1. < Fibromyalgia

Fibromyalgia pain: Let's connect

Posted by clownscrytoo @clownscrytoo, Oct 22, 2016

Is there anyone here that suffers from fibro? I had the 'tender spot test' several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I'm alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I've tried them all, I think), or anything, besides hobbies and such? I've tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn't help, but I'm hoping one of our members might have some knowledge that could help. I'd really appreciate it.
hugz,
Clownscrytoo

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

ripley | @ripley | Nov 15, 2023
In reply to @deedeedavidson "Hi, I am so sorry for your pain. I do use CBD! Not during the day,..." + (show)
@deedeedavidson

Hi, I am so sorry for your pain. I do use CBD! Not during the day, but I take a tincture under the tongue specifically for sleep- fibromyalgia makes sleep difficult. I went to a dispensary (legal here in California, no rx required) and they advised me on a sleep formula with a small amount of THC. Really helps! Also- swimming! It makes me feel so much better- the only time I don’t feel pain! Of course, it’s ‘winter’ here in So. Calif. Now, so can’t really do that, water’s too cold. I miss it. We have a community pool not too far that they keep heated, but it’s not quite the same as walking out your back door every morning.
I wish you the best- I understand how it runs and ruins your life. And most people don’t really get it. But keep your head up- there are lots of us who do get it.

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What dosage of CBD and THC do you take by tincture?

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deedeedavidson | @deedeedavidson | Nov 15, 2023

Yes, tincture under the tongue. Contains per 7mg serving 2mg CBD, 4mg THC, 1mg CBN.

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tresemae | @tresemae | Nov 15, 2023
In reply to @ripley "What nerves had ablation since fibro pain is usually widespread throughout the entire body? How long..." + (show)
@ripley

What nerves had ablation since fibro pain is usually widespread throughout the entire body? How long does the ablation last before it needs to be redone?

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Up to 2 years until the nerve grows back. Could last longer. Hopefully. But It is worth it.

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1 reply
lijar | @lijar | Nov 16, 2023
In reply to @tresemae "I bumped off of the harsh pain meds. But yes Gabapentin helps and Lyrica, that's after..." + (show)
@tresemae

I bumped off of the harsh pain meds. But yes Gabapentin helps and Lyrica, that's after I got my nerve ablations and injections done. I feel so good not relying on opioids. I have 1 more nerve ablation to do and I tell you it has changed my life. No Pain. I used to be bed ridden. Not no more. Hope your feeling good or better.

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What type of doctor do you see who does the nerve ablation?

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1 reply
tresemae | @tresemae | Nov 16, 2023
In reply to @lijar "What type of doctor do you see who does the nerve ablation?" + (show)
@lijar

What type of doctor do you see who does the nerve ablation?

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Pain medicine Doctor If you look it up. Just see what they do you will find they do Injections not opioids but some do both.

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2 replies
lijar | @lijar | Nov 16, 2023
In reply to @tresemae "Pain medicine Doctor If you look it up. Just see what they do you will find..." + (show)
@tresemae

Pain medicine Doctor If you look it up. Just see what they do you will find they do Injections not opioids but some do both.

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Thanks

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sandiw77 | @sandiw77 | Nov 17, 2023
In reply to @tresemae "Pain medicine Doctor If you look it up. Just see what they do you will find..." + (show)
@tresemae

Pain medicine Doctor If you look it up. Just see what they do you will find they do Injections not opioids but some do both.

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My orthopedic doctor does pain management, ablation and a variety of surgical procedures. I see him for degernative disc disease and see a rheumatologist for autoimmune issues.

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ripley | @ripley | Nov 17, 2023
In reply to @tresemae "Up to 2 years until the nerve grows back. Could last longer. Hopefully. But It is..." + (show)
@tresemae

Up to 2 years until the nerve grows back. Could last longer. Hopefully. But It is worth it.

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Was the ablation for fibromyalgia pain? If so, what nerves did you have ablated? Was there a specific area where you were having pain?

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1 reply
tresemae | @tresemae | Nov 17, 2023
In reply to @ripley "Was the ablation for fibromyalgia pain? If so, what nerves did you have ablated? Was there..." + (show)
@ripley

Was the ablation for fibromyalgia pain? If so, what nerves did you have ablated? Was there a specific area where you were having pain?

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Yes mostly in my neck 2 levels. But before that I hurt down my arms and legs.

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1kay2 | @1kay2 | Nov 20, 2023

I found rubA535 helps. The pain is incessant however.

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