Small Fiber Neuropathy

I understand what your saying about Gabapentin.
I take 300 mg in the morning & 300mg at dinner & 300 mg when I go to bed.
I have tried to increase the strength & I was still in the same amount of pain so that is why I am sticking to the 900mg just to take the edge off.
I am in constant pain but I would not take Lyrica bc of the terrible side effects I have heard of it.
My pain is coming from my back but afraid to have back surgery.
Best of luck to you.
Gabapentin has made me lose my memory a lot & make same dingy but I don't take opioids so there is nothing left.
Best of luck to you.
tigreyes

Memory...yeah, mine is terrible on Gabapentin but it all comes down to benefits vs side effects. Good thing I'm no longer working!!

I took Gabapentin for 9 years and the pain just kept getting worse. My pain doctor tried me on 5 different pain medications all of which I had a reaction to. I react differently to many medicines. They make me quit breathing. My pain doctor said he would recommend me to read up on using Medical
gummies for pain. He told me he could not prescribe it but I could go on line and get a doctor too. I had to really research it before I would try. Finally I got my FaceTime with the doctor and he sent my paper work to Mo Senior Services and it was approved. It is something that insurance won’t cover. I got my card last July. Started using it the day after. I knew I wanted to start as low as possible so cut each gummy circle in fourths, I saw some improvement within an hour but still a lot of pain changed to a half every six hours. It took all the pain away. My doctor then recommended I go to water physical therapy. I could do it in deep water with a life belt on. I have completed 5 weeks of that and enrolled in aquasize. I some times have to change my movements a little due to the bar in my back, but it has been the best thing ever. I can shop for groceries again without pain and go places with my husband. I feel like by me being willing to change my belief and make sure I take a half every 6 hours I have been set free. Fortunately recreational is now been voted in. Renewing your medical card is so much harder than getting it and everytime they deny you it is another charge. They denied me second time said picture on my license wasn’t clear enough and it is the same drivers license they accepted a year ago. I don’t get any type of high because the amount I take is small. Thankful I found a way to live life again..

just diagnosed with small fiber neuropathy, possibly. Dr. prescribed anti-depressant. Took 1st pill and had bad pain in left side colon. Since I have colitis and tread very softly with food and drugs because of colon flare-ups and because my gastroenterologist wants to cut out part of my colon, I am afraid of this anti-depressant which has many warnings and side effects. This drug was to see if it would help with neuropathy, not depression. My first concern is do nothing to cause problems with my colon; I have enough worry trying to avoid severe colon flare-ups without taking drugs that would add to the severity of colon surgery necessity. help

Welcome @jjarvis, Sorry to hear the treatment didn't help with the pain and came with it's own side effects. I only have the numbness with my neuropathy so there aren't any drugs that help with numbness. You bring up a great point and one that I would definitely discuss with your doctor about the side effects causing colon flare-ups. There are a couple of other discussions you may want to view to learn what others have shared.
--- What helps the symptoms of Small Fiber Neuropathy?: https://connect.mayoclinic.org/discussion/tingling-from-small-fiber-neurapathy/
--- Small Fiber Neuropathy: What helps?: https://connect.mayoclinic.org/discussion/small-fiber-neuropathy/.

You also might find the information on the Foundation for Peripheral Neuropathy website helpful - https://www.foundationforpn.org/living-well/.

Have you discussed the colon pain caused by the drug with your doctor? Do you mind sharing what drug your treatment was?

Have any of you tried, "Nerve Control 911?" Contains all vegetable ingredients, such as marshmallow root, passion flower powder, prickly pear powder, etc. "nerve calming formula" I take one every nite at about 4 a.m., and it helps me sleep 3 - 4 hours. I also take Tylenol, Gabapentin (300 mg total). They all seem to help me get back to sleep, but I haven't found anything that'll put me out all night.
Barb

Remember there are other families of seizure drugs that work on neuropathy pain. Tegretol (carbamazepine) is working well for me.

@bkfoster1, I haven't tried it but just the name "911" just seems like another advertising gimmick to attract more people in pain. There are two discussions where members have shared their thoughts or experiences with Nerve Control 911:
--- Has anyone ever tried Nerve Control 911: https://connect.mayoclinic.org/discussion/has-anyone-ever-tried-nerve-control-911/
--- Possible scam: https://connect.mayoclinic.org/discussion/possible-scam/

If you are still looking for something that might help with your neuropathy symptoms, you might want to see what has been shared by the Foundation for Peripheral Neuropathy:
--- Complementary Therapies: https://www.foundationforpn.org/living-well/complementary-therapies/
--- Complementary and alternative therapies: https://www.foundationforpn.org/wp-content/uploads/2020/08/Complementary-and-Alternative-Treatments-Revised-2020-final.-1.pdf

I tried gabapentin and it didn’t work for me and made me feel awful. I have side effects to most meds. I also have fibromyalgia pain. I am now on Baclofen (twice a day am and pm) which is a muscle/nerve relaxer. I have no side effects from this drug and it really helps me. I also use Susan’s CBD Super Salve (in a push up stick form) on my feet, legs, arms, shoulders and back for pain relief. I also use elastic bands for exercising and some light weights at home, plus a treadmill which I can only do a bit at a time but I keep trying. I also see an Osteopath who has helped me very much. He can also write prescriptions and recommended the Baclofen. Hope this can help!!

nothing has helped my SFN pain either. trileptal helps w burning in finger tips, but notwhere else. The pain is relentless and affecting my heart rate, it is low. A dr told me to find cause of SFN to stop it. I dont know the cause , suspected by dr i have a virus. I never test positive for covid active infection, only test positive on blood tested antibodies. I dont know what the virus is that is causing SFN. I dont have diabetes, never alcohol drinker. Getting tingling in my face