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Cavitary MAC Resolved Completely on CT Scan?
Hello everyone! I haven't been posting for a while because I've been so busy since I had my surgery in March. Everything's been going really great though. I think I told everyone they got all the cancer of the intestine, so I was just working on getting rid of the MAC!
I had a CT scan done about a week ago and the results came back and what it says is: complete resolution of right sided pulmonary cavitary lesion and also says that there are no nodules and no consolidation. There was quite a bit of consolidation when they started and tons of nodules. And I had a large cavity..3.5". I only started treatment in March for this. It seems crazy that this would resolve so quickly. I had been taking the Airikayce for the past couple months and prior to that was only on two of the three antibiotics because of a interaction with another medication. I was on the ethambutol and azithromycin. So I guess I'm one of those cases where I didn't need all three of those big antibiotics. My question is that I was told by my ID doctor that cavities don't go away. They can collapse, is that with this means? If it's completely resolved? I'm a little confused. I don't see my infectious disease doctor until November. I'm going to have to put a call into him. I guess. I did see my cancer doctor last week. He did look at the scan and he thought that it looked like my lung grew back. I told him that lungs don't grow back-obviously it's not his specialty! He did say it look like there was lung tissue there now where are the cavity had been. Who's He didn't have the right computer software to look at the CT scan like the radiologist can, but said that it looked a lot better than it did 3 months ago. Anyway, I was just wondering if anyone could give me some interpretation of what that could possibly mean? Does it sound like the cavity actually collapsed if it says complete resolution? Previous CT scans it would say that it was an abscess or it would say it was a cavity, I think it was a combination of both depending if it was infected or not...
Anyway, any advice anyone can give would be great. I hope everyone's doing really well on here! There's a couple people I've kept in contact with on here. In my lowest of low times this was the best site that I've ever been on for people to really be helpful and uplifting!! Thank you all!!!! Love and healing!!!!!!
Angela
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That’s a safe Vitamin D dose? Asking because mine is very low but Dr suggested 2000 daily
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2 ReactionsI have several friends and family that take that much and that much is on my medication list for every doctor I go to and they ( even the ID doctor) said everything I am taking was fine. It is a good Covid prevention also and I have never had covid either and I was never over cautious about being anywhere because of Covid.
So I keep taking it.
The recommended daily allowance is 1000mg, with more for specific needs (such as a deficit.)
Here is an answer about safety for you from the Mayo Clinic:
https://www.mayoclinic.org/healthy-lifestyle/nutrition-and-healthy-eating/expert-answers/vitamin-d-toxicity/faq-20058
Here is a caution - Vitamin D is a fat-soluble substance, which means your body has no way to eliminate it, and it can be stored in your liver and fat tissues. Too much over a long period of time can become toxic, affecting your body's ability to absorb the calcium needed for bones and teeth.
Also, the Ivermectin she lists is a prescription drug in the US approved to treat parasites. Off-label use is controversial.
Sue
vitamin D levels should be done in a blood test. Then based on your bloodwork you should take the amount you need to raise the levels. So you may have to experiment and retest etc. Low D is more common with Bronchiectasis. And I have read it is the single most important supplement for people with Bronchiectasis. Also if you take D that is easily absorbed you do not need to take as much. I have taken D for years and my blood levels are usually good around 80 last time checked when I was taking around 4000 iu a day and now I am taking 2000 iu so it will be interesting to test it again and see if I am still in the 80 range. I will adjust according to the blood test. Also it is important to test because some D supplements work and some do not (absorb or not). So you may have to switch brands.
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2 ReactionsSo, you only took Azithro?
Hi Renee, did you take all these at the same time? Can you please tell me how many hours you space from one to another. I want to add Allimax in my medication as well. Apart from taking all these medications, do you nebulize, do postural drainage and use Aerobika...etc..etc?
I take all the supplements at the same time except the Allimax. I take it later because I think it settles better with food. I don’t nebulize or anything except take an anti inflammatory drug because I have inflammation in my lung lining and it keeps it from hurting. Celebrex works.
I think just anything you can find to build your immune system can’t hurt. I hate taking pills so I found gummy’s in a lot of them so I make them my breakfast. Lol
I am also very active. I mow my acreage, edge, and all that stuff. Staying so active probably helps too and an “I can beat this attitude “
I hope you can get rid of your infection too. I know I am probably an exception and hopefully you can be too.
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2 ReactionsI was on azithromycin and ethambutol. After 3 months I added Airikayce. I was already having really great results with just the antibiotics, but when I added the antibiotic nebulizer that really cleared everything up!!!
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1 ReactionThat is wonderful. So happy you are having great results.