Chronic Pain members - Welcome, please introduce yourself

I've been having a number of tests done lately for more than one issue. The genetic analysis reported that Huntington's Disease is very unlikely. I haven't discussed it with a doctor yet. My anxiety level dropped several notches when I saw the report. I like that most of my test results get posted online, so I can see them much sooner than by the USPS. I don't know why I was anemic, but the doctor had me start taking iron, and the hemoglobin levels went up to normal. I'm glad for that, but I'd still like to know why it dropped in the first place.

The speech therapist has given me some tongue exercises - I never thought I'd have to exercise my tongue - and I'll see the ENT doctor for a follow-up to see if they've helped. If they don't, I'll be changing to soft foods some day, and the next step after that is a feeding tube. I hope that's many years in the future.

I've had buzzing in my head, accompanied by dizziness, for a number of years, lasting for a very short time, and happening totally at random, out of the blue. Last Tuesday, August 15, it started at around 5 pm, and went continuously for a week, then tapered off to only most of the time. I have an appointment with a doctor next week to begin the search for a cause. For the first time, nausea has been part of the mix. Yuck!

Peripheral neuropathy - since the spinal cord stimulator implant, the pain has gone down to a 1 or 2, with spikes every once in awhile up to 6. Overall, it's made a huge improvement in the pain. I tapered off Cymbalta, which the pain specialist thought might help the pain. I'm not sure that it did anything at all. I've also tapered down on MScontin from 30mg twice a day to 15mg twice a day. I think I'll talk with the pain specialist about that because I feel like I may need just a little more, like 15 and 30. I've had the rep from the stimulator company adjust the settings twice, and he's available to do that anytime I call. My therapist recommended that I not taper any more right now because of the level of my depression. He's concerned that if the pain returns, it would probably have an effect on the depression, which I don't need right now. We've been working on some tough issues that have affected my life since I was a teenager, and I find that it's a really long time from one Thursday to the next, when I meet with him.

The ENT doctor recommended that my neurologist get involved in the swallowing issue, and I have an appointment with him next week. It takes me a long time to eat a meal, and sometimes I get tired of eating. At lunch today, I could only eat one of the two small brownies on the plate. I Never turn down dessert, especially if it's chocolate. I just wanted to be done with eating. I take a small bite of food, chew on it awhile, then prepare to swallow it, and then after the food finally gets into the esophagus, I drink a sip of liquid to help it keep going. After it feels like it's cleared my esophagus, I take the next bite, and start the process again. The speech therapist is concerned that I won't eat enough to maintain my weight, which is in the normal range, but close to underweight. It takes me back to my college days, when I tried everything to gain weight. I overcame that problem over the years, and in 2015, I went on a diet, which meant cutting back on desserts and stopping the snacks, and lost 60 lbs in 6 months. That was faster than I had anticipated. Now, I work to stay steady. If I got very sick, and lost much weight, it could become a problem.

Anyway, that's what I've been up to the past few months.

Jim

Peach, the real downer here is that the closest real hospital with pain management, etc, is almost a hundred miles away. And we have a lot of speeders here, not real tourists, but folks who think they can drive 80 mph along the coast on roads built for 35 mph. Then they pile up on a 15 mph curve, at one of our most beautiful spots, and complain about the bad roads and slow drivers. If they want to drive 80, they should go over to I-5 which runs from Vancouver BC to San Diego.

I've been having a number of tests done lately for more than one issue. The genetic analysis reported that Huntington's Disease is very unlikely. I haven't discussed it with a doctor yet. My anxiety level dropped several notches when I saw the report. I like that most of my test results get posted online, so I can see them much sooner than by the USPS. I don't know why I was anemic, but the doctor had me start taking iron, and the hemoglobin levels went up to normal. I'm glad for that, but I'd still like to know why it dropped in the first place.

The speech therapist has given me some tongue exercises - I never thought I'd have to exercise my tongue - and I'll see the ENT doctor for a follow-up to see if they've helped. If they don't, I'll be changing to soft foods some day, and the next step after that is a feeding tube. I hope that's many years in the future.

