Vivid awakening nightmares, sweating, hot flashes every night

Posted by mdplastics @mdplastics, May 1, 2022

I am a liver transplant patient seven months post transplant. I have had night sweats with awakening vivid nightmares and hot flashes every night since transplant. Sleep is disturbed and I wake up tired every morning. Remain fatigued and have lost endurance. Also get very tired very easily during the day and need to take a long nap almost every day. I am unable to multitask, become forgetful, and don’t have good reflexes when I get tired so unable to drive. It’s like a brain fog. Blood draws are every two weeks and stable. I am on Tacrolimus and Everolimus. Wonder if anyone else has had similar symptoms. It’s quite a struggle for me.

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footballmum | @footballmum | Oct 10, 2023

Good morning
I would check with your team as the night sweats could be from an infection. I'm 3 years post transplant and still experience night mares and night sweats. I figure it's a small price to pay for my gift. God bless 🙏

mdplastics | @mdplastics | Oct 10, 2023

Please check on your blood glucose levels at night. One easy thing to rule out is hypoglycemia.
If you are on a beta blocker, they are known to have a side effect of vivid dreams.
Tacrolimus is known to cause what has been labeled “abnormal dreams” aka nightmares. Lowering to the lowest effective dose may be helpful

texastxp | @texastxp | Oct 13, 2023

In reply to @mdplastics "Please check on your blood glucose levels at night. One easy thing to rule out is..." + (show)

Glucose has been fine since drinking a glucose/protein shake before bed. No beta-blockers, but my Tacro increased to 7 because my liver enzymes went up recently. I’ve had no nightmares, just long vivid dreams. I’m still having night sweats randomly which I journal every morning and will be sharing at my next doctor follow up. Have a great weekend

mdplastics | @mdplastics | Oct 13, 2023

If you are/were on steroids and high dose Tacrolimus, night sweats and nightmares or vivid dreams would need a reassessment with transplant hepatologist after liver enzymes have stabilized. They would more than likely start tapering Tacrolimus dose until reaching a balance stabilizing liver enzymes with lowest effective dose. Hopefully, night sweats and abnormal dreams would improve. Also a good idea to rule out any infection, viral or others.

ssapp1 | @ssapp1 | Oct 14, 2023

@mdplastics -7 months post transplant is still pretty early to feel back to yourself. I am 2 years post transplant and I still have fatigue, but I am able to work full time. I take naps on the weekend. I have night sweats all the time, but I kind of always have, there are a quite a bit of side effects from tac. It will get better when it gets reduced and time goes on. I was surprised at how awful I felt the first year. It does get better. With all that said, always tell your transplant team what symptoms you are going through just to be sure there isn’t something else going on. It’s quite a ride.