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Chronic Pain members - Welcome, please introduce yourself
Welcome to the new Chronic Pain group.
I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Why not take a minute and introduce yourself.
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Hello @connielaine. I edited your previous post and removed your email from public view. For your privacy and safety we ask that you exchange emails via the private message function.
I see that you found one discussion regarding burning mouth syndrome, but here is another you may wish participate in, http://mayocl.in/2d5g7f5.
If you have any other questions about emails, or how Connect works, do not hesitate to send me a personal message with your questions. To do this click on my name, and then click on the envelope symbol under "contact me."
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1 ReactionI wonder if our ancestors dealt with the level of chronic pain that seems to afflict so many of us today, and if they did, how did they treat it? Maybe we could learn from the different cultures what their magic fixes were.
And welcome to the group. I live in Oregon with my wife and 2 dogs and 2 horses that belong to friends. 34 head of cattle grazed the pasture for a few weeks, but moved on to their winter home the other day. I miss them. They figured out to come up by the barn whenever I was out there, filling the water troughs.
I'm sure our ancestors did. Check out books on natural heeling through foods. Some foods especially strawberries help with inflammation. So does tumeric. No manic but does help somewhat
Dear Connielaine: I got burning mouth syndrome the last time after I was diagnosed with hypothyroid, (I had had BMS off and on for a few weeks at a time several times ever since I was in my 20's (I'm 64 now), but it always went away "on its own". I don't know whether this time the thyroid had anything to do with it.) This time (this was six years ago) the BMS lasted over a month, so I decided to do something about it. My doctors and dentist had no solutions, so I looked on the internet and found that there was some scientific evidence that 600 mg of Alpha Lipoic Acid a day relieved the BMS symptoms to some degree. (There is also something out there called Alpha Linolenic Acid, also abbreviated ALA, which is DIFFERENT from Alpha Lipoic Acid, which is the one you want, if you chose to take it.) So I bought a 4 month supply (it's not prescription, but a dietary supplement) of Alpha Lipoic Acid, and began taking it. After a month of taking it religiously 600 mg a day, my burning mouth symptoms had gone. In the six years since, they haven't returned. Whether Alpha Lipoic Acid was the reason, I can't say, because I also started taking Levothyroxine for my hypothyroid at about the same time, and when I was younger BMS went away on its own. I am NOT in the medical profession at any level; I am just relating to you what happened to me as a patient. You might want to try this, but CHECK WITH YOUR HEALTHCARE PROVIDER BEFORE YOU DO. Also you can search the internet for "alpha lipoic acid and burning mouth syndrome" and find a number of scientific references. I hope this is of some help to you. Frank
I have lived with sports induced Spondylolisthesis for almost forty years now. I tried just about everything in my search for relief from the chronic pain. a bit more than 10 years ago I attended the Pain Management Clinic in Rochester and my life turned around. Yes I still have pain and understand I will until they can learn to repair damaged nerve endings. The up-side is I learned how to deal with it without medications, without missing out on family activities, with minimal deprival of "fun" things. It hasn't been easy but life has been pretty darn good since my time at the clinic!
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1 ReactionWhat did they teach you?
Have you tried medical cannabis?<br><br>Nancy Shermoen~
Can you tell us what the pain management clinic did for you? How do you manage your pain?
Pretty in depth background of pain, chronic and acute. Daily exercise and interaction with a physical therapist. Relaxation, meditation bio feed back and other coping techniques together with occupational therapy. Very thorough information on drugs and their affects. Tobacco cessation for those that wanted it. Diet information The group dynamics were fantastic. The curriculum was a continuous cycle and group members joined as other "graduated" so there were always beginners, intermediate and experienced members to share experiences with. My family took advantage of the Friday family day lectures to learn what they should be doing to support but not "coddle". I stayed at a local rooming house with a kitchenette and used the experience to re-set my lifestyle, I took it to heart, almost compulsively for the three weeks. Mayo offered a box full of tools and showed us how they worked. I chose the ones that worked the best for me.
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2 ReactionsDoes the Rochester Clinic know of a similar clinic in the Orlando area?