Yes. I have muscle spasms as I fall asleep. I focus on relaxing my mind, sinking into a soft pillow, and then I fall asleep.
I think that they are due to my autonomic neuropathy- which causes many issues.
Neurologist appts are backed up- but I kept calling and got an appt with a NP in Oct- at my local clinic.
i have developed a significant tremor after having covid the second time in July 2022. I was unable to write or even type at times. I have had occupational therapy in my home and they are teaching me hand and finger exercises that have helped tremendously with this. The twitching in my arms and neck are baffling my neuro's. There are functional movement disorder doctors at Mayo that may help.
Hello, I am from Czech Republic. I had covid virusis at the beginning of september 2023 (my first covid). I had mild form. But 14 days after inicial illness, muscle spasm and contraction started, in my arms and legs. In first days only mild, but then worsen. Now I have relatively hard spasm, mainly before sleep. But during all days. I have problem to walk long distances. Then, I have fatique, headache and sometimes nausea. I dont know what to do. I go to my practise, but can you advice me something? I was healthy young woman before covid and now I can't live normal life, its painfull and I have problem with walking due spasms. These problems taking 7 days and worsen. I would be gratefull for your tips for me.
We suspected that my husband had Parkinson's disease prior to his getting Covid. After testing positive for Covid, his Parkinson's symptoms became severe . They included strong tremors and muscle stiffness. I don't know if this is related to your Covid symptoms, but I would suggest a visit to a neurologist.
Hi everyone, I am brand new on Mayo Connect and am actually heading to Mayo Clinic next month to be seen for Post-Covid Syndrome. I've had a bit of success with my local neurologist with symptom management around my tremors and muscle spasms from small fiber neuropathy that started a couple of months ago through medication treatment.
Hi! Thank you for reaching out. My main symptoms were the muscle tremors, overall chest pain, radiating nerve pain, overall fatigue, and difficulty with sleeping. For the pain management and sleep disruption, my PCP started me on a low dose (10mg) of Amitriptyline and a regimen of Low Dose Naltrexone (LDN) with the hopes of resetting my central and autonomic nervous systems - I've been increasing dosage from 1mg to 4mg presently (increasing 1mg every 3 months) and my pain is much improved, I am sleeping well again, and I've had nervous system functioning (heart rate, tremors, muscle spasms, GI issues) almost restored to normal. LDN is higher doses is given to opioid overdose patients with the hopes of resetting their CNS and helping the body to naturally produce endorphins. I hope you find this helpful and please reach out with any questions, Steve
Hi! Thank you for reaching out. My main symptoms were the muscle tremors, overall chest pain, radiating nerve pain, overall fatigue, and difficulty with sleeping. For the pain management and sleep disruption, my PCP started me on a low dose (10mg) of Amitriptyline and a regimen of Low Dose Naltrexone (LDN) with the hopes of resetting my central and autonomic nervous systems - I've been increasing dosage from 1mg to 4mg presently (increasing 1mg every 3 months) and my pain is much improved, I am sleeping well again, and I've had nervous system functioning (heart rate, tremors, muscle spasms, GI issues) almost restored to normal. LDN is higher doses is given to opioid overdose patients with the hopes of resetting their CNS and helping the body to naturally produce endorphins. I hope you find this helpful and please reach out with any questions, Steve
I have 2mg naltrexone. It canceled the effects of the pills that allow me to get a good night's sleep. Living on small doses of lorazpam and ambien. Thanks for the support
I overdid it today as I felt I had some energy. I promptly crashed with extreme fatigue and body tremors. It has been 12 hours and tremors have calmed down. It's been 2 years and 4 months since this started. I am afraid to overextend myself so not to trigger an episode. 😥
I have read the comments on long covid with great interest. I had mild covid May 2022 and was fine until I got my fifth vaccine early November 2022. By the end of the month I was extremely hoarse, breathless, fatigued and choking when swallowing. I saw two ENT surgeons who found nothing of interest, had a modified barium swallow which showed slight irregularities and had MRI and CT scans of head and neck which were normal. I saw one neurologist who saw no signs of disease and a second one who said I have ALS. I do have weight loss, some muscle weakness and fasciculation which he thought indicated ALS. Motor nerve conduction study was inconclusive and I refused EMG having severe needle phobia. So, I was interested to learn that others had been diagnosed with ALS who might have long covid. I would really like to know how to find out what is actually wrong with me and if I have any hope of recovery.
