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Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Marield65. Marie | @marield65 | Mar 3, 2018
In reply to @ramakambhatla "I have chronic pain in the right thigh, said to be due to, neurogenic claudication, with..." + (show)
@ramakambhatla

I have chronic pain in the right thigh, said to be due to, neurogenic claudication, with MRI showing DDD and no
specific therapy like, ESI is attempted, due to antiplatelet agents in the treatment of known CAD-LAD stent. I am not
able to walk for more than a minute or two, sit down for pain relief, and try to walk again. I need wheelchair for longer ambulation. This has been so. for nearly 2 years, spine surgery did not offer any help.(from India)

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Hi Oregongirl I am @marield65 and 72 years old and had 1 fusion, 3 minor back surgery and several epidurals and when the spine shot worked I felt terrific but when they didn’t work I was horrible and on opioids until my next shot which you can only get 3 a year.
Now I need another fusion because they weaken other discs over the years and you may need more surgery.
I think you should try the shots first and always surgery is a last resort but you have to think of your pain. If it’s bad, you will know what to do and when.
But you give me hope because I was wondering at what age would they not want to do surgery on an older person. And I am holding off for now. I have to baby my back. Almost can’t do anything but I will be going back to physical therapy. So it’s a waiting game to see how long I can go before I have to have surgery.
Keep me up to date on how you are doing and I will also. Good luck
Marield65

REPLY
Mentor
Jim, Volunteer Mentor | @jimhd | Mar 3, 2018
In reply to @ramakambhatla "I have chronic pain in the right thigh, said to be due to, neurogenic claudication, with..." + (show)
@ramakambhatla

I have chronic pain in the right thigh, said to be due to, neurogenic claudication, with MRI showing DDD and no
specific therapy like, ESI is attempted, due to antiplatelet agents in the treatment of known CAD-LAD stent. I am not
able to walk for more than a minute or two, sit down for pain relief, and try to walk again. I need wheelchair for longer ambulation. This has been so. for nearly 2 years, spine surgery did not offer any help.(from India)

Jump to this post

@peach414144

Do try the injections. They work well for many people. My wife tried it twice, but it only lasted a couple of weeks. She has spinal stenosis, which means that the spinal canal is constricted and putting pressure on the sciatic nerve. She's been in a ton of pain. She has surgery scheduled for 3 weeks from now, to scrape the bone so the nerve has room. The surgeon was very encouraging. I looked up his credentials, so I know that he has a lot of experience with spine surgery. We have friends who are new people since having the surgery. Other friends have been really pleased with the injections. Any good surgeon would recommend trying injections first. I suppose you've had an MRI.

Sorry for your pain. I know how much my wife is suffering.

Jim

REPLY
Mentor
Jim, Volunteer Mentor | @jimhd | Mar 3, 2018
In reply to @parus "Certainly have little good to say about health care in IN. Likely the same no matter..." + (show)
@parus

Certainly have little good to say about health care in IN. Likely the same no matter where one lives. Even my x-rays show there is pain-take tylenol and aleve together...I do what I can to respect my liver, kidneys and other vital organs. Weather is warming soon so I will get out and walk on hard pavement which is hard on the body. Quit whining as it gets one nowhere. I became brave enough to ask for a small amount of hydrocodone (5 mg) and was told to get out and walk. Left feeling like the dregs of society for even asking.

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@parus

It is a violation of HIPPA for a clinic or group to share patient information with others in the group. The only way they can legally see it is if you give a specific person written permission to get access. My therapist can't get information from other doctors in his group unless I give him direct written permission. He kinda came unglued when I told him what was going on with you. My pcp can't access my mental health records without the same written permission from me. If that's happening with your doctors, you have solid ground for a huge HIPPA violation lawsuit. Totally unethical and illegal.

Jim

REPLY
Mentor
Jim, Volunteer Mentor | @jimhd | Mar 3, 2018
In reply to @parus "Certainly have little good to say about health care in IN. Likely the same no matter..." + (show)
@parus

Certainly have little good to say about health care in IN. Likely the same no matter where one lives. Even my x-rays show there is pain-take tylenol and aleve together...I do what I can to respect my liver, kidneys and other vital organs. Weather is warming soon so I will get out and walk on hard pavement which is hard on the body. Quit whining as it gets one nowhere. I became brave enough to ask for a small amount of hydrocodone (5 mg) and was told to get out and walk. Left feeling like the dregs of society for even asking.

Jump to this post

@oregongirl

It's one thing to put it in your chart - that's acceptable procedure - but no other doctor or therapist has legal access to the chart unless you give that doctor or therapist written permission to gain access to your records.

Jim

REPLY
Mentor
Jim, Volunteer Mentor | @jimhd | Mar 3, 2018
In reply to @lilgrizz "Hello Kelsey, thank you for this group. I don't know where to start describing my pain...." + (show)
@lilgrizz

Hello Kelsey, thank you for this group. I don't know where to start describing my pain. My chronic pain runs about an 8 without meds. Don't know what I would do if I didn't have them to help me function. Yes I'm just a lil upset and Trump and the DEA about taking away our meds. I have degenerative scoliosis which I just have had my third surgery for. In April of last year I had two rods screwed into my spine starting at about the top of my shoulder blades down to my tailbone. A month later they went in from the front and fused the bottom part of my spine. Just a month ago I fell in the middle of the night and cracked both rods and had to have surgery again. I have dealt with the pain of scoliosis all my life. I started wearing a brace in the second grade until the 6th grade 24/7 except getting out each day long enough to take a bath. In 2012 I learned I also had multiple sclerosis, lupus and in 1999 I was diagnosed as Bipolar. But between the pain from my back, the lupus, and especially the MS I suffer tremendously. Don't know how I will survive trying to deal with the pain completely by will. I must say I'm very scared.

