1. < Chronic Pain

Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Marield65. Marie | @marield65 | Aug 14, 2017
In reply to @boourbonman "I promised you all I would let you know when I got approved for Medical Marijuana...." + (show)
@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

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Jen, I agree. I get so many emails I am starting to delete some without reading them because I get overwhelmed with the chatter. I am consumed with pain and I had delirium my last surgery and I want the medical profession to get more knowledgeable about it. I think that if you want to just chat, that is fine, start another site. I am scared crap about my life not where I live. Please MODERATORS do something. Marield65

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Moderator
Colleen Young, Connect Director | @colleenyoung | Aug 14, 2017
In reply to @boourbonman "I promised you all I would let you know when I got approved for Medical Marijuana...." + (show)
@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

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Hi @jenapower,
This is Colleen, the Community Director. Thank you for your private messages to me. I responded to both of them and am kindly waiting for your reply. If you didn't receive my private responses, please feel free to contact me using this form https://connect.mayoclinic.org/contact-a-community-moderator/

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jerry4info | @jerry4info | Aug 14, 2017

I'm jerry4info. I would like to write about my symptoms and read any response I may get.

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1 reply
Marield65. Marie | @marield65 | Aug 14, 2017
In reply to @sharonmay7 "Yes if anyone has ideas of how we can get the attention of higher ups... Please..." + (show)
@sharonmay7

Yes if anyone has ideas of how we can get the attention of higher ups... Please let us know !! Every time I here somethings about pain pills it is always negative. I bet there r more people helped then hurt! Sharonmay7<br />
<br />

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Sharon may: I am Marield65, God bless you. You are still so young, and have gone through so much. Do you ever complain and feel cheated ? How do you stay up? What are the answers? I have been through so many surgeries and pain and I have a low immune system and now feel like crap with some kind of bug but it is very hard for me to stay positive when all I want to do is live a peaceful life, not this "why me " life. I feel so selfish at times. Then I say "why not me". I am 72. Do you have any words of wisdom you would like to give us people who live in chronic pain when you, your self lives like us, in chronic pain?

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Marield65. Marie | @marield65 | Aug 14, 2017
In reply to @sharonmay7 "Yes if anyone has ideas of how we can get the attention of higher ups... Please..." + (show)
@sharonmay7

Yes if anyone has ideas of how we can get the attention of higher ups... Please let us know !! Every time I here somethings about pain pills it is always negative. I bet there r more people helped then hurt! Sharonmay7<br />
<br />

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Jen, this is Marield65. I just got operated on for a cyst on my spine at L5 and I was supposed to go home the same day, but again, had a reaction to the meds and went home the 3rd day. But the operation was not such a big deal, it's all the meds they throw at you that is the worst thing. That was just one of my 5 back surgeries. I have one more back surgery to go and I am so afraid of the anesthesia and the pain meds. This surgery will be another fusion of L3 to L 4 & 5. I am trying to put it off as long as I can. First I have to have shots to L5 where I have a pinched nerve. I read that the benzodiazepines are the worst kind of medicine to interact with pain medication. Have you heard that?

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Mentor
John, Volunteer Mentor | @johnbishop | Aug 14, 2017
In reply to @jerry4info "I'm jerry4info. I would like to write about my symptoms and read any response I may..." + (show)
@jerry4info

I'm jerry4info. I would like to write about my symptoms and read any response I may get.

Jump to this post

Hello @jerry4info, Welcome to Mayo Connect. Connect is a great place to share your health story, ask questions about your concerns, and find out what others with similar health concerns are doing for treatments. Can you tell us about your symptoms and any questions for Connect members you might have?

Also, you may want to take a look at the different discussions under Chronic Pain to see if there is one that matches your health concerns. If you don't see one, feel free to start a new discussion by clicking the Start A Discussion button at the top. Here is a list of the current discussions:
https://connect.mayoclinic.org/group/pain/
If you want to tag a specific Connect member for a question or to reply to their post, just type their Connect @username and they will be notified of your post.

John

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jenapower | @jenapower | Aug 14, 2017
In reply to @boourbonman "I promised you all I would let you know when I got approved for Medical Marijuana...." + (show)
@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

Jump to this post

I didn't get them. I basically asked you what I already wrote here. Is it possible to answer whether we can have another form or not for chatting, here. I am not one of the people that particularly wants to chat about my personal life. I want to talk about medical issues whether I have a question or I can add something for another person. I'm just trying to make a suggestion for a way to limit the amount to email coming through in the chronic pain form. Idea why I did not get your email, but I didn't. Thank you Jennifer

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jenapower | @jenapower | Aug 14, 2017
In reply to @boourbonman "I promised you all I would let you know when I got approved for Medical Marijuana...." + (show)
@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

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Coleen, that link is to the form I filled out already twice. Do you want me to email you again?

