Finding a Parkinsons caregivers support group

Posted by pookielightfoot @pookielightfoot, Nov 18, 2023

I want to find a caregivers support group for Parkinsons Disease. Can you help me?

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

Hello @pookielightfoot and welcome to the Parkinson's Support Group on Mayo Connect. I see that you are looking for a Caregiver's Support Group. Here on Connect we have many discussions for caregivers. Here is a link to all of those discussion groups:
https://connect.mayoclinic.org/group/caregivers/?pg=1#discussion-listview
And here is Caregiver's discussion group that is specifically for caregivers of Parkinson's patients.
https://connect.mayoclinic.org/discussion/parkinsons-with-diabetis-and-dialysis-end-of-life/
Please look through the discussions and see where your needs might be best met.

How long have you been a caregiver for a PD patient? What struggles are you facing at this point?

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I live in Michigan. I also belong to the MichiganParkinson Foundation which has support groups in many counties. At least 1 group is partly on line. I was asked to join. A few months ago I joined 2 different support groups. I go to both of them. THey are each different. My husband goes with me to the one support group he finds it better meets his needs. They have different speakers & topics of discussion from the Mayo clinic support group. I looked on line for local groups unsuccesfully. I asked my Parkinson movement specialist about support groups 2 years into the diagnosis & she told me about these groups. I wish I had joined sooner. I would check to see if this is available to you.

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I am looking for a support group f or caregivers in Maryland --in the Bethesda, Rockville area. Can you help me out? Thanks.
Carol

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