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Yes. I have muscle spasms as I fall asleep. I focus on relaxing my mind, sinking into a soft pillow, and then I fall asleep.
I think that they are due to my autonomic neuropathy- which causes many issues.
Neurologist appts are backed up- but I kept calling and got an appt with a NP in Oct- at my local clinic.
i have developed a significant tremor after having covid the second time in July 2022. I was unable to write or even type at times. I have had occupational therapy in my home and they are teaching me hand and finger exercises that have helped tremendously with this. The twitching in my arms and neck are baffling my neuro's. There are functional movement disorder doctors at Mayo that may help.
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1 ReactionWe are finding that a cup of chamomile tea is helpful at the onset of full-body tremors
Hello, I am from Czech Republic. I had covid virusis at the beginning of september 2023 (my first covid). I had mild form. But 14 days after inicial illness, muscle spasm and contraction started, in my arms and legs. In first days only mild, but then worsen. Now I have relatively hard spasm, mainly before sleep. But during all days. I have problem to walk long distances. Then, I have fatique, headache and sometimes nausea. I dont know what to do. I go to my practise, but can you advice me something? I was healthy young woman before covid and now I can't live normal life, its painfull and I have problem with walking due spasms. These problems taking 7 days and worsen. I would be gratefull for your tips for me.
-
Like -
Helpful -
Hug
2 ReactionsWe suspected that my husband had Parkinson's disease prior to his getting Covid. After testing positive for Covid, his Parkinson's symptoms became severe . They included strong tremors and muscle stiffness. I don't know if this is related to your Covid symptoms, but I would suggest a visit to a neurologist.
What medication were you given. I've been struggling with this
Hi! Thank you for reaching out. My main symptoms were the muscle tremors, overall chest pain, radiating nerve pain, overall fatigue, and difficulty with sleeping. For the pain management and sleep disruption, my PCP started me on a low dose (10mg) of Amitriptyline and a regimen of Low Dose Naltrexone (LDN) with the hopes of resetting my central and autonomic nervous systems - I've been increasing dosage from 1mg to 4mg presently (increasing 1mg every 3 months) and my pain is much improved, I am sleeping well again, and I've had nervous system functioning (heart rate, tremors, muscle spasms, GI issues) almost restored to normal. LDN is higher doses is given to opioid overdose patients with the hopes of resetting their CNS and helping the body to naturally produce endorphins. I hope you find this helpful and please reach out with any questions, Steve
I have 2mg naltrexone. It canceled the effects of the pills that allow me to get a good night's sleep. Living on small doses of lorazpam and ambien. Thanks for the support
I overdid it today as I felt I had some energy. I promptly crashed with extreme fatigue and body tremors. It has been 12 hours and tremors have calmed down. It's been 2 years and 4 months since this started. I am afraid to overextend myself so not to trigger an episode. 😥
-
Like -
Helpful -
Hug
2 ReactionsI have read the comments on long covid with great interest. I had mild covid May 2022 and was fine until I got my fifth vaccine early November 2022. By the end of the month I was extremely hoarse, breathless, fatigued and choking when swallowing. I saw two ENT surgeons who found nothing of interest, had a modified barium swallow which showed slight irregularities and had MRI and CT scans of head and neck which were normal. I saw one neurologist who saw no signs of disease and a second one who said I have ALS. I do have weight loss, some muscle weakness and fasciculation which he thought indicated ALS. Motor nerve conduction study was inconclusive and I refused EMG having severe needle phobia. So, I was interested to learn that others had been diagnosed with ALS who might have long covid. I would really like to know how to find out what is actually wrong with me and if I have any hope of recovery.