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Mentor
Jim, Volunteer Mentor | @jimhd | Aug 14, 2017
In reply to @boourbonman "I promised you all I would let you know when I got approved for Medical Marijuana...." + (show)
@boourbonman

I promised you all I would let you know when I got approved for Medical Marijuana. Judi and I did it. We then went down to Edgewater FL. and got two 500 mg bottles. $70 each. So we were suppose to start with 5 drops (each drop is a mg.) three times a day and slowly work up to 10 drops 3 times a day. Do the math. 16 days for $70. We are both at 5 drops 3 times a day and no relief. I sure hope it starts to ease our pain. Will Keep you posted.
Hoot

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@hazelblumberg

Hazel,

It's been a while since I looked into the process of getting MM, but as well as I can remember, the cost here in Oregon is similar to Florida. Around $250 for an annual appointment with the prescriber, $200 for the annual fee for the state, and then the high cost of the weed, which has a huge state tax. I decided I couldn't afford it.

Jim

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Mentor
Jim, Volunteer Mentor | @jimhd | Aug 14, 2017
In reply to @hazelblumberg "I developed earaches in September 2016. My primary care found no ear or sinus infection and..." + (show)
@hazelblumberg

I developed earaches in September 2016. My primary care found no ear or sinus infection and sent me to an ENT, who diagnosed TMJ pain. I went to my dentist for help. He gave me weekly anesthesia shots into trigger points (OUCH!) and exercises to do, including massaging the trigger points and opening my mouth as wide as I could numerous times in the shower while my face was warm and wet. (I have been wearing a night guard made by my dentist for over 20 years; he replaces them as they wear out.) The pain continued and only got worse; it was at the top of my head, in my ears, in my jaw, above my palate (as though I'd eaten hot food). My dentist sent me to an oral surgeon, who did 360-degree x-rays and found no joint damage. He told me I was therefore not a candidate for surgery (YAY!) and prescribed Flexeril, a muscle relaxer. The pain only got worse, and I continued to wake up in the night with horrific pain. Ibuprofen didn't even touch it.

My dentist then sent me to a physical therapist, who didn't listen to a word I said. I came in on a "good" pain day: my pain level was about a 5 out of 10 (10 being the worst). After his examination and showing me how to do various exercises, he triumphantly told me that my pain level was now reduced. I said "No. My pain level is now about 7.5." He said he didn't believe me. He attempted to push me to go to his outside clinic to get "magnet therapy," and he tried to push me to see a friend of his who is a naturopath. Two days after this session, I was still in excruciating pain and doubt I'd ever return to this physical therapist, although he had me schedule 4 more 1-hour sessions with him.

I called my dentist again, and he called in a prescription for Tylenol plus codeine, which I can take every 4 to 6 hours. My dentist seems to have no further solutions for me.

My primary care is currently out of town, but I will see her when she gets back (in August); she may be referring me to a pain management specialist, which my dentist recommended--however, my dentist refuses to give me a referral to such a specialist, even though the specialist will take referrals from dentists or doctors.

I have been treated for many years for clinical depression and panic/anxiety disorder by my psychiatrist, and the meds have helped me immensely. On Monday I see my psychiatrist for my usual 6-month med check, and I'm going to ask him for help with the terrible TMJ pain. I have also had fibromyalgia and chronic fatigue syndrome for a long time. The fibro pain has greatly lessened over time and hardly bothers me, but the CFS continues.

The TMJ pain makes it difficult to concentrate. I'm self-employed, and I enjoy my work. But pain gets in the way, as it does in every single situation: work or pastimes. My dentist mentioned massage therapy, but I'm in too much pain right now to try it. Another friend mentioned using a TENS unit. I feel as though I'm not living; to be in constant pain is hardly living, at least to me.

Any other suggestions? Would a TENS unit help? I'm more than willing to purchase one. I'll try just about anything to be pain free. Sometimes I am pain free. But I spend about 2 weeks out of every month in serious pain. I am feeling very discouraged.

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@jenapower

I have an account at MediGuard.com. It keeps my list of meds, and gives me the interactions with the other meds. I just check it whenever I change a med.

Jim

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