I've had buzzing in my head, accompanied by dizziness, for a number of years, lasting for a very short time, and happening totally at random, out of the blue. Last Tuesday, August 15, it started at around 5 pm, and went continuously for a week, then tapered off to only most of the time. I have an appointment with a doctor next week to begin the search for a cause. For the first time, nausea has been part of the mix. Yuck!

Peripheral neuropathy - since the spinal cord stimulator implant, the pain has gone down to a 1 or 2, with spikes every once in awhile up to 6. Overall, it's made a huge improvement in the pain. I tapered off Cymbalta, which the pain specialist thought might help the pain. I'm not sure that it did anything at all. I've also tapered down on MScontin from 30mg twice a day to 15mg twice a day. I think I'll talk with the pain specialist about that because I feel like I may need just a little more, like 15 and 30. I've had the rep from the stimulator company adjust the settings twice, and he's available to do that anytime I call. My therapist recommended that I not taper any more right now because of the level of my depression. He's concerned that if the pain returns, it would probably have an effect on the depression, which I don't need right now. We've been working on some tough issues that have affected my life since I was a teenager, and I find that it's a really long time from one Thursday to the next, when I meet with him.

The ENT doctor recommended that my neurologist get involved in the swallowing issue, and I have an appointment with him next week. It takes me a long time to eat a meal, and sometimes I get tired of eating. At lunch today, I could only eat one of the two small brownies on the plate. I Never turn down dessert, especially if it's chocolate. I just wanted to be done with eating. I take a small bite of food, chew on it awhile, then prepare to swallow it, and then after the food finally gets into the esophagus, I drink a sip of liquid to help it keep going. After it feels like it's cleared my esophagus, I take the next bite, and start the process again. The speech therapist is concerned that I won't eat enough to maintain my weight, which is in the normal range, but close to underweight. It takes me back to my college days, when I tried everything to gain weight. I overcame that problem over the years, and in 2015, I went on a diet, which meant cutting back on desserts and stopping the snacks, and lost 60 lbs in 6 months. That was faster than I had anticipated. Now, I work to stay steady. If I got very sick, and lost much weight, it could become a problem.

Anyway, that's what I've been up to the past few months.

Jim

I've been having a number of tests done lately for more than one issue. The genetic analysis reported that Huntington's Disease is very unlikely. I haven't discussed it with a doctor yet. My anxiety level dropped several notches when I saw the report. I like that most of my test results get posted online, so I can see them much sooner than by the USPS. I don't know why I was anemic, but the doctor had me start taking iron, and the hemoglobin levels went up to normal. I'm glad for that, but I'd still like to know why it dropped in the first place.

The speech therapist has given me some tongue exercises - I never thought I'd have to exercise my tongue - and I'll see the ENT doctor for a follow-up to see if they've helped. If they don't, I'll be changing to soft foods some day, and the next step after that is a feeding tube. I hope that's many years in the future.

I've had buzzing in my head, accompanied by dizziness, for a number of years, lasting for a very short time, and happening totally at random, out of the blue. Last Tuesday, August 15, it started at around 5 pm, and went continuously for a week, then tapered off to only most of the time. I have an appointment with a doctor next week to begin the search for a cause. For the first time, nausea has been part of the mix. Yuck!

Peripheral neuropathy - since the spinal cord stimulator implant, the pain has gone down to a 1 or 2, with spikes every once in awhile up to 6. Overall, it's made a huge improvement in the pain. I tapered off Cymbalta, which the pain specialist thought might help the pain. I'm not sure that it did anything at all. I've also tapered down on MScontin from 30mg twice a day to 15mg twice a day. I think I'll talk with the pain specialist about that because I feel like I may need just a little more, like 15 and 30. I've had the rep from the stimulator company adjust the settings twice, and he's available to do that anytime I call. My therapist recommended that I not taper any more right now because of the level of my depression. He's concerned that if the pain returns, it would probably have an effect on the depression, which I don't need right now. We've been working on some tough issues that have affected my life since I was a teenager, and I find that it's a really long time from one Thursday to the next, when I meet with him.

