Chronic Pain members - Welcome, please introduce yourself

Warren did you ever have any problem with that eye? Your pain almost sounds like phantom pain which is one of the kinds of pain I have. But my understanding of this type of pain you should have had some type of problem with your eye, not necessarily a loss, but something? 19lin<br />
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Hi, my name is Tommy and I have several chronic diseases. I am not living in the US and am moving from Singapore back to my home country Sweden. I was first sick in 2001 in Sweden and got wrong diagnose and disability pension in 2004. In 2005 I moved to Singapore and the climate made it a lot better so I started working and cancelled my disability pension. But it got worse and I haven't been able to work for some years and I got help from the health care system here after ending up in the emergency.

It has taken time and the first diagnose was that my knees was worn out and that I had multiple polyarthritis and was put in a wheelchair. I got physiotherapy in warm water and it has helped me a lot. Now I am diagnosed with fibromyalgia, arthritis, chronic sinusitis and chronic pelvic pain syndrome as my prostate and urine bladder gives me problems. On top of that my left lung is collapsing, I have Meckel's Diverticulum (a pocket on the colon) and when they examined that, colonoscopy, they found the beginning to colon cancer. At this time it was benign but they could not see the whole colon clearly and want it to be done again in Sweden. Like that wasn't enough I also had a heart attack 26 August last year with following surgery and in the middle of November I was back to hospital with heart problems. My heart was beating to slow and irregular. Tomorrow I will be admitted for a sleep study as I suffer a lot from insomnia.

I also have an abusive marriage and starved so I lost 25 kg and was diagnosed with malnutrition. Thankfully I got help from the social welfare so I could at least eat one meal a day. I am very thankful for the help I have got here in Singapore; they have done a lot for me. After several years of struggle in court I finally got help from legal aid and am getting a divorce from my wife and can return to my home country. I have tried to leave before but my wife has stopped me and now I have to leave because I will lose my PR because of the divorce.

But I have nowhere to go. I am going back to a place I have lived before but because of the refugee situation in Sweden there is no housing available. Even the health care system is trying to make it hard for me to come there. I have a daughter and grandchildren there and my daughter is helping me but fighting with the bureaucrats is horrible. I just have to go there and just hope they will help me otherwise I will end up on the street without health care. The catch 22 is that I can't stay with my daughter because then they will say I don't need help. The Swedish system is for refuges not for helping returning citizens. And they misdiagnosed me before. I hope I at least can refill my medications as I am not allowed to take everything with me into the country and I so badly need a wheelchair. Hope I can get help with it.

Sorry for writing so long but I am in a lot of pain and the situation is desperate so I need all the input I can get. Thank you.

Hi tommy welcome to our pain group. We r a friendly bunch! So to here of your problems!!! Maybe someone here will b able to point u in the right direction. I myself no little about your country. But I worry for you and hope and pray that you find relief!!! Sound like your in a spot!! Keep in touch and let us know what's new. Hope this finds u on a better day!! Welcome Sharon <br />
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How to get attention of higher ups? They want their money saved, so follow the money. I just sent email to my Congressional Representative about HR4063 which will be a law to stop opioids in VA medical facilities except for cancer and short term use. There is a vote coming on this bill so I am doing all I can to oppose it. Also write to the letters to the editor of your newspaper especially if you see an article that is negative toward opioids and pain.<br />
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I usually agree opioids are not good, but it is all we have that works right now. I usually push for funding for an objective method of measuring an individuals pain and for something to replace opioids that works. Also write to state officials. Check on web internet to find out about new laws or regulations being proposed. Any new federal regulation is suppose to have a period for comment from interested parties which is your chance to give your views.<br />
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Remember you are an expert at pain and you have knowledge that doctors and others do not have usually. Good luck and get involved. 19lin<br />
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Brainsr; good idea to start web site for pain suffers. It is hard to find a site to just talk and exchange ideas on. WebMD has a site but it started to turn a little sour as some were less than supportive. They did not have monitors who could monitor the site on a regular basis and that makes a big difference. You have good ideas and we need to let our leaders know there is another side to the pain coin. Many times you just see negative stuff in the press and no one brings the other side of the suffer. 19lin<br />
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Selan54 It is hard to evaluate pain which is why I push for some objective method of measuring pain. As I understand it there is no FDA approved method of measuring pain, but they do measure pain for research purposes. I heard of a person living near me who died of bone cancer, but they did not even know they had the cancer until 3 weeks before they died. I always heard that bone cancer was very painful and yet this person did not know they had it until just 3 weeks before they died? They kept working until they found the cancer. People experience pain differently. 19lin<br />
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Hi 19lin. I'm to the point that I can't take this much pain. Surgery or<br />
pills are a waste of time. I've always said , no offense to people that are<br />
suffering with cancer, but after 33 yrs of this I'm backing in to a corner<br />
with no way out. This is like cancer but no dr can tell me how long I have.<br />
I'm now looking into marijuana use in my state. The govener is<br />
decriminalized as of Jan. 2017 and there is a large push to make it legal<br />
for medical use. I want to try it but if my dr tested me I will lose him,<br />
we've had that discussion. I just don't know if it would help, so I'll wait<br />
and see what happens in November when the people in this state will be<br />
given a chance to vote for or against medical use. Both bills won't make it<br />
until Jan. The federal government. has all the the Drs scared because of<br />
the misuse of narcotics. To many people pretend to be in pain just to sell<br />
there medicine, I've seen it add 4 to 500 to there monthly income. This<br />
puts narcotics in the wrong hands. Excuse me for rambling I'm just lost and<br />
don't know which way to turn. briansr<br />

Already trying. But if you put your name out there you can lose your Dr.<br />
The feds are getting crazy and we are the ones who suffer. To many people<br />
are selling there meds an they get in the wrong hands and people die. My<br />
Drs office is looking like a factory for people to get drugs and I'm<br />
getting worried that they will be shut down. Still lost and trying!! briansr<br />

@leh09, my grandfather died with bone cancer. He didnt have much pain till close to the end. I'll never forget when the cancer ate through his hip bone, it sounded like a gun went off ( a shot gun ). He never came home after that. Us kids were still school age when that happened, today I would hope science can find ways to ease the suffering on the lives of so many people. I dont recall seing my grandfather really being sickly with his cancer, he was always happy and fishing.

Frank1, Warren, wear your goggles with your head held high and with a smile. Being diffren isnt something to be ashamed of, some people are just afraid of things they dont understand, thats why you hear the comments. Thats why its good not to judge anyone because we dont know what they are going through, are what sicknesses people are suffering from. A smile and a kind word goes a long way. Have a very blesses day!! salena54