1. < Chronic Pain

Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

grandmaR | @grandmar | Apr 28, 2018
In reply to @wsh66 "when I stop taking oral meds people did tell me that I seemed . sharper than..." + (show)
@wsh66

when I stop taking oral meds people did tell me that I seemed . sharper than more like myself

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I tell my hubby just the opposite. With all the meds I take, my brain is foggy and I forget EVERYTHING.

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grandmaR | @grandmar | Apr 28, 2018
In reply to @parus "Maybe those who do not live with chronic (and severe) pain do not grasp the concept..." + (show)
@parus

Maybe those who do not live with chronic (and severe) pain do not grasp the concept of hurting all the time. It is hard for me to understand how it is others can keep doing and going. I somehow have it in my mind that everyone hurts like I do, but can keep going-does this make sense? I see others having quality of life and tell myself I am weak because I cannot overcome the pain. Argh, talking in a circle.

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Oregon Girl,
Not only that, my pain doc will not help me get any walking assistive device. He says I am too young (I am 63). I really don't know what age has to do with it when I am unable to walk unassisted for any time. I can only walk with the help of a shopping cart. So, I only go to stores with a shopping cart or I only walk a very small amount.
Ronnie (GRANDMAr)

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grandmaR | @grandmar | Apr 28, 2018
In reply to @hopeful33250 "Hello @gerryg I see that this is your first post on Connect - I would like..." + (show)
@hopeful33250

Hello @gerryg

I see that this is your first post on Connect - I would like to welcome you. I appreciate your post regarding back pain. Have you already had back surgery?

I understand that you are now interested in having the battery powered device implanted to help with your pain. I am glad to hear that you are seeking a second opinion. This is always a wise choice. In considering a second opinion I would encourage you to look for a large medical/research facility such as a university medical center or a facility like a Mayo Clinic.

We have some members who have had the implant with good results. I would like to invite @jimhd who is a volunteer mentor to share his experiences with the implant. Here is the link to a discussion group where this implant is discussed, https://connect.mayoclinic.org/discussion/has-anybody-had-an-implantable-neurostimulator-for-chronic-pain/?pg=3#comment-95485 Please read through these posts and see what others have experienced.

I look forward to hearing from you again.

Teresa

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Hi Jen,
Thanks for the shout out.
I feel pretty much the same. I go to the pain doc on Monday. We'll see what he says. I wanted to see the surgeon but he won't touch my lower back until I am 3 months out from my cervical surgery.
In the meanwhile, I am still spending a lot on time in my chair.

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lioness | @lioness | Apr 28, 2018
In reply to @parus "Maybe those who do not live with chronic (and severe) pain do not grasp the concept..." + (show)
@parus

Maybe those who do not live with chronic (and severe) pain do not grasp the concept of hurting all the time. It is hard for me to understand how it is others can keep doing and going. I somehow have it in my mind that everyone hurts like I do, but can keep going-does this make sense? I see others having quality of life and tell myself I am weak because I cannot overcome the pain. Argh, talking in a circle.

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As I said before when I do to much it will take me several days to feel better ,my pain @,energy do suffer I don't think I'm on anything else then what has been discussed but Moloxican for arthritis that my rheumatologist put me on but it takes 1,or those allong with Tramadol the same time which was approved by Dr.I lay down alot ,chair exercise helps also it is mostly stretching ,we all are strong ,have to be ,don't let are illnesses beat us ,keep going.

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lioness | @lioness | Apr 28, 2018
In reply to @parus "Maybe those who do not live with chronic (and severe) pain do not grasp the concept..." + (show)
@parus

Maybe those who do not live with chronic (and severe) pain do not grasp the concept of hurting all the time. It is hard for me to understand how it is others can keep doing and going. I somehow have it in my mind that everyone hurts like I do, but can keep going-does this make sense? I see others having quality of life and tell myself I am weak because I cannot overcome the pain. Argh, talking in a circle.

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I'm surprised your Dr won't right a scrip for a walker but you can get a cane at drug store be more forceful sometimes that's all.it takes

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lioness | @lioness | Apr 28, 2018
In reply to @hopeful33250 "Hello @gerryg I see that this is your first post on Connect - I would like..." + (show)
@hopeful33250

Hello @gerryg

I see that this is your first post on Connect - I would like to welcome you. I appreciate your post regarding back pain. Have you already had back surgery?

I understand that you are now interested in having the battery powered device implanted to help with your pain. I am glad to hear that you are seeking a second opinion. This is always a wise choice. In considering a second opinion I would encourage you to look for a large medical/research facility such as a university medical center or a facility like a Mayo Clinic.

