Does anyone who was diagnosed with oral lichen planus have occasional

Posted by lindaadel @lindaadel, Oct 28, 2023

Occasional skin itching after being diagnosed with oral lichen planus?

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@lindaadel I’m not aware of itching with lichen planus, but this information from the Mayo Clinic talks about it.
https://www.mayoclinic.org/diseases-conditions/lichen-planus/symptoms-causes/syc-20351378
I hope some of the other members will chime in soon and help you with their experiences. Were you just recently diagnosed? What is your treatment?

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@lindaadel yes, I have oral lichen planus and terrible itching. While Lyderm gel (Fluocinonide) does help with the oral lichen planus, I have yet to find something to relieve my itching.

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I am learning that the less time I spent in the shower the better! when I’m in the shower I make sure the water is not too hot! Also applying moisture lotion can also be helpful! also when there is an itch I only rub it gently with the padded of my fingers like a massage kind of thing so that I do not irritate my skin. hope the suggestions are helpful!!!

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@lindaadel

I am learning that the less time I spent in the shower the better! when I’m in the shower I make sure the water is not too hot! Also applying moisture lotion can also be helpful! also when there is an itch I only rub it gently with the padded of my fingers like a massage kind of thing so that I do not irritate my skin. hope the suggestions are helpful!!!

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@lindaadel I have slathered myself with lotions and potions both prescription and OTC but still itch, even immediately after application!

I have another six-month appointment with my dermatologist this afternoon and hopefully he will come up with something more helpful.

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@rashida

@lindaadel I have slathered myself with lotions and potions both prescription and OTC but still itch, even immediately after application!

I have another six-month appointment with my dermatologist this afternoon and hopefully he will come up with something more helpful.

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I’m blessed with 3 autoimmunes (lichen planus is one) and have severe itching. For the last 15 years, I’ve taken Allegra everyday as it’s the only thing that keeps me from scratching myself bloody. Maybe it’s a histamine response, I don’t know. But it really helps, along with lotion and warm, not hot showers. Hope you find a fix!

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@rashida

@lindaadel I have slathered myself with lotions and potions both prescription and OTC but still itch, even immediately after application!

I have another six-month appointment with my dermatologist this afternoon and hopefully he will come up with something more helpful.

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@rashida What did you learn from your dermatologist? Any better treatments?

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@becsbuddy

@rashida What did you learn from your dermatologist? Any better treatments?

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@becsbuddy My dermatologist has prescribed Gabapentin 100mg. three times a day for the itching. I was told to start with just one capsule at night, since Gabapentin causes sleepiness and unsteadiness. If I feel okay I am to take one in the morning and one at night, then gradually go on to taking it three times a day.

I had no reactions with the first capsule at night, so I went ahead and took another in the morning. I think I will take the Gabapentin just twice a day, morning and night. Just the one capsule at night improved the itching considerably so I think twice a day will be enough. I will see if the itching stops completely in a few days.

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@taosmary

I’m blessed with 3 autoimmunes (lichen planus is one) and have severe itching. For the last 15 years, I’ve taken Allegra everyday as it’s the only thing that keeps me from scratching myself bloody. Maybe it’s a histamine response, I don’t know. But it really helps, along with lotion and warm, not hot showers. Hope you find a fix!

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Hi taosmary, I had the itching for many years. I also take an antihistamine every day. A few years ago a friend mentioned taking Biotin, it's a Vitamin B7, so I tried it. It worked very well to calm the itching for me. Maybe you can try it. I take 10,000 mcg a day. One of the perks is that my hair and nails are better than they have ever been. LOL My doctor said it not harmful as the unused B7 is removed in your urine. If it is bright yellow don't panic, that is normal. You could also try a lower dose and increase it if it doesn't work. Good luck and keep smiling, it makes the day better.
MCTD43

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@taosmary

I’m blessed with 3 autoimmunes (lichen planus is one) and have severe itching. For the last 15 years, I’ve taken Allegra everyday as it’s the only thing that keeps me from scratching myself bloody. Maybe it’s a histamine response, I don’t know. But it really helps, along with lotion and warm, not hot showers. Hope you find a fix!

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@taosmary try Gabapentin. My dermatologist has prescribed it for my itching and it is working.

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@rashida

@taosmary try Gabapentin. My dermatologist has prescribed it for my itching and it is working.

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Thanks, rashida. Gabapentin and I don’t get along well at all. But my 65# poodle loves it!

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