The ENT doctor recommended that my neurologist get involved in the swallowing issue, and I have an appointment with him next week. It takes me a long time to eat a meal, and sometimes I get tired of eating. At lunch today, I could only eat one of the two small brownies on the plate. I Never turn down dessert, especially if it's chocolate. I just wanted to be done with eating. I take a small bite of food, chew on it awhile, then prepare to swallow it, and then after the food finally gets into the esophagus, I drink a sip of liquid to help it keep going. After it feels like it's cleared my esophagus, I take the next bite, and start the process again. The speech therapist is concerned that I won't eat enough to maintain my weight, which is in the normal range, but close to underweight. It takes me back to my college days, when I tried everything to gain weight. I overcame that problem over the years, and in 2015, I went on a diet, which meant cutting back on desserts and stopping the snacks, and lost 60 lbs in 6 months. That was faster than I had anticipated. Now, I work to stay steady. If I got very sick, and lost much weight, it could become a problem.

Anyway, that's what I've been up to the past few months.

Jim

I've been having a number of tests done lately for more than one issue. The genetic analysis reported that Huntington's Disease is very unlikely. I haven't discussed it with a doctor yet. My anxiety level dropped several notches when I saw the report. I like that most of my test results get posted online, so I can see them much sooner than by the USPS. I don't know why I was anemic, but the doctor had me start taking iron, and the hemoglobin levels went up to normal. I'm glad for that, but I'd still like to know why it dropped in the first place.

The speech therapist has given me some tongue exercises - I never thought I'd have to exercise my tongue - and I'll see the ENT doctor for a follow-up to see if they've helped. If they don't, I'll be changing to soft foods some day, and the next step after that is a feeding tube. I hope that's many years in the future.

I've had buzzing in my head, accompanied by dizziness, for a number of years, lasting for a very short time, and happening totally at random, out of the blue. Last Tuesday, August 15, it started at around 5 pm, and went continuously for a week, then tapered off to only most of the time. I have an appointment with a doctor next week to begin the search for a cause. For the first time, nausea has been part of the mix. Yuck!

Peripheral neuropathy - since the spinal cord stimulator implant, the pain has gone down to a 1 or 2, with spikes every once in awhile up to 6. Overall, it's made a huge improvement in the pain. I tapered off Cymbalta, which the pain specialist thought might help the pain. I'm not sure that it did anything at all. I've also tapered down on MScontin from 30mg twice a day to 15mg twice a day. I think I'll talk with the pain specialist about that because I feel like I may need just a little more, like 15 and 30. I've had the rep from the stimulator company adjust the settings twice, and he's available to do that anytime I call. My therapist recommended that I not taper any more right now because of the level of my depression. He's concerned that if the pain returns, it would probably have an effect on the depression, which I don't need right now. We've been working on some tough issues that have affected my life since I was a teenager, and I find that it's a really long time from one Thursday to the next, when I meet with him.

The ENT doctor recommended that my neurologist get involved in the swallowing issue, and I have an appointment with him next week. It takes me a long time to eat a meal, and sometimes I get tired of eating. At lunch today, I could only eat one of the two small brownies on the plate. I Never turn down dessert, especially if it's chocolate. I just wanted to be done with eating. I take a small bite of food, chew on it awhile, then prepare to swallow it, and then after the food finally gets into the esophagus, I drink a sip of liquid to help it keep going. After it feels like it's cleared my esophagus, I take the next bite, and start the process again. The speech therapist is concerned that I won't eat enough to maintain my weight, which is in the normal range, but close to underweight. It takes me back to my college days, when I tried everything to gain weight. I overcame that problem over the years, and in 2015, I went on a diet, which meant cutting back on desserts and stopping the snacks, and lost 60 lbs in 6 months. That was faster than I had anticipated. Now, I work to stay steady. If I got very sick, and lost much weight, it could become a problem.

Anyway, that's what I've been up to the past few months.

