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Please is there anyone diagnosed with chronic granulomatous disease?

Blood Cancers & Disorders | Last Active: Nov 25, 2023 | Replies (11)
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@sherocko

I was recently diagnosed. I am afraid I don't know much. I have pain that moves from one place to another after a period of time. Don't know if that is related. I am 61 and it took approx. 2 years to reach the diagnosis. Started with odd spots in my lungs, liver and spleen. I am here to learn more. I wish I could help.

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Replies to "I was recently diagnosed. I am afraid I don't know much. I have pain that moves..."
Colleen Young, Connect Director | @colleenyoung | Nov 22, 2023

Welcome, @sherocko. You may also be interested in this related discussion:
- Chronic granulomatous disease (CGD): How to build the immune system?
https://connect.mayoclinic.org/discussion/granulomatous-disease/

It sounds like you had a long road to getting a diagnosis. What suggestions or treatment has your medical team offered for infection management? What steps do you take to prevent bacterial and fungal infections before they start?

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