Anyone here with Medullary Thyroid Cancer?

<p>Does anyone have Medullary Thyroid Cancer? I was recently diagnosed!</p>

Hello @trosborn21 and welcome to Mayo Connect. On Connect there are several discussion groups on Medullary Thyroid Cancer. Here are a few:
https://connect.mayoclinic.org/discussion/medullary-thryoid-cancer-wegovy/
https://connect.mayoclinic.org/discussion/medullary-thyroid-carcinoma-and-the-use-of-trulicity/
https://connect.mayoclinic.org/discussion/anyone-here-with-medullary-thyroid-cancer/
As you read the posts in these discussions you will meet others with the same diagnosis and many who have had different treatments. Feel free to post comments or questions as you read the posts.

As this is a recent diagnosis for you, what type of treatment is being planned?

I have my first appointment with the head surgeon of endocrinology at UofM on Dec. 18th. Right now it looks as though they will be removing my thyroid and any lymph nodes they may need taken out.

Why did you have two surgeries after the first one?
I’ve was diagnosed with MRC two months ago… no surgery yet:(

MTC*

The head surgeon of endocrinology at a university hospital sounds like a great choice.

If you care to share more, @trosborn21, what type of symptoms were you having that led to this diagnosis? Did it take a long time to get diagnosed?

I think so too...fingers crossed!

I had surgery for medullary cancer. It was a modified, radical neck resection. Are you scheduled for surgery?

Not yet scheduled… I was recently diagnosed. I have my first appt with the head surgeon of endocrinology on 12-18-23… it feels like it’s taking forever.

How are you doing now?
Did you have radiation or chemotherapy?