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Has anyone heard of low dose Naltrexone as a potential treatment?
Has anyone tried low dose Naltrexone or CQ10?
The Long Covid Clinic at Scripps has not been very helpful, with the exception of the physical therapists. I am desperately trying to crawl out of this syndrome . I start feeling better then increase my activity and that is followed by fatigue. I will start the low histamine diet and see how that goes.
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I received my booster in November '21 and within a couple of weeks I began to experience symptoms. My Wife and I didn't test positive for COVID until July '22 and that was our first and only time we had tested positive for COVID. So, booster first, began experiencing symptoms and then much later in July tested positive for COVID and we experienced light cold symptoms. Mayo clinic stated they have had many people report the same - Long COVID caused by the vaccine.
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1 ReactionAt my urging, my husband tried a course of using LDN. I used a compounding pharmacy for a liquid Rx of 1 mg/ml so I could adjust dosage to 0.5 ml steps without pill splitting. I thought I saw minor improvement in brain fog at 2mg/ day. As I tried 2.5 mg/day for a week and started 3 mg, my husband started experiencing vivid dreams and hallucinations. I had split the dosages of 2.5 to 2 at lunch and 0.5 mg at dinner. As he started the side effects, I moved the total dose to all at lunch. The side effects so disturbed him that he chose to totally stop all of the LDN. [ I tried reducing the dose back to 2 mg at lunch which previously did not provoke dreams, but they did not totally cease even at that dose and timing]. Can anyone suggest any protocol where good effects might be obtained below 2 mg but without side effects?
Yes. I am on it and it does help me sleep better and have less pain. But I still need pain medications, and I hoped that I would no longer need it. I can sleep longer at night, though and don't wake up as often.
I would ask your provider. At 3 mg a night, sometimes I do get more vivid dreams, but not always. Maybe I also need to bring it up with my provider
Has anyone had luck with having insurance cover LDN. It is quite expensive. I am thinking of reaching out to the manufacturer. I see a big difference in my exhaustion level when I take this. They gradually increased the dosage for me. I have vivid dreams but can live with that.
I had to fight for months to get insurance (Anthem) to cover compounded LDN. But they were fine covering the liquid form without any hassles, so I have now switched to that.
Thank you so much. I have Anthem. I am going to try getting this in liquid form.
I reached out to my contact at the Long Covid Clinic and she gave me this link for purchasing LDN, https://valorcompounding.com/low-dose-naltrexone/. They have a flat rate of $45 per 30 pills. Wanted everyone to have this in case you are also having issues with the cost of this medicine. This is better than the $70 per month I was being charged.
Thanks for the information. I have also been paying 70.00!
I have been using LDN for about 5 months and have seen some improvement without very many side effects. Call different compounding pharmacies in your state. In Oregon I found one in Portland that will mail it to me . It costs $70 for 90 at 4.5 mg.