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Hello, just recently diagnosed with a case of Bronchiectasis
Hello, I have always been a healthy gal and recently i came down with a case of walking pneumonia which was diagnosed by x ray which showed GG Opacities. I recovered quickly was on 2 antibiotics.. I had a follow up x ray a month later and the Opacities were still on x ray. I then had a CT scan which showed the Bronchiectasis. I am symptom free and feel normal My Dr said there is nothing to treat at the moment. I have my next Ct scan scheduled for February. I have Kaiser Permanente HMO insurance at the moment and i am considering making a change now that i have this diagnosis. If anyone has any information to pass along i would be very grateful. Thank you for this support group! I am learning much by reading the posts.
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Yes, I went to Mayo just to get a diagnosis and plan. Initial pulmonologist told me he didn’t think I had cancer, but we’d do tests in April to get diagnosis, 8 months after first “terrible CT” and second CT essentially the same, per doc. He went on emergency leave with no one covering patients and Penn appointments were months away.
I plan to continue with Dorgan.
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1 Reactionpacathy, have you had a pet scan?
No. Initial pulmonologist mentioned it after second CT hadn’t improved, but wanted to wait 3 months and get another CT first. He was on leave when test were due and I went to Mayo. Mayo doc repeated CT and didn’t think PET was necessary.
I have appt with Penn again in 3 weeks and will ask.
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1 ReactionHi,
Reading others stories is very helpful. I am pretty new to this and was diagnosed with MAC. It seems like a lot of people here have mentioned sinus issues. I have had a sinus infection for 3 weeks. I just finished an antibiotic ( doxycycline) and I still have drainage and a heavy head. Is MAC and sinus issues common? Thanks
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2 Reactions@jbud12 Sinus issues often go hand in hand with bronchiectasis but I am not sure about MAC. I've had my share of sinus issues but I do not have MAC. Have you tried applying mupirocin ointment (Rx only, similar to bactroban) in each nostril three times a day for 2 weeks? Your PCP ought to be able to prescribe it willingly.
A random thought - recently I thought I was having increased sinus pressure pain headaches. Really bad, around 7-8 pain wise. Turns out, I believe, that my very mild TMJ (jaw) pain flared up from gripping the nebulizer in my teeth. Now that use my lips rather than my teeth, the pain is slowly subsiding.
A last thought...do you rinse your nose 2x day? If you have chronic sinusitis consider asking your ENT or allergist for budesonide to add to your nasal rinse.
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4 ReactionsThank you for the suggestions! I will look into these! 🙂