or am I just incredibly unlucky ???!!!! If anyone has any insights I would be very grateful. I am aware that I do have some IgG intolerances to certain foods and recently stopped eating dairy. tips on handling chronic pain and tiredness would be greatly appreciated. Thank you so much

Jump to this post

I was also concerned from that Cymbalta I took It made me think I had Alzheimer's

REPLY
@kristacat

Hello :). First time I’m using a chat for medical reasons. I feel quite desperate and thought I would see if I could tap into this community for help. I was recently diagnosed with hip bursitis. I’m only 42 and sometimes the pain is debilitating. It started on my outer thighs but months later is now more painful on the top of my pelvis bone (highest point) and the groin area which sometimes swells up. I have angioadema (my lower lip swells and I get a rash). I was also diagnosed with fibromyalgia a few years ago. I am fortunate that this condition flares up now and again and is not something that I suffer everyday. I do get very tired - I am finding it hard to stay awake during the day. To add to all this I have 7 uterine fibroids. And also restricted blood flow in both lower legs which can make standing still and flying very painful. Such a variety of conditions but I cannot figure out whether any of these could be related or am I just incredibly unlucky ???!!!! If anyone has any insights I would be very grateful. I am aware that I do have some IgG intolerances to certain foods and recently stopped eating dairy. tips on handling chronic pain and tiredness would be greatly appreciated. Thank you so much

Jump to this post

@gailb Within an hour after taking the 900 mg of gabapentin about 9:30 pm, the needle like pain in my hands is nearly if not totally gone. I feel no foggy brain. Once in a while when chatting with friends I have what I call a senior moment but I have had those for several years. I am 76 and need all of my brain power. My neurologist did eliminate the morning 300 mg dose and add it to the night meds. I use medical marijuana during the day for pain control.

REPLY
@kristacat

Hello :). First time I’m using a chat for medical reasons. I feel quite desperate and thought I would see if I could tap into this community for help. I was recently diagnosed with hip bursitis. I’m only 42 and sometimes the pain is debilitating. It started on my outer thighs but months later is now more painful on the top of my pelvis bone (highest point) and the groin area which sometimes swells up. I have angioadema (my lower lip swells and I get a rash). I was also diagnosed with fibromyalgia a few years ago. I am fortunate that this condition flares up now and again and is not something that I suffer everyday. I do get very tired - I am finding it hard to stay awake during the day. To add to all this I have 7 uterine fibroids. And also restricted blood flow in both lower legs which can make standing still and flying very painful. Such a variety of conditions but I cannot figure out whether any of these could be related or am I just incredibly unlucky ???!!!! If anyone has any insights I would be very grateful. I am aware that I do have some IgG intolerances to certain foods and recently stopped eating dairy. tips on handling chronic pain and tiredness would be greatly appreciated. Thank you so much

Jump to this post

It's like I said your body knows what helps but for others it's something different if it works for you great I'm glad each of us has to find what works for them There,s no same solution for all.

REPLY
@kristacat

Hello :). First time I’m using a chat for medical reasons. I feel quite desperate and thought I would see if I could tap into this community for help. I was recently diagnosed with hip bursitis. I’m only 42 and sometimes the pain is debilitating. It started on my outer thighs but months later is now more painful on the top of my pelvis bone (highest point) and the groin area which sometimes swells up. I have angioadema (my lower lip swells and I get a rash). I was also diagnosed with fibromyalgia a few years ago. I am fortunate that this condition flares up now and again and is not something that I suffer everyday. I do get very tired - I am finding it hard to stay awake during the day. To add to all this I have 7 uterine fibroids. And also restricted blood flow in both lower legs which can make standing still and flying very painful. Such a variety of conditions but I cannot figure out whether any of these could be related or am I just incredibly unlucky ???!!!! If anyone has any insights I would be very grateful. I am aware that I do have some IgG intolerances to certain foods and recently stopped eating dairy. tips on handling chronic pain and tiredness would be greatly appreciated. Thank you so much

Jump to this post

I've talked with doctors about this issue, and specifically about taking larger doses. The best answer I received is that so called "addiction" becomes a problem when tolerance sets in (the drug stops working) and then we get to go through increasingly difficult responses to going off the drug. Oh yes, then we get to try out other drugs to see what will work in its place. Sometimes I feel like a lab rat. We all know that the final phase of a drug trial is when it is turned loose on the general population. Nevertheless, I would be devastated to be cut off from the drugs I take, given my pain level. This is why I am on the search for complimentary therapies, such as yoga, chiropractic care, and laser treatment. Love & blessings are helpful too!

