Connect
Glutathione: What dosage do you use? Where do you get it?
Hi! Yes, I have ALL these but doing surprisingly well...mostly asymptomatic. Got HMPV at Christmas, pretty sick but bounced back. On a mission to try some out of the box treatments to keep me well. If you have used glutathione in a nebulizer, can you tell me who (type doctor) prescribed and what dosage etc. and did you think it helped? Also Sodium Chloride.
Like
Helpful
HugInterested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.
Connect
I asked my doctor about this and was told that patients who are undergoing drug treatment for MAC cannot enroll in this trial. That makes sense, since they are testing its effectiveness in bronchiectasis. One trial objective at a time. It is possible that, in the near future, they will enroll MAC patients.
It is hard waiting because we are currently battling all of this. Compiling results after these trials takes time, and sometimes the trials themselves last quite a while.
In the meantime, inhale deeply and breathing out fully during nebulizing, as well as using NAC orally, are helpful.
-
Like -
Helpful -
Hug
2 ReactionsThanks so much for the information I really appreciate it I have Saline I got it from Amazon I ordered the glutathione but I can't imagine mixing a powder in with the saline and inhaling a powder doesn't seem safe to me it would be happier if the glutathione was a liquid. I know once it mixes together it's not going to be a powder but still seems like they could be remnants of a powder and you have to keep it sterile so you can't go putting it in blenders. Tell me what you think about this
Hi, I really cannot comment here as I am inexperienced with Glutathione and will be trying it for the first time myself when I receive the product. There are instructions on the link I sent and I will follow them to see if it works for me. I do believe one of the other group members mentioned that there is a liquid form. I would ask your doctor about it . Maybe they can prescribe liquid form. Good luck.
@rosnatale3 , Yes you mix the glutathione with the saline. I've been nebulizing with glutathione for a couple of years now. It's so funny that they're now doing a clinical trial testing it after all these years. If you get it in capsule form just open the capsule and mix it in with the saline and if you get liquid glutathione same thing. Nan
Thank you I will try it. Anything is better than doing nothing
Thanks so much I just found a video that might help beginners like me https://youtu.be/1a0XWnB8goU?si=lvolnXaHcD0R8Y0a
Has anyone nebulized glutathione and what were the effects. I only have the pure powder form that I’ve tried. Most doctors won’t prescribe it. If fact my pulmonologist had never heard of it by that name. But I see l aceytalcestine in my formulary.
Thanks, I’m an Alpha-1 SZ and have since been diagnosed with mild bronchiectasis and just found out a month ago positive for MAC . Only treatment I have been receiving is azithromycin every other day for the last 11 months. My first Mac test were screwed, so a year later the next came back positive as suspected from my Shands doctors. Still the same treatment so far as it is taking forever to see another pulmonologist since my Shands doctor is retiring. My breathing and O2 is getting lower and struggling to breathe most
of the time. I can feel a change and it’s hard to get help in the medical world these days. I’ll try almost anything to breathe better.
It dissolves well with hypertonic Saline. It’s nasty and hard to inhale but haven’t done it long enough to know if it’s helping. I bought Theraputic grade on Amazon. Powder form. And mix 1/3 of a capsule per 4ml of saline.
Hello nannette, have you been taking the antibiotics while using glutatione? You say you have been using it for a couple of years. Thanks