A month into my diagnosis with PMR

Self diagnosed PMR and got my PCP to write me an order for Prednisone, because can't see my Rheumy till next Friday. Started on the Prednisone and was 60% better by the next morning. Confused because both my C-Reactive protein and Sed rate were normal. How can this be? I had pain in every muscle group. Look forward to my appt on Friday and see what she says.

Not all that surprising. While the sed rate and c-reactive protein are excellent indicators of PMR, they are not absolute. Almost weekly I read on this forum and another forum from people who have the same circumstance as you. The hard part is sometimes the person has a doctor or rheumy who insists it can't be PMR because these markers are normal. It absolutely can be.

Good Morning crew,
I think this system is a sorry excuse for a Broke Back Health Care system. Not putting you folks down, whom are willingly gave up your time to help another old soul on the path going no where health care treadmill. Been waiting for nearly six weeks to hear from the RHEUMATOLOGIST. These folks don't have the time or the decency to call and say find another avenue. Hay I, Just want to confirm what I have and tell me what I have to do to navigate this journey of a old persons Affection. Yep I still have enough brain sense to be Pissed Off.
Thank you all for your advise and concerns and suggested treatment for which I believe was probably a Spider bite. It actually appeared to be a creator when the blister was broken. The heat in the area has subsided, so that's a better place. Been waiting to hear from my nurse navigator all weekend but they to are on the Covid Standard Time, of what appears to be a less than a 5 day week schedule?? For antibiotics scrip. Yep I dare you, don't ever require treatment on the weekend. HOW DID WE GET TO SUCH A DARK PLACE ? That said, Thank you all so much to all whom have contributed.
Back to PMR still on the 15mg of the prednisone and holding till the next reduction and doing ok, because no pain and I actually have a portion of my simple old person life back I actually have a spark of ambition again. But not doing very well on the sleep side of thing 6 hours tops. Blood pressures are a bit high in the am and low in the late evenings, ranges 132/83 thru 98/66 but that said my pause is 10% higher running primarily in the mid 80tys.
So has anyone heard the phrase (dead man walking) is a good analogy from where the journey begun. If we ran our business like this system we would have been bankrupt long ago, kinda like our country, (right)?
Hope everyone has been able to enjoy the fall colors and moderate temperatures, but like all good things coming to the end as mother nature gave us a pretty hard frost last night, 30 as I awaken this morning. Have a blessed week. Please excuse spelling and grammar as my mind was adrift back in the day at school.

Thanks! And the speed at which I'm recovering to me is a pretty clear indication that it's PMR. Also the suddeness and intensity with which it first appeared.

Thank you all for being here.

Thanks so much was able to get started on the oral antibiotics this evening.

Thank you for the information and concerns. Was able to start on oral Antibiotics this eve.

Thank so much currently on oral antibiotics this eveening.

Up at 3am again 2 days in a row, lol.
On 12mg pred now taking 4.5 mg LDN and Plaquenil.
Funny, my PMR also started with a hamstring tear last Dec, (great long , strong hamstrings I have), the inflammation spread up my entire leg and glutes, and it took a month to heal. I blame too much pickleball. Classic PMR hit weeks later.

Up to 20% of PMR patients do not have elevated markers. I am one of them. My PMR hit a year ago July. My CRP started slowly elevating only recently and I have now been diagnosed with GCA. Even with GCA my CRP is only a little over the normal range. But I was diagnosed by temporal biopsy that showed giant cells, as I had symptoms. Everyone’s body is different. It’s too bad the doctors often tend to go by the average and not the span of humanity.

Physical therapy on my biceps almost set me back and gave me a mini flare. I asked my GP for a referral for my knees but the referral was for general PMR symptoms. 🤷‍♀️ ..l convinced my P.Therapist to just help me to strengthen my knees and surrounding muscles.
Much better now. At the beginning of my diagnosis 9 months ago I had to hold off on my water aerobics for a couple of months. I had lots of intermittent fatigue and needed to rest. Slowly 🐌 and steadily my strength has increased. I hike...but sometimes I'll tell my husband " I've got about 20 more minutes till I poop-out" I'm back at water arobics three times a week again. I'm down from 20 mg of prednisone to 6 mg My functional doctor combined my prednisone with LDN Which helps make the tapering process easier.
I now feel hopeful for the future. Slow and steady is my motto. My doctor also recommended trying something like the Terry Whals. Protocol.
I recently discovered I have SIBO So I'm on an even more restrictive diet at the moment. But I basically have no more pain only a little bit in the morning. **I forgot to mention that I split my dose. I have most of it in the morning and 1 mg of prednisone before I go to bed at night so that I get a good night sleep and wake up without any pain, mostly.