1. < MAC & Bronchiectasis

Bedtime Blues

Posted by ckscoville @ckscoville, Aug 27, 2020

I'm posting this in hopes that somebody might have had the same experience ...and hopefully found a solution.

I currently do three breathing treatments a day -- with a nebulizer and a SmartVest concurrently -- and I'm on a rotation of antibiotics (Augmentin, Doxycycline, and Bactrim) for a very stubborn Achromobacter infection. During a typical day, I cough up a lot of sputum (usually light to dark green and sticky), especially in late morning.

However, when I finally go to bed at night, I go through a really horrible 30-45 minutes of coughing up stuff almost non-stop. I usually end up coughing up so much that my chest hurts like crazy at the end of it, and leaves me totally exhausted as well. It's gotten to the point that the thought of going to bed depresses me because I know what's in store for me. It's also not unusual for me to wake up in the middle of the night to cough up more stuff.

I don't know if the change in posture (lying down) is what triggers these really bad coughing fits, but I'm desperate for a solution.

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

rebecross | @rebecross | Oct 21, 2023
In reply to @scoop "ALSO -- most definitely ask for sputum culture. Best to produce a culture while not on..." + (show)
@scoop

ALSO -- most definitely ask for sputum culture. Best to produce a culture while not on azithro. Maybe lay off of it for a few days. The culture results are necessary to determine which drugs the bug is susceptible to.

I've read that AD app is available in app store on android unless you're on a sprint plan. Hope I have that right. In the meantime, here's an another site dedicated to bronchiectasis along with lung clearance and how to videos!
https://bronchiectasis.com.au/physiotherapy

Jump to this post

Yes, we did a culture and after 8 weeks came up negative. Whew! I went ahead and order the book about the AD process, since the Google Store claims I can't install the app on m SAmsung phone - who knows! Thanks for your thoughts and links!
Rebecca

REPLY
1 reply
scoop | @scoop | Oct 21, 2023
In reply to @rebecross "Yes, we did a culture and after 8 weeks came up negative. Whew! I went ahead..." + (show)
@rebecross

Yes, we did a culture and after 8 weeks came up negative. Whew! I went ahead and order the book about the AD process, since the Google Store claims I can't install the app on m SAmsung phone - who knows! Thanks for your thoughts and links!
Rebecca

Jump to this post

That's a relief, indeed!

FYI -- I know nothing about AD process book on Amazon, only about the Autogenic Drainage App in app store. Sorry to hear you cannot install it. You may want to look more closely at the book you ordered to double check it has to do with lung clearance.

REPLY
1 reply
rebecross | @rebecross | Oct 21, 2023
In reply to @scoop "That's a relief, indeed! FYI -- I know nothing about AD process book on Amazon, only..." + (show)
@scoop

That's a relief, indeed!

FYI -- I know nothing about AD process book on Amazon, only about the Autogenic Drainage App in app store. Sorry to hear you cannot install it. You may want to look more closely at the book you ordered to double check it has to do with lung clearance.

Jump to this post

Yes, it does appear to cover autogenic drainage, and I did watch the video. Thanks again!

REPLY
sallyb827 | @sallyb827 | Oct 22, 2023

Do you elevate your head at a20 to 30 degree angle or lie flat?

REPLY
1 reply
rebecross | @rebecross | Oct 23, 2023
In reply to @sallyb827 "Do you elevate your head at a20 to 30 degree angle or lie flat?" + (show)
@sallyb827

Do you elevate your head at a20 to 30 degree angle or lie flat?

Jump to this post

I sleep at an angle. Flat is terrible, but even so I'll suddenly wake up coughing with a throat full of muscus and have spit it out. Every 30 minutes for hours.

REPLY
View MoreView Less
Please sign in or register to post a reply.