REPLY
@kristacat

Hello :). First time I’m using a chat for medical reasons. I feel quite desperate and thought I would see if I could tap into this community for help. I was recently diagnosed with hip bursitis. I’m only 42 and sometimes the pain is debilitating. It started on my outer thighs but months later is now more painful on the top of my pelvis bone (highest point) and the groin area which sometimes swells up. I have angioadema (my lower lip swells and I get a rash). I was also diagnosed with fibromyalgia a few years ago. I am fortunate that this condition flares up now and again and is not something that I suffer everyday. I do get very tired - I am finding it hard to stay awake during the day. To add to all this I have 7 uterine fibroids. And also restricted blood flow in both lower legs which can make standing still and flying very painful. Such a variety of conditions but I cannot figure out whether any of these could be related or am I just incredibly unlucky ???!!!! If anyone has any insights I would be very grateful. I am aware that I do have some IgG intolerances to certain foods and recently stopped eating dairy. tips on handling chronic pain and tiredness would be greatly appreciated. Thank you so much

Jump to this post

I don't like it either. An emergency room nurse told me they don't use it cause I makes the patients feel sicker.

REPLY
@gailb

@susan1955 and @raina

Welcome to the Mayo Connect online community. I am a Volunteer Mentor and as such, I am not a medical professional and can only offer my own personal experience and support.

I recommend that you go back through the posts here to find out what has already been discussed. In these discussions you may already find answers to questions you have.

Please tell us more about your journey through chronic pain and anything that has given you some relief. And, keep in mind that what works for me or you, may not work for anyone else. I look forward to hearing more from you.

Gail
Volunteer Mentor

Jump to this post

I agree. When I simply cannot take a walk, I do extra yoga exercises. The key is to keep moving, except when the pain tells me to stay in bed.

REPLY
@kristacat

Hello :). First time I’m using a chat for medical reasons. I feel quite desperate and thought I would see if I could tap into this community for help. I was recently diagnosed with hip bursitis. I’m only 42 and sometimes the pain is debilitating. It started on my outer thighs but months later is now more painful on the top of my pelvis bone (highest point) and the groin area which sometimes swells up. I have angioadema (my lower lip swells and I get a rash). I was also diagnosed with fibromyalgia a few years ago. I am fortunate that this condition flares up now and again and is not something that I suffer everyday. I do get very tired - I am finding it hard to stay awake during the day. To add to all this I have 7 uterine fibroids. And also restricted blood flow in both lower legs which can make standing still and flying very painful. Such a variety of conditions but I cannot figure out whether any of these could be related or am I just incredibly unlucky ???!!!! If anyone has any insights I would be very grateful. I am aware that I do have some IgG intolerances to certain foods and recently stopped eating dairy. tips on handling chronic pain and tiredness would be greatly appreciated. Thank you so much

Jump to this post

I cut my Gabapentin down to 200mg this morning and will probably stay with this for a couple of weeks. When I first started I took only one for the stinging in my hands and it worked. I no longer have the stinging, but the doctor suggested I might try upping the dosage to help with the pain of my herniated disc, but I didn't see where it helped.

REPLY

I suffered from a rare bactrial infection and two years later developed autoimmune syndrome with a variety of autoimmune illnesses showing up one after the other. The chronic pain began in the calves of my legs and has affected every part of my body since then; that has been about 23 years ago. As.time goes by it has become worse. With chronic fatigue a major problem. Although I walk when I am able to (about a mile and ½) it just makes me feel better for the day.My doctors encourage walking for pain relief. My pancreas was ruined by some of the meds that were used to try to help me so that i developed diabetes, which added a huge burden to my life. For years I searched, corresponded, called ,doctors all over the world trying to find help. About 10 years ago I just stopped trying and decided to attempt to have some sort of life as things are. I stick to a pretty restricted diet, leaving out these foods: pork, beef, shellfish, white bread, potatoes and rice and sugar. I eat oats, brown rice and some other grains, a lot of veggies and a moderate amount of fruit and poultry and fish; ail organic. I am a positive person who has remained so through most of it. My strengths are definitely my faith,my diet, my hobbies (writing, genealogy, photography.) It is my belief that focusing on the needs of others can really help. No matter how much others care about us, as tme goes by, many friends fall away. I think we can make them feel helpless. So hello, fellow traveler..may your journey become free from pain.

REPLY
@kristacat

Hello :). First time I’m using a chat for medical reasons. I feel quite desperate and thought I would see if I could tap into this community for help. I was recently diagnosed with hip bursitis. I’m only 42 and sometimes the pain is debilitating. It started on my outer thighs but months later is now more painful on the top of my pelvis bone (highest point) and the groin area which sometimes swells up. I have angioadema (my lower lip swells and I get a rash). I was also diagnosed with fibromyalgia a few years ago. I am fortunate that this condition flares up now and again and is not something that I suffer everyday. I do get very tired - I am finding it hard to stay awake during the day. To add to all this I have 7 uterine fibroids. And also restricted blood flow in both lower legs which can make standing still and flying very painful. Such a variety of conditions but I cannot figure out whether any of these could be related or am I just incredibly unlucky ???!!!! If anyone has any insights I would be very grateful. I am aware that I do have some IgG intolerances to certain foods and recently stopped eating dairy. tips on handling chronic pain and tiredness would be greatly appreciated. Thank you so much

Jump to this post

Glad to here this strategy is helping .This is what the Dr told me ,it takes your body 2weeks to adjust then if it helps adjust again good luck

REPLY
Please sign in or register to post a reply.