We have some members who have had the implant with good results. I would like to invite @jimhd who is a volunteer mentor to share his experiences with the implant. Here is the link to a discussion group where this implant is discussed, https://connect.mayoclinic.org/discussion/has-anybody-had-an-implantable-neurostimulator-for-chronic-pain/?pg=3#comment-95485 Please read through these posts and see what others have experienced.

I look forward to hearing from you again.

Teresa

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See why your upset guess it's patients we need.Being a retired nurse I am by nature a forceful women hang in there

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cognac | @cognac | Apr 28, 2018
In reply to @jeannegordon4 "I'm re-visiting "Chat" on the topic of Pain from Fibromyalgia, Osteoarthritis, and DJD conditions. Specifically, I..." + (show)
@jeannegordon4

I'm re-visiting "Chat" on the topic of Pain from Fibromyalgia, Osteoarthritis, and DJD conditions. Specifically, I want
members comments on their experience with the Rx GABAPENTIN (generic for Neurontin) that my doctor has prescribed for the "global" pain/discomfort/soreness I experience from these "old age" (I'm 78/female) Dx's.
The Medication Guide indicates that Gabapentin can cause some serious side effects (and I already have enough problems) that are very off-putting to beginning this medication.

I would appreciate knowing of other users experience and /or caveats on this Rx.

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@jeannegordon, I've been taking Gabapentin for many, many years for peripheral neuropathy in my legs and feet with no ill effects. It doesn't make me sleepy, nor does it cause suicidal thoughts. My Dr. has tried many meds to relieve my lower back pain, i.e., Lyrica has not effect. But it's been commented before that everyone reacts differently to the same medication. I wish you luck in your search for relief.

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lioness | @lioness | Apr 28, 2018
In reply to @jeannegordon4 "I'm re-visiting "Chat" on the topic of Pain from Fibromyalgia, Osteoarthritis, and DJD conditions. Specifically, I..." + (show)
@jeannegordon4

I'm re-visiting "Chat" on the topic of Pain from Fibromyalgia, Osteoarthritis, and DJD conditions. Specifically, I want
members comments on their experience with the Rx GABAPENTIN (generic for Neurontin) that my doctor has prescribed for the "global" pain/discomfort/soreness I experience from these "old age" (I'm 78/female) Dx's.
The Medication Guide indicates that Gabapentin can cause some serious side effects (and I already have enough problems) that are very off-putting to beginning this medication.

I would appreciate knowing of other users experience and /or caveats on this Rx.

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Hi Parus Gabapentin didn't help me with o e either but Dr.tried me on Primapexal this helps my legs ,as you say everyone is different.

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lioness | @lioness | Apr 28, 2018
In reply to @meknight "Meknight: chronic pain, fibermyalgia, sleep issues, arthritis, female, 50's. Pain keeps me up at night, and..." + (show)
@meknight

Meknight: chronic pain, fibermyalgia, sleep issues, arthritis, female, 50's. Pain keeps me up at night, and when I do sleep, I wake up stiff and in more pain. My fingers and toes are painfully swollen and turning. I see a pain specialist, but the meds barely make life bearable. Looking for another way to survive.

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I have same issues for along time till I found Meloxicam and Tramadol this helps me.Other then net you can try:I'ce in morning for hands @feet this takes swelling down,sock them in warm water .For restless legs Primipexal Scrip from Dr needed for pain this helps me Tramadol@Meloxicam people have TENS units, great . This is all a battle but don't give into it ,right and find out what helps you Let us know

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Mentor
Chris Trout, Volunteer Mentor | @artscaping | Apr 28, 2018
In reply to @cognac "Hello, I follow this group and thought I was already a member. My pain is lower..." + (show)
@cognac

Hello, I follow this group and thought I was already a member. My pain is lower back - S1,2,3 and L4,5 - and is inoperable due to ILD in m lungs. My PCP has agreed to let me try CBD oil. Any safety hints or comments in general would be GREATLY appreciated. @cognac

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@cognac Hi there, If you are talking about the tincture that you can either put under your tongue or in a cup of tea, then these come in a relative ratio of CBD to THC. I currently use 3:1. A dropper full for me is 75 mg. You can also get it 4:1. There may even be more options. After using tinctures in morning coffee for a couple of years, I have been using tinctures sublingually for a only a few months, but so far, I am pleased with them for both anxiety and pain control. I may move up to 4:1 and try less in the dropper. I take all of this experimentation very carefully just as I would conventional RX.

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