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Kelsey Mohring (@kelseydm)

Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: Sep 19 1:05pm | Replies (6115)

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@tompet

Hi, my name is Tommy and I have several chronic diseases. I am not living in the US and am moving from Singapore back to my home country Sweden. I was first sick in 2001 in Sweden and got wrong diagnose and disability pension in 2004. In 2005 I moved to Singapore and the climate made it a lot better so I started working and cancelled my disability pension. But it got worse and I haven’t been able to work for some years and I got help from the health care system here after ending up in the emergency.

It has taken time and the first diagnose was that my knees was worn out and that I had multiple polyarthritis and was put in a wheelchair. I got physiotherapy in warm water and it has helped me a lot. Now I am diagnosed with fibromyalgia, arthritis, chronic sinusitis and chronic pelvic pain syndrome as my prostate and urine bladder gives me problems. On top of that my left lung is collapsing, I have Meckel’s Diverticulum (a pocket on the colon) and when they examined that, colonoscopy, they found the beginning to colon cancer. At this time it was benign but they could not see the whole colon clearly and want it to be done again in Sweden. Like that wasn’t enough I also had a heart attack 26 August last year with following surgery and in the middle of November I was back to hospital with heart problems. My heart was beating to slow and irregular. Tomorrow I will be admitted for a sleep study as I suffer a lot from insomnia.

I also have an abusive marriage and starved so I lost 25 kg and was diagnosed with malnutrition. Thankfully I got help from the social welfare so I could at least eat one meal a day. I am very thankful for the help I have got here in Singapore; they have done a lot for me. After several years of struggle in court I finally got help from legal aid and am getting a divorce from my wife and can return to my home country. I have tried to leave before but my wife has stopped me and now I have to leave because I will lose my PR because of the divorce.

But I have nowhere to go. I am going back to a place I have lived before but because of the refugee situation in Sweden there is no housing available. Even the health care system is trying to make it hard for me to come there. I have a daughter and grandchildren there and my daughter is helping me but fighting with the bureaucrats is horrible. I just have to go there and just hope they will help me otherwise I will end up on the street without health care. The catch 22 is that I can’t stay with my daughter because then they will say I don’t need help. The Swedish system is for refuges not for helping returning citizens. And they misdiagnosed me before. I hope I at least can refill my medications as I am not allowed to take everything with me into the country and I so badly need a wheelchair. Hope I can get help with it.

Sorry for writing so long but I am in a lot of pain and the situation is desperate so I need all the input I can get. Thank you.

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Replies to "Hi, my name is Tommy and I have several chronic diseases. I am not living in..."

Hi tommy welcome to our pain group. We r a friendly bunch! So to here of your problems!!! Maybe someone here will b able to point u in the right direction. I myself no little about your country. But I worry for you and hope and pray that you find relief!!! Sound like your in a spot!! Keep in touch and let us know what’s new. Hope this finds u on a better day!! Welcome Sharon

Believe it things will be better. God is with you. He isn’t doing these
things never blame God. Man men do these things. Men also help you . Have
faith in God he will send someone your way. You don’t know what God will do
or who he will send. Believe that he will have faith. I will pray for you.
If I were there I’d help you that’s why I know someone there will help you.
Reach out to everyone there until you get help. God bless you Sue Breen

Thank you for your support. It warms my heart that people care. I am 55 years old and I would like to be able to do things for 10 – 15 years more even if I have to sit in a wheelchair. I am quite capable of doing and solving things so I think I will find a way forward. But I struggle a lot with my self-worth as I was raised to take care of my siblings and when I needed help from them they was not able to help me. I know that I have to take better care of myself, eat better and a lot of other things but I feel so guilty when I do things for myself.

I have two small parrots, Lovebirds, and they mean everything to me as they are my children right now. They are very important to my mental health and I take them with me when I move but some people think I am crazy for loving them so much and it is quite costly to get them with me. But the same people wouldn’t question if it was a dog. It makes me feel guilty but at the same time I know that I wouldn’t go without them.

I just came back from a hospital where I have spent the night for a sleep study. I have no idea of the result, all I know is that I was awake until 4 am and still need more sleep.

I struggle a lot with my diseases, some weeks are so bad so everything is pain and the only thing to do is to rest. I have to go and shop myself and for every day out I need at least 2 – 3 days rest. The problem is that the big pain does not come right away; it comes after 20 – 30 minutes and then is too late to do something about it. Worst is when the hip is aching because then it get so hard to walk. The hips are x-rayed and the joints seem to be ok, it is the fibromyalgia in the big leg muscle that is giving me the pain.

Even when I have all this pain I think it is important to focus on something else than my pain. I don’t want to sit and feel sorry about myself all the time. I am educated about child abuse and have worked with it in the past. Then I also voluntarily worked with abuse against men and from men. It is my goal to be able to go around and talk about abuse against men as I have knowledge and experience about it that can be important to share. In Sweden I was doing research about bullying about 20 years ago and when I left there has not been any more research done. And it is much needed. But first I have to find ways to take care of and improve myself.

@tompet

I know this was posted last year, but I just now came upon it. I really hope that you’re in a good position right now. Things weren’t going so great last May. I’ve been using a CPAP machine for around 15 years, and it has changed my life. Before then, I was chronically fatigued, from waking up so many times at night.

Maybe I’ll be able to find more recent posts from you. I’ll look.

Jim

May God bless you. Prayers for you Cat

I hear you Tommy. I am British where there used to be a fantastic free health system ( NHS ). My husbna dand I are 65/66 yrs old and have live in Canada for the last 14 yrs.We are thinking of going back to England but I have many problems too,Chronic Pain from Fibromyagia, Arthrits etc .Due to all the Illigal immigrants and people going to UK to just use the NHS then go back to their own country especially women to have babies our NHS is in the toilet. At the moment I have a great teIam at the pain clinic here so I am so worried about going back as my 3 daughters who are still in UK tell me they can't even get an appointment with a GP without having to wait for weeks. I had to wait over a yr here to get into the pain clinic and I am very worried I would be without treatment for what could be a lot more than just 1 year. Does anyone on here have that experience and how to get around the wait if we go back.For instance can a Dr at the pain clinic contact a Dr at a pain clinic there to just pass on the info to get me in without a wait?

I'm so sorry for the situation you're in. We in the U.S. have the mistaken idea that the European countries have better health care than we do. I hope you're able to get your situation under control.

I'm sorry, but your story is nothing but just heart breaking. Good luck in the future and God Bless you for hanging in there. And I thought I had issues.

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