Anyone taking Naltrexone for Long COVID?

Posted by jamie08 @jamie08, Jul 12, 2023

Just wondering what people’s experience with naltrexone is, does it help, what dose worked best for you? My Dr. Is trying me on Low dose naltrexone and I’m curious what others experienced.

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elliep | @elliep | Oct 3, 2023

LDN was bad for sleep.
the pharmacist recommended i take it after breakfast.
that is what i do and it has worked great.
i am taking 4.5 mg. titrated up from 1.5 mg.

ritzgerb | @ritzgerb | Oct 4, 2023

In reply to @ripley "Did you continue to take the LDN or stop or reduce your dose due to the..." + (show)

I went back to 3 mg but later talked to pharmacist who compounded the LDN and he said he would give it at least a wk at 4.5 mg to see if symtoms stopped.

iamawriter | @iamawriter | Oct 5, 2023

Has anyone been on LDN, noticed improvement and then stopped taking without having a return of symptoms?

covidstinks2023 | @covidstinks2023 | Oct 7, 2023

In reply to @iamawriter "Has anyone been on LDN, noticed improvement and then stopped taking without having a return of..." + (show)

I just started it 4 weeks ago at 0.25 mg. with my Integrative Long Covid Doctor. It's too soon to tell a difference and he wants me to work up to 0.50 mg.....i'm so sensitive to meds. Naltrexone is also given for thyroid & fibromyalgia. I tried it a few years ago for thyroid and was taken off due to some side effects that my primary at the time (he's retired now) thought was coming from the Naltrexone. My Long Covid Doctor thinks it was not the Naltrexone that caused the symptoms but the low B12 I was having. I am trusting the Lord and trying it again for Long Covid. I'll keep you posted.

iamawriter | @iamawriter | Oct 9, 2023

In reply to @covidstinks2023 "I just started it 4 weeks ago at 0.25 mg. with my Integrative Long Covid Doctor...." + (show)

Thank you and please do stay in touch. I hope it works for you!

dand63 | @dandoss63 | Oct 10, 2023

One of my doctors treating me for long Covid and other endocrine issues has me on LDN (4.5mg). It is to help treat my thyroid. Thyroid has been over-active and under-active since Covid.

cindisue | @cindisue | Oct 10, 2023

In reply to @elliep "LDN was bad for sleep. the pharmacist recommended i take it after breakfast. that is what..." + (show)

Hello...So is LDN, low dose naltrexone? And you are saying it's bad for sleep? You mean you can't sleep when you take it? My psychiatrist wants me to take it for anxiety and insomnia....because she wants me to stop taking Lorazepam....which is working fantastic for me for both insomnia and anxiety!!

dand63 | @dandoss63 | Oct 10, 2023

In reply to @elliep "i have found it has been great for increasing my energy. i take it in the..." + (show)

What kind of Covid tremors do you have? Ever since I got Covid, I have this sporadic twitch in my right arm (only the right arm). It happens out of the blue and only when I'm not actively using the arm.

elliep | @elliep | Oct 10, 2023

In reply to @dandoss63 "What kind of Covid tremors do you have? Ever since I got Covid, I have this..." + (show)

yes, i have had those twitches too. mostly in my legs at rest. tremors/vibration/shakiness can be pretty much
anywhere. the LDN really helps with energy. my symptoms are generally a lot like CFS.
do you want to discuss or have other questions? i have been dealing with this for a year now.