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Kelsey Mohring avatar

Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 10 hours ago | Replies (7462)

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Profile picture for Colleen Young, Connect Director @colleenyoung

Hi all,
I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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Replies to "Hi all, I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I..."

Hello Charlton (@charlton), I see that your diagnosis from one of your earlier posts is RSD (CRPS). I'm sure that the associated pain must be horrific. Have you looked into any other types of treatment besides the gabapentin and subutex/24? I'm not a doctor and do not have any medical training but I would talk with your doctor to see if some of your memory concerns may be related to a side effect of the gabapentin or maybe even the subutex.

Have you looked into any other types of treatments for the chronic pain? I had not heard of RSD and when I did a search for it, I ran across a website that said it is ranked as the most painful form of chronic pain that exists today on the McGill Pain Index.. The website also listed other treatments that may help. Here's the page on the website. You have to click the treatment link at the top to see a drop down menu for each treatment type available: http://www.rsdhope.org/crps-treatments.html

Hoping you find something that helps...
John

Hello, @charlton . I also have peripheral neuropathy, and found no medication that helped. I finally had a trial spinal cord stimulator implant, and had a wonderful week with almost no pain! I'd forgotten how it felt. Because the trial version helped so much, I had a permanent implant after a six week wait to get scheduled. I, as a rule, have 80%+ pain reduction. When I stand or walk very long on hard surfaces, I'm reminded how my feet hurt before. After the implant, I was able to taper off Cymbalta (I don't think it was helping anyway), and I'm down from 90mg of morphine sulfate contin to 15mg twice a day.

Have you tried any therapies other than pharmaceutical?

Jim

dear lillyanne thank you for your revealing post. very interesting. not to suprised as i have a similar story as well as many others who have posted here. i know of one opthamolagist who substitutes his optometric brother in his place at times and naturally charges the opthamo;ogist high price to medicare and you the patient. not to safe when one truly needs the opthamalogist care. do we really think that in the past the doctors were this bad or wrong? but we need them desparately and must go along with them, and is this an attitude with some of them or even a game while in their care. for the "other" doctors out there if i offend i truly apolagise.

Hello Charlton (@charlton),

I would encourage you to follow John's (@johnbishop) suggestion. Medications can cause side-effects and it is important to talk about your memory problem with your doctor to see if it could be a side-effect of the meds you are taking.

A pharmacist can also be helpful in sorting out medication related problems. Do you take meds for other health conditions as well?

Teresa

@charlton,

I think you may find the following discussion worth your time to read through and to jump in on regarding peripheral neuropathy,
https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/.

That is what aggravates me, u know your pain, not them.
I have been fortunate, praise,,God.
With an understanding Dr.
I surely hope you get what u need to be able to, motivate..♡

I have had spine surgery for severe pain.
Periformis muscle pain for 9months and when all that was getting a bit better I was rear ended in a car accident that has left me with severe pain in my right hip and buttocks with nerve damage.
I’ve been dealing with pain for 2 years and it is exhausting and depressing.
Im looking for relief. Physical therapy is not the answer.

Try acupuncture,it’s requires patience as it’s not fast but it does decrease the pain somewhat.Worth a try as it’s not invasive.I suffer nerve pain too from damage during a procedure hard going

Hello @vdgwr, welcome to Connect. Thank you for sharing a bit about yourself and you complications with your back. @eifeltower gave you a good suggestion for acupuncture. Many of our members have talked about how acupuncture has helped them through some of their pain.

You may also want to check out the following discussions as they will have members who will understand what you are going through and talking about some of the things they have done to cope:

- Back injuries & Treatment, Introduce Yourself, https://connect.mayoclinic.org/discussion/back-injuries-treatment-introduce-yourself/
- Surgical solutions to chronic cervical/back pain, https://connect.mayoclinic.org/discussion/surgical-solutions-to-chronic-cervicalback-pain/
- Back Surgery - https://connect.mayoclinic.org/discussion/i-have-had-3-back-surgeries-with-negative-results-in-addition-the/

Hi content and well .... from what I understand the metal posts or bars that go downward from the knee and upward from the knee are longer when they do a revision. I'm not sure just why, but this really has worked for me. Only problem is my imbalance. I'm going to the Wellness Center through the hospital to get in better shape, and especially strengthen the muscles, ligaments, etc. in that knee. They're pretty weak after being "attacked" twice! Between that and the Klonopin I take, I can take a fall in a heartbeat, so I'm very careful about how and where I walk.
Maybe if you look up "revision knee surgery" you will find a better and more complete explanation. If you do, please let me know.
abby