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@lilgrizz

So far, you can still get pain medication. But who knows about next week.

Jim

REPLY
Marield65. Marie | @marield65 | Mar 3, 2018
In reply to @wsh66 "One thing I forgot to mention about the pain pump. Drugs delivered into the spine by..." + (show)
@wsh66

One thing I forgot to mention about the pain pump. Drugs delivered into the spine by the pain pump, are 300 times more effective than drugs that you eat. That's what my doc says I'm not sure it's true but I would certainly buy into the idea that it's a hundred to 200 times more effective maybe three hundred times when you first start. Something to think about.

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If you had a bad reaction to a drug, will you get the same reaction with the pump with the same meds in it?

REPLY
momij | @momij | Mar 3, 2018
In reply to @thomasesmom "Hi, Debra here. I'm long overdue for a right hip replacement. Fear has kept me away,then..." + (show)
@thomasesmom

Hi, Debra here. I'm long overdue for a right hip replacement. Fear has kept me away,then in 2016 the basement stairs broke my right ankle.an operation was performed & I now have 2 metal plates which are SO TIGHT it's all unbearable,hip/ankle combo.i was told operation was necessary,but I doubt it.i regret it
The operation,that is. I must mention that I ride a Bicycle daily,weather permitting,it is MUCH EASIER THAN WALKING,which at times is Excruciating & impossible. I also have wide,triple E feet which are great for Balance, but add one constantly recurring
Corn between my right baby toe and sometimes it's hard to determine which pain is Greater,Hip,Ankle or
Toe??? I take naproxen,no prescription medication and when I hear about prevalent opiod issues,i am glad that isn't me,but there are times when i wish I had something just so I am able to walk.
Lastly,my past orthopedic surgeon ( top 10 in Milwaukee) he referred to medical school of Wisconsin for fibromyalgia. I never followed up,too much to digest

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Hi Debra - I attended a 3 day fibromyalgia program at Mayo in Rochester. I was skeptical but it was actually very helpful - I received a lot of helpful information and tools to deal with the pain and other symptoms. My husband also attended and that was helpful in that he then had a better understanding of what I was going through. I hope you get some relief.

REPLY
lauren123 | @lauren123 | Mar 3, 2018
In reply to @lilgrizz "Hello Kelsey, thank you for this group. I don't know where to start describing my pain...." + (show)
@lilgrizz

Hello Kelsey, thank you for this group. I don't know where to start describing my pain. My chronic pain runs about an 8 without meds. Don't know what I would do if I didn't have them to help me function. Yes I'm just a lil upset and Trump and the DEA about taking away our meds. I have degenerative scoliosis which I just have had my third surgery for. In April of last year I had two rods screwed into my spine starting at about the top of my shoulder blades down to my tailbone. A month later they went in from the front and fused the bottom part of my spine. Just a month ago I fell in the middle of the night and cracked both rods and had to have surgery again. I have dealt with the pain of scoliosis all my life. I started wearing a brace in the second grade until the 6th grade 24/7 except getting out each day long enough to take a bath. In 2012 I learned I also had multiple sclerosis, lupus and in 1999 I was diagnosed as Bipolar. But between the pain from my back, the lupus, and especially the MS I suffer tremendously. Don't know how I will survive trying to deal with the pain completely by will. I must say I'm very scared.

Jump to this post

I agree 100%. Pain Management doctors have a totally different outlook than a primary care doctor.

REPLY
lioness | @lioness | Mar 3, 2018
In reply to @ramakambhatla "I have chronic pain in the right thigh, said to be due to, neurogenic claudication, with..." + (show)
@ramakambhatla

I have chronic pain in the right thigh, said to be due to, neurogenic claudication, with MRI showing DDD and no
specific therapy like, ESI is attempted, due to antiplatelet agents in the treatment of known CAD-LAD stent. I am not
able to walk for more than a minute or two, sit down for pain relief, and try to walk again. I need wheelchair for longer ambulation. This has been so. for nearly 2 years, spine surgery did not offer any help.(from India)

Jump to this post

Hi I'm 75 and need the pain injection in back for me 3a hear does it .I have an extra vertabre in my power back I found the s chiropractor is the only one that can help me for this so I try to go monthly for this .Linda

REPLY
lioness | @lioness | Mar 3, 2018
In reply to @wsh66 "One thing I forgot to mention about the pain pump. Drugs delivered into the spine by..." + (show)
@wsh66

One thing I forgot to mention about the pain pump. Drugs delivered into the spine by the pain pump, are 300 times more effective than drugs that you eat. That's what my doc says I'm not sure it's true but I would certainly buy into the idea that it's a hundred to 200 times more effective maybe three hundred times when you first start. Something to think about.

Jump to this post

It,'ll be the same med right I would think you would the pump would,by make any difference

REPLY
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