1. < Osteoporosis & Bone Health

Has anyone been using Tymlos?

Posted by curlylocks @curlylocks, Aug 1, 2019

Has anyone been using Tymlos? I received devastating news that my bone density score is 4.6, much worse than my age of 72. Recommendation is Tymlos.

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ferrer1105 | @ferrer1105 | Sep 13, 2023
In reply to @bayhorse "I had nausea and headaches that lasted 1-3 hours after injecting for the first 6 months..." + (show)
@bayhorse

I had nausea and headaches that lasted 1-3 hours after injecting for the first 6 months I was on Tymlos. Really hated it! But I stuck with it because my osteoporosis is severe and there was no question that I needed strong medical intervention. It has helped increase my bone density, and side effects are infrequent and much shorter-lived now.

Many people who had bad side effects when starting Tymlos either injected every other day, or else adjusted the dose of their daily injection, slowly increasing to the full dose. These strategies didn't work for me. But if you are desperate for help, try to put up with the side effects and see if they wane as the weeks go by. As for weight loss: I too, am very slim, bordering on underweight, but didn't lose further because of the Tymlos. And when my weight drops too low, I resort to milkshakes! 🙂 Also, you can only be on Tymlos for 18 months, so you can always gain weight back if you do lose.

BTW, it seemed to help me to inject after dinner, on a full stomach.

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I agree. Full stomach helps a lot. The few times I have been dizzy it’s because I haven’t eaten properly.

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betterbones | @betterbones | Sep 13, 2023
In reply to @ferrer1105 "I hope all goes well. I wouldn’t mind losing 10 Pounds !" + (show)
@ferrer1105

I hope all goes well. I wouldn’t mind losing 10
Pounds !

Jump to this post

I used Tymlos for 2 years without any negative side effects, no nausea no dizziness, no pain. I was so nervous the first times I injected myself, but had no issues. I did follow for the first week the advice to sit still for about 5 minutes after injecting because I heard that might prevent dizziness,. After the first weeks I just got up and had no problems Everyone's body is different but I hope whatyou choose works for you.

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1 reply
ferrer1105 | @ferrer1105 | Sep 13, 2023
In reply to @betterbones "I used Tymlos for 2 years without any negative side effects, no nausea no dizziness, no..." + (show)
@betterbones

I used Tymlos for 2 years without any negative side effects, no nausea no dizziness, no pain. I was so nervous the first times I injected myself, but had no issues. I did follow for the first week the advice to sit still for about 5 minutes after injecting because I heard that might prevent dizziness,. After the first weeks I just got up and had no problems Everyone's body is different but I hope whatyou choose works for you.

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If you don’t mind my asking, did you see results?

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1 reply
candy209 | @candy209 | Sep 13, 2023
In reply to @bayhorse "I had nausea and headaches that lasted 1-3 hours after injecting for the first 6 months..." + (show)
@bayhorse

I had nausea and headaches that lasted 1-3 hours after injecting for the first 6 months I was on Tymlos. Really hated it! But I stuck with it because my osteoporosis is severe and there was no question that I needed strong medical intervention. It has helped increase my bone density, and side effects are infrequent and much shorter-lived now.

Many people who had bad side effects when starting Tymlos either injected every other day, or else adjusted the dose of their daily injection, slowly increasing to the full dose. These strategies didn't work for me. But if you are desperate for help, try to put up with the side effects and see if they wane as the weeks go by. As for weight loss: I too, am very slim, bordering on underweight, but didn't lose further because of the Tymlos. And when my weight drops too low, I resort to milkshakes! 🙂 Also, you can only be on Tymlos for 18 months, so you can always gain weight back if you do lose.

BTW, it seemed to help me to inject after dinner, on a full stomach.

Jump to this post

Thank you 🙂

REPLY
1 reply
sarahstuart Sarah Stuart McIlvain | @sarahstuart | Sep 14, 2023
In reply to @candy209 "That’s so wonderful to hear you have no bad side effects. I am about to start..." + (show)
@candy209

That’s so wonderful to hear you have no bad side effects. I am about to start tymlos and I am a slender woman so I hope I don’t get side effects. Can’t afford to loose any weight.

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I'm on Tymlos with with no issue, but I'm not petite nor do I have any medical background. Scan the comments as a few women have reduced their dosage and are much happier. Best wishes, Sarah

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1 reply
mamaearl | @mamaearl | Sep 14, 2023
In reply to @candy209 "That’s so wonderful to hear you have no bad side effects. I am about to start..." + (show)
@candy209

That’s so wonderful to hear you have no bad side effects. I am about to start tymlos and I am a slender woman so I hope I don’t get side effects. Can’t afford to loose any weight.

Jump to this post

I was on Tymlos for over a year and I wanted to stay on it. I had no side effects and no change in my weight. Now I am on Evenity and the injections are painful when given to me. It's 2 injections on the same day once a month. Now I have more pain in my bones with Evenity.

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2 replies
windyshores | @windyshores | Sep 14, 2023
In reply to @sarahstuart "I'm on Tymlos with with no issue, but I'm not petite nor do I have any..." + (show)
@sarahstuart

I'm on Tymlos with with no issue, but I'm not petite nor do I have any medical background. Scan the comments as a few women have reduced their dosage and are much happier. Best wishes, Sarah

Jump to this post

To be clear, I suggested a long time ago that we can do a reduced dose in order to give our bodies time to adjust. Starting low enabled me to take Tymlos when a full dose was not possible.

However, the goal should be to get as close to a full dose as tolerable and there WILL be side effects for many of us, even at a partial dose. The key is whether they are tolerable, which they have been for me. Some will not be able to tolerate and some will do fine.

I did mostly 6 or 7 clicks of the pen out of 8 for a good part of my two year treatment and for the last months did the full 8. I had excellent gains (DEXA was before I got to full dose). So 3/4 dose is far better than nothing. Still, the goal is to ramp up as high as possible.

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windyshores | @windyshores | Sep 14, 2023
In reply to @mamaearl "I was on Tymlos for over a year and I wanted to stay on it. I..." + (show)
@mamaearl

I was on Tymlos for over a year and I wanted to stay on it. I had no side effects and no change in my weight. Now I am on Evenity and the injections are painful when given to me. It's 2 injections on the same day once a month. Now I have more pain in my bones with Evenity.

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@mamaerl why did you change from Tymlos to Evenity?

None of my MD's would even give me Evenity after two years on Tymlos. They say there is no data yet.

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ymv | @ymv | Sep 14, 2023

I’m reaching the end of 3 months on Tymlos and currently at 7 clicks. The side effects are dissipating a bit. Will increase to 8 clicks when I start my new pen next week. The most distressing side effect is weight gain mostly in belly fat. Several women on Forteo have posted about their weight gain. Since the 2 drugs are similar I’m considering it a side effect

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1 reply
bayhorse | @bayhorse | Sep 14, 2023
In reply to @candy209 "Thank you :)" + (show)
@candy209

Thank you 🙂

Jump to this post

Hope it all goes well for you!

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