Anger. Guilt. Anger….cycle

Posted by 1k194 @1k194, Jun 27, 2023

Does anyone else go through a never ending loop of anger/guilt?
Anger at the situation. Guilt for feeling angry for something no one has control over. Anger for the lack of control over the situation. Guilt for feeling angry over the situation consuming your life and the will to live a life that just seems perfunctory. Angry for feeling as if caring for someone you love makes you feel perfunctory. Guilt for feeling anger…and so on and so on?...

I’ve read a few posts from other caregivers and others on other posts. I’m sorry I’m not one of the “supporters” here on the forum. I do so much of that in life…I have nothing left to give here.

I empathize so much with others here. The life of a caregiver no one else but another caregiver can imagine. The physical, mental and emotional strain. The all consuming-ness of every day; one day bleeding into the next. The constant difficult decisions, negotiations and winging it…. Thank you for posting all the personal and sometimes no-so-tidy details….so other caregivers can know that they’re not alone.

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

@jillsy

Hi Dollyme!
I certainly understand why your mother and step-mother are in facilities. I put my mother, diagnosed with Alzheimer's, in a nursing home after she broke her hip. She was nearby and I was able to visit her almost every day until her death 2 years later.
But it's different with my husband of 50 years, who has always taken care of his family and the house. I have only noticed his decline the last few years, and he was diagnosed with dementia about a year ago, probably Lewy Body or a mix of Alzheimer's and Lewy Body. We have an appointment at Mayo Clinic to perhaps get a more precise diagnosis and treatment. Right now he uses Rivastigmine patches. So far he takes care of his own hygiene. Some days he is able to function pretty well, some days he is more confused than others.
So we'll just muddle along as best we can until some event causes us to make a different decision. I'm grateful for the support from these Mayo Clinic newsletters.

Jump to this post

I understand, I did have to place my husband at the end of his life. He was very sick for a long time I did the best I could but realized that a hands-on caregiver I am not.

Wish you the very best.

REPLY
@dollyme

I understand and empathize with those who keep their LO's at home to care give for.

Me, I cannot do this, I am one of those people who feel that I am still entitled to a life and intend to live it.

I have 2 in facilities, one in MC the other in AL in the same home. My brother & I care for them, we are just not on top of each other.

They are well cared for, fortunately they both planned for this monetarily. My mother is 98 and in AL, my step mother is 85 and in MC. My mother loves it, enjoying her last years with others, activities and she doesn't have to lift a finger everything is done for her. My stepmother at this point doesn't even know where she is.

We each chose our own path in life, all one can do is roll with it. Some 50% (taken from aging care.com) of home caregivers die before the LO they cared for, that tells me a lot about the stress and strain involved in choosing to do this.

I wish all of you home caregivers the very best, remember to take care of you!

Jump to this post

I agree with you, Dollyme. My wife isn't very impaired -- just enough that she wanted me to stay at home with her literally all the time, because she'd become very anxious about where I went, even if I told her and allowed her to call me by cell phone. I'd get questions about how long I was going to be gone, what time I'd be back, can I go there tomorrow, and would get phone calls telling me that she just liked to hear the sound of my voice. She became unable or unwilling to help out at home, and in her free time, would fall asleep in a recliner, while not sleeping well at night, so I had nobody to talk to. I am 11 years younger than my wife (66 and 78, respectively), and felt that I still had energy and wanted to travel, interact with others, and volunteer in the community. I placed her in a memory care facility of her choosing, and I won't say it has been totally successful, because she doesn't interact with others there and doesn't participate in group activities. Her personal hygiene has taken a nosedive to the extent that I don't like to be near her (I'm working on this), and when I ask her about showering and washing her hair, changing her clothes, etc. She'll say she knows she should do it, but then doesn't. I may have made some headway by offering to shampoo her hair myself, to which she agreed...but we haven't had our first attempt at this yet. I get into the guilt cycle, because the physical environment is so much nicer at home than at the memory care facility, but I really don't want her living here for the reasons stated above. Sometimes I feel like a bad or selfish person for lowering her standard of living, but it hasn't been much more successful from my side, as I get lonely and have to take care of everything household-related as well as everything facility-related. I'm trying to make new friends and go out more, but it's not happening as often as I would like.

REPLY
@fleetwoodiv

I agree with you, Dollyme. My wife isn't very impaired -- just enough that she wanted me to stay at home with her literally all the time, because she'd become very anxious about where I went, even if I told her and allowed her to call me by cell phone. I'd get questions about how long I was going to be gone, what time I'd be back, can I go there tomorrow, and would get phone calls telling me that she just liked to hear the sound of my voice. She became unable or unwilling to help out at home, and in her free time, would fall asleep in a recliner, while not sleeping well at night, so I had nobody to talk to. I am 11 years younger than my wife (66 and 78, respectively), and felt that I still had energy and wanted to travel, interact with others, and volunteer in the community. I placed her in a memory care facility of her choosing, and I won't say it has been totally successful, because she doesn't interact with others there and doesn't participate in group activities. Her personal hygiene has taken a nosedive to the extent that I don't like to be near her (I'm working on this), and when I ask her about showering and washing her hair, changing her clothes, etc. She'll say she knows she should do it, but then doesn't. I may have made some headway by offering to shampoo her hair myself, to which she agreed...but we haven't had our first attempt at this yet. I get into the guilt cycle, because the physical environment is so much nicer at home than at the memory care facility, but I really don't want her living here for the reasons stated above. Sometimes I feel like a bad or selfish person for lowering her standard of living, but it hasn't been much more successful from my side, as I get lonely and have to take care of everything household-related as well as everything facility-related. I'm trying to make new friends and go out more, but it's not happening as often as I would like.

Jump to this post

Let me say this, what was is no longer applicable. I do not feel like my step-mothers standard has been lowered, just changed. She is in a very nice facility.

Until about 2 months ago, she maintained her hygiene, now she fights with the staff to not take a shower. she also used to paint & color and go out to the common area now she does not. The dementia has progressed to this state. She now stays in her room and watches tv or sleeps.

I am not one to worry about what stage they think she is in as it makes no difference she is where she is. The Neurologists were of zero help, they thought she had FTD, I do not think so observing her decline, they just give a guess like the rest of us.

There is no better, there is no cure.

Go on with your life, you did not cause this, you cannot fix it...it is what it is.

Sending support your way!

REPLY
Please sign in or register to post a reply.