Hair loss after transplant, probably Tacrolimus: Anyone change meds?

Posted by hello1234 @hello1234, Mar 26, 2022

In the beginning, my hair loss seemed minimal and I took Biotin supplements. Now, approaching my 2nd anniversary for my kidney transplant, my hair is coming out in gobs. I believe it's probably the Tacronlimis. If you had this problem, what did you do to solve it? Rogaine for Women, Hairmax laser comb, change your medication, or something else? Please let me know your experience (I think I am going bald).
Many thanks!

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kandidubrall | @kandidubrall | Oct 10, 2023

In reply to @texastxp "I’ve been home for 2 weeks. Besides the lack of strength in my legs; which I’m..." + (show)

Yes if your pain is on left side, you need a stool softener but ask your team

Rosemary, Volunteer Mentor | @rosemarya | Oct 11, 2023

In reply to @texastxp "I’ve been home for 2 weeks. Besides the lack of strength in my legs; which I’m..." + (show)

@texastxp, I hope you are continuing on your recovery with slow but steady steps forward. Medicine changes are to be expected for a while. It is wonderful to have a transplant team for guidance, isn't it?
Walking is good, and be alert to your body for any signs of overdoing it. I had to gain leg strength , too, after my transplant was using a wheelchair/walker before my transplant due to my pre transplant condition.

Texastxp, As you become more mobile, you will be faced with many challenging adventures as you return to your favorite activities. I want to share this Transplant Support Conversation with you:
- Living Life after your Transplant
https://connect.mayoclinic.org/discussion/living-life-after-your-transplant/

texastxp | @texastxp | Oct 13, 2023

In reply to @kandidubrall "Yes if your pain is on left side, you need a stool softener but ask your..." + (show)

Reglan before every meal made a huge difference. I feel much better now

texastxp | @texastxp | Oct 13, 2023

In reply to @rosemarya "@texastxp, I hope you are continuing on your recovery with slow but steady steps forward. Medicine..." + (show)

Daily I learn a new limitation, but I still can tell I’ve gained more strength in my upper and lower body. I’ve been going for longer walks and going upstairs to my bedroom is much easier. I’ve been using my wife’s 2 pound dumbbells when watching TV for upper body strength and I use an aerobic stepper for a lower body workout.

Rosemary, Volunteer Mentor | @rosemarya | Oct 13, 2023

In reply to @texastxp "Daily I learn a new limitation, but I still can tell I’ve gained more strength in..." + (show)

@texastxp - I know you are happy to actually see and feel your improvement! I like your improvised home gym!

randallscott1 | @randallscott1 | Oct 14, 2023

In reply to @kandidubrall "Yes if your pain is on left side, you need a stool softener but ask your..." + (show)

Yes. I basically had to relearn to walk after my transplant. I’m 3 years in and so grateful for my new life. It takes work but strength will return. Just have to realize our new normal is great. Slow and steady.

Rosemary, Volunteer Mentor | @rosemarya | Oct 14, 2023

I am always amazed by the support that all of us give and receive by participating in these transplang support groups. I am also amazed at the way a conversation like this one began with discussion about hair loss - and - has evolved into encouragement in addition to hair loss after transplant.

I would like to invite you to share a photo of hope.
- Snapshots of hope: Life on the other side of transplant
https://connect.mayoclinic.org/discussion/snapshots-of-hope-life-on-the-other-side-of-transplant/
.
What photo do you have that wouldn’t exist without your transplant?

@randallscott1, @texastxp, @kandidubrall, @chickytina, @crystalfaye, @brendag60

randallscott1 | @randallscott1 | Oct 14, 2023

In reply to @rosemarya "I am always amazed by the support that all of us give and receive by participating..." + (show)

I don’t really know how to post pic but believe me I’m old and ugly. Ha ha. 3 years transplant.

muddlycrew | @muddlycrew | Oct 15, 2023

In reply to @randallscott1 "I don’t really know how to post pic but believe me I’m old and ugly. Ha..." + (show)

I’m sure you are wiser and beautiful!!! Thanks for the giggle. I love humor as we deal with such a life changing event. I’m 5 months post transplant and as I deal with hair loss, memory challenges, unexplained weight gain, learning what I can and cannot ingest, etc., I welcome humor every step of the way. As Jimmy Buffet said, if we couldn’t laugh we would all go insane. Thanks for all the posts on this chain everyone!

Rosemary, Volunteer Mentor | @rosemarya | Oct 15, 2023

In reply to @muddlycrew "I’m sure you are wiser and beautiful!!! Thanks for the giggle. I love humor as we..." + (show)

@muddlycrew, Thanks for the giggle. It is contagious, even via our online connection.

On a more serious note, from my experience as a recipient, I assure you that the current challenges are partly caused by your new medication routine. As time passes, you will gradually adjust to your new "normal". I would be happy to connect you with others who have shared their own adjustments and helpful tips, too. What is your biggest challenge?