Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@ramakambhatla

2jalapenos: If possible, being an RN should help to contact a pain doctor, as it seems like a problematic pain.
Hoping and wishing well for relief, soon.

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Thanks.
I have had 3 pain doctors. The one I have presently is great. He listens and is very pro active. But he has not been successful with my insurance.
I decided today, i will try to find a "patient's advocate" within the health insurance.

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@2jalapenos — Does the state you live in have a patients advocate program? I did find a patient advocate organization website that may be helpful:

http://www.patientadvocate.org/resources.php?p=180

John

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@wsh66

What is anesthesia dolorosa? Please take the time to use whole sentences. We're interested but it's hard to respond in a helpful way to that which we can't comprehend. I don't like typing on the computer, it hurts. I use the voice to text function on my Samsung III which is an older phone. I always need to proof read but it's still better than the keyboard.

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@thomasesmom

The problem I have, both on my small Android phone and my tablet, is that I have a hard time touching the precise spot for each letter, and sometimes I lose what I've written completely.

My wife has the same phone and swipes from one letter to the next, but I've never been able to master that. Have you tried that?

Jim

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@wsh66

What is anesthesia dolorosa? Please take the time to use whole sentences. We're interested but it's hard to respond in a helpful way to that which we can't comprehend. I don't like typing on the computer, it hurts. I use the voice to text function on my Samsung III which is an older phone. I always need to proof read but it's still better than the keyboard.

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My phone that takes dictation cost $100.00 and it came with a $25.00 data program with no contract other than month to month $25.00/month.

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@ramakambhatla

2jalapenos: If possible, being an RN should help to contact a pain doctor, as it seems like a problematic pain.
Hoping and wishing well for relief, soon.

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@2jalapenos

Maybe AARP would have a helpful resource?

Jim

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@wsh66

What is anesthesia dolorosa? Please take the time to use whole sentences. We're interested but it's hard to respond in a helpful way to that which we can't comprehend. I don't like typing on the computer, it hurts. I use the voice to text function on my Samsung III which is an older phone. I always need to proof read but it's still better than the keyboard.

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It's not necessarily the wrong group. I just understand what you were talking about. It sounds just awful. I take Amitriptyline and Lyrica, both to quiet over active nerves. Maybe those would help you.

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@wsh66

What is anesthesia dolorosa? Please take the time to use whole sentences. We're interested but it's hard to respond in a helpful way to that which we can't comprehend. I don't like typing on the computer, it hurts. I use the voice to text function on my Samsung III which is an older phone. I always need to proof read but it's still better than the keyboard.

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That swipe thing doesn't work for me. I have numbness in my finger tips. Typing is really tough,(he said typing and correcting the same word three times). I do rely on predictive text on my Samsung III. You just have to watch what your saying. I have a Lenovo computer that I can operate with only my voice. I believe Windows 7 and above have this feature.

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Hello my name is Lorenzo and I deal with it every day and sensitive to pills so go figure huh but hope you feel better

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@lorenzolarry

Hello my name is Lorenzo and I deal with it every day and sensitive to pills so go figure huh but hope you feel better

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Hello @lorenzolarry, welcome to Connect and thank you for introducing yourself to the Chronic Pain group. If you don't mind sharing, what leads to your chronic pain? Mine is a rare genetic bleeding disorder that has led to end-stage arthritis, joint damage, and joint replacements.

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@wsh66

What is anesthesia dolorosa? Please take the time to use whole sentences. We're interested but it's hard to respond in a helpful way to that which we can't comprehend. I don't like typing on the computer, it hurts. I use the voice to text function on my Samsung III which is an older phone. I always need to proof read but it's still better than the keyboard.

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Hello @2jalapenos, here is a discussion on trigeminal nueralgia, https://connect.mayoclinic.org/discussion/trigeminal-neuralgia-2273cc/.

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@ramakambhatla

wsh66: Hi.. What is the cancer? Some chemotherapy medications used for one cancer may cause another cancer.
I am interested to know, how this rare cancer is diagnosed? Hope things get better, tho' the history looks perplexing.
Try to reply.

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Hello @wish66, I am not sure if you have seen the following discussion or not, but you may be interested in the discussion about sarcoma's, https://connect.mayoclinic.org/discussion/diagnosed-with-sarcoma-lets-share/.

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@wsh66

What is anesthesia dolorosa? Please take the time to use whole sentences. We're interested but it's hard to respond in a helpful way to that which we can't comprehend. I don't like typing on the computer, it hurts. I use the voice to text function on my Samsung III which is an older phone. I always need to proof read but it's still better than the keyboard.

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Thanks.
Appreciate the help!
I'll look into it tonight.

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Hello,

This is my first post. I am scheduled to go to Mayo in Rochester,MN beginning of April.

I am a 40 yo female having a 17yr history of migraines, 6 yr of Sarcoid (currently in remission), 4yr of Tietze Syndrome (chronic costochondritis), 2 yr of Fibromyalgia. Fibromyalgia started after emergency surgery and needing blood transfusions. I usually will first have pain and inflammation in my rib cage~Tietze Syndrome/costochondritis when a flare starts, then it usually leads to migraines, fatigue, and more classic fibro flairs.

This past January I had a flair and it has progressed to being daily migraines ever since (6+weeks). Early on the body pains and headaches/migraines were easy to treat then it got progressively harder to control until I was having daily 8/10 through 10/10 pain scale migraines. I was hospitalized for 5 days with the goal of getting a 24hr break of the migraines, I was discharged without meeting the goal. Since then I have been on multiple drugs and i have had one singular day migraine free. I worked last week from home, and had the ability to take a break for a few hours a day when I felt a headache coming on. Now that im back in the office, they are occurring more frequently. I feel like my neurologist, who is the only headache specialist in the area, has run out of ideas on how to break this recurring cycle of migraines. I already do Botox every three months, take 2 preventative medications, and have added the normal supplements to my daily vitamin/pill routine.

I am hoping my visit to Mayo will 1) identify a new plan to control my migraines and 2) create a plan to control my more frequent Fibro flares. My life has been severely impacted by having these pain and fatigue conditions. I am (was?) a fairly active person. I am a whitewater kayaker and ww kayak instructor. I love photography, hiking, camping, and generally being outside, but more often than now I don't have the spoons (aka energy) to do much.

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Hello, I have had chronic pain for 17 years now.. RSD/CRPS. I have had several back surgeries, SCS implants, narcotics, etc. I have been diagnosed with Myasthenia Gravis as well as some other major health issues

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@justina

Hello, I have had chronic pain for 17 years now.. RSD/CRPS. I have had several back surgeries, SCS implants, narcotics, etc. I have been diagnosed with Myasthenia Gravis as well as some other major health issues

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Please elaborate, I don't know what RSD/CRPS, SCS implants or Myasthenia Gravis are but I'm interested. Thanks in advance

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