Jim

I am new to the chronic pain. I began having hip pain two years ago and found out I have scoliosis. After physical therapy I improved for over a year. It did not go away but stretching occasionally helped and I functioned well including playing golf. Now my pain is in my lower back and mostly in my legs and left trochanter. I am currently back in PT and hoping that helps again, but I am not as hopeful this time. I am a nurse and follow several women who have similar problems and they are going through injections and misery. I am hoping I can find some other information not only for myself but for these ladies.

Hi all,
I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

I've been having a number of tests done lately for more than one issue. The genetic analysis reported that Huntington's Disease is very unlikely. I haven't discussed it with a doctor yet. My anxiety level dropped several notches when I saw the report. I like that most of my test results get posted online, so I can see them much sooner than by the USPS. I don't know why I was anemic, but the doctor had me start taking iron, and the hemoglobin levels went up to normal. I'm glad for that, but I'd still like to know why it dropped in the first place.

The speech therapist has given me some tongue exercises - I never thought I'd have to exercise my tongue - and I'll see the ENT doctor for a follow-up to see if they've helped. If they don't, I'll be changing to soft foods some day, and the next step after that is a feeding tube. I hope that's many years in the future.

I've had buzzing in my head, accompanied by dizziness, for a number of years, lasting for a very short time, and happening totally at random, out of the blue. Last Tuesday, August 15, it started at around 5 pm, and went continuously for a week, then tapered off to only most of the time. I have an appointment with a doctor next week to begin the search for a cause. For the first time, nausea has been part of the mix. Yuck!

Peripheral neuropathy - since the spinal cord stimulator implant, the pain has gone down to a 1 or 2, with spikes every once in awhile up to 6. Overall, it's made a huge improvement in the pain. I tapered off Cymbalta, which the pain specialist thought might help the pain. I'm not sure that it did anything at all. I've also tapered down on MScontin from 30mg twice a day to 15mg twice a day. I think I'll talk with the pain specialist about that because I feel like I may need just a little more, like 15 and 30. I've had the rep from the stimulator company adjust the settings twice, and he's available to do that anytime I call. My therapist recommended that I not taper any more right now because of the level of my depression. He's concerned that if the pain returns, it would probably have an effect on the depression, which I don't need right now. We've been working on some tough issues that have affected my life since I was a teenager, and I find that it's a really long time from one Thursday to the next, when I meet with him.

The ENT doctor recommended that my neurologist get involved in the swallowing issue, and I have an appointment with him next week. It takes me a long time to eat a meal, and sometimes I get tired of eating. At lunch today, I could only eat one of the two small brownies on the plate. I Never turn down dessert, especially if it's chocolate. I just wanted to be done with eating. I take a small bite of food, chew on it awhile, then prepare to swallow it, and then after the food finally gets into the esophagus, I drink a sip of liquid to help it keep going. After it feels like it's cleared my esophagus, I take the next bite, and start the process again. The speech therapist is concerned that I won't eat enough to maintain my weight, which is in the normal range, but close to underweight. It takes me back to my college days, when I tried everything to gain weight. I overcame that problem over the years, and in 2015, I went on a diet, which meant cutting back on desserts and stopping the snacks, and lost 60 lbs in 6 months. That was faster than I had anticipated. Now, I work to stay steady. If I got very sick, and lost much weight, it could become a problem.

Anyway, that's what I've been up to the past few months.

Jim

Peach, the real downer here is that the closest real hospital with pain management, etc, is almost a hundred miles away. And we have a lot of speeders here, not real tourists, but folks who think they can drive 80 mph along the coast on roads built for 35 mph. Then they pile up on a 15 mph curve, at one of our most beautiful spots, and complain about the bad roads and slow drivers. If they want to drive 80, they should go over to I-5 which runs from Vancouver BC to San Diego.

Peach, the real downer here is that the closest real hospital with pain management, etc, is almost a hundred miles away. And we have a lot of speeders here, not real tourists, but folks who think they can drive 80 mph along the coast on roads built for 35 mph. Then they pile up on a 15 mph curve, at one of our most beautiful spots, and complain about the bad roads and slow drivers. If they want to drive 80, they should go over to I-5 which runs from Vancouver BC to San Diego.