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CLL diagnosis now having soft tissue pain

Blood Cancers & Disorders | Last Active: Nov 22, 2023 | Replies (8)
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@kellim

I have had CLL for a year and I have joint pain in my hands, elbows, knees and feet. My oncologist said it’s part of CLL, the gift that keeps on giving.

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Replies to "I have had CLL for a year and I have joint pain in my hands, elbows,..."
benkeane | @benkeane | Nov 18, 2023

Hi,
Thank you for your response. My Haematology department have never seen these symptoms before! The soft tissue pain is bizarre, its constant in certain areas then moves...
The UK has a much smaller pool of case studies of which the sharing of 'data' is not prolific which doesn't help. I'm thinking of engaging with the Mayo clinic to see if they can help provide some answers. Thank you again for your response.

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