(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

I'm sorry to say that Kate is no longer with our group. As for the cataract surgery, I just had that conversation with my eye doc. I am not currently on antibiotics, but she said if I was, we would stop the Ethambutol for about a month before surgery, and 2-3 months afterwards. Apparently this is the protocol, at least in my clinic. The ID doc, pulmonologist and ophthalmologist are all part of the same large group.
Sue

Hi Laura,
Thanks for your post. Please tell me the symptoms you had when you began to develop eye problems from the ethambutol?

MJ

@sounder27
Pseudomonas comes with the Bronchectasis territory. It shows up in a sputum usually within three days. Its treated with cipro leviquin or tobramyacin usually. They usually do a susceptibility test to see which antibiotic works best.
Shari

Replying to @sounder27 I have had bronchiectasis since I was 16 and I am now 74. I clear my lungs at least once a day and do okay. I wonder what the best position is for sleeping.

Thank you Vmorton. I assume you do not grow any bacteria although you have bronchiectasis. May I know your lungs clearing method. I'm working very hard to learn and gather more information as much as possible in order to get rid of the bug I have in my lungs without antibiotics. I also want to know the best sleeping position as well.

@sounder27 I periodically grow bacteria and become ill. I am usually given antibiotics and there have been times when finding the right antibiotics has taken some time. I also one had a particularly bad bacteria and to prevent it from colonizing, I was given Tobramyacin for a year (1 month on and 1 month off) For the most part I have done well and I believe that has a lot to do with the regimen I have for clearing my lungs. I use my nebulizer at least once a day. The meds I use with nebulizer are hypersal saline solution with albutrol Sulfate. I also use a technique called autogenic breathing, which I was taught when I was in my 30's. I do it also at least once a day. Clearing my lungs, using my two inhalers twice a day, plus taking Azithromycin 3 times a week is keeping me mostly free from bacteria and illness. I found out that for best sleeping position, it is on your right side. However, if you have to sleep on your back, just make sure the top of your bed is raised so that your head is above your heart, and your lower bed is raised up to slightly raise your legs.

@sounder27 I periodically grow bacteria and become ill. I am usually given antibiotics and there have been times when finding the right antibiotics has taken some time. I also one had a particularly bad bacteria and to prevent it from colonizing, I was given Tobramyacin for a year (1 month on and 1 month off) For the most part I have done well and I believe that has a lot to do with the regimen I have for clearing my lungs. I use my nebulizer at least once a day. The meds I use with nebulizer are hypersal saline solution with albutrol Sulfate. I also use a technique called autogenic breathing, which I was taught when I was in my 30's. I do it also at least once a day. Clearing my lungs, using my two inhalers twice a day, plus taking Azithromycin 3 times a week is keeping me mostly free from bacteria and illness. I found out that for best sleeping position, it is on your right side. However, if you have to sleep on your back, just make sure the top of your bed is raised so that your head is above your heart, and your lower bed is raised up to slightly raise your legs.

@sounder27 I periodically grow bacteria and become ill. I am usually given antibiotics and there have been times when finding the right antibiotics has taken some time. I also one had a particularly bad bacteria and to prevent it from colonizing, I was given Tobramyacin for a year (1 month on and 1 month off) For the most part I have done well and I believe that has a lot to do with the regimen I have for clearing my lungs. I use my nebulizer at least once a day. The meds I use with nebulizer are hypersal saline solution with albutrol Sulfate. I also use a technique called autogenic breathing, which I was taught when I was in my 30's. I do it also at least once a day. Clearing my lungs, using my two inhalers twice a day, plus taking Azithromycin 3 times a week is keeping me mostly free from bacteria and illness. I found out that for best sleeping position, it is on your right side. However, if you have to sleep on your back, just make sure the top of your bed is raised so that your head is above your heart, and your lower bed is raised up to slightly raise your legs.

Thank you for sharing. Do you do postural drainage too? With Azithromycin 3 times week, I assume 250mg. Does it hurt your stomach? How long have you been taking it? I want to know that particularly bad bacteria you had and treated with Tobramycin. The bacteria I have is sensitive to Tobramycin but my doctors never mention about treating with it.