Anyone taken Evenity (romosozumab) for Osteoporosis?

Posted by arlene7 @arlene7, May 27, 2020

Has anyone taken Evenity? I understand it’s only been on the market for a little over a year. I’m hoping it will help with my severe osteoporosis. Any information is helpful.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

@neesie0159

Hi,
I just had my first injections Aug 8, today is day 5 after. The first 2 nights I slept fine, the third I felt exhausted but had to take extra sleep meds to even get any sleep at all. I have chronic insomnia so thought maybe it was just a bad night, but last night never felt at all tired and struggled to get any sleep. 98% of the time normally I can fall asleep but can’t stay asleep, so this is different from my norm. My sleep problems go back years and led to one stay in a hospital psych unit when nothing got me decent sleep (tried multiple OTC and Rx meds). This is one side effect that I will quit this drug over, unless it only lasts a couple more nights. My mental health can’t take it.

Jump to this post

HI,
Thank you so much for Wonderful news . I hope my scores that Great!!!

REPLY
@laverne23

I just had my first injections of Envinity this morning. I, too, am supposed to go on Prolia after my last injections. I was on Reclast infusions for the last three years, but my bone density dept getting worse. I hope the Evenity and Prolia will help. I am almost 70 years old.

Jump to this post

Thank you for sharing. I am to start Evenity tomorrow afternoon. How are you feeling after the first shot? Did anyone tell you why Reclast did not help? In fact, why it got worse!

REPLY
@gurine

I am 74 1/2 and just started Evenity. I saw my cardiologist before I started and he said ok. So far, I have had no difficulty or side effects other than being a tired earlier in the evening on the day of the shots and the day after.

Jump to this post

Thank you for sharing. By "just started" do you mean one day ago? Have you had any side effects at all? I am to start my infusions tomorrow afternoon.

REPLY
@lab54

I did have insomnia for one week after my first set of shots on Evenity. I normally sleep fine except when I’m worrying about something. Thankfully whatever it was I am now sleeping just fine. During that week I was also very nauseous & couldn’t get food down. Thankfully I’m eating fine now. Next week I get my next set of shots. This will be the true test. I’m giving it one last try & hopefully I’ll do fine. Best of luck too you!

Jump to this post

Hi lab54, I am wondering how you are doing now, a month later from your August 12 posting. I am due to start tomorrow with my first Evenity infusion. I have neuropathy in my feet that gets in the way of a good night's sleep for thirty years now. And sometimes, also, too much energy to go to sleep. My concern is the neuropathy because tingling in feet is one possible side effect that is mentioned. Did the doctors tell you why you felt nauseous? I don't remember reading that as a side effect.

REPLY
@californiakaren

I completed one year of Evenity in July. My bone density improved! My spine T-score went from -3.0 to -2.1 which is a 13.5% improvement (the percentages are calculated using the bone density values measured in g/cm sq). My total femoral mean improved from -1.8 to -1.5 which is a 4% gain. I had no side effects except for minor swelling at the injection site in my belly which went away after a day. I have gone on Reclast to lock in my gains. It is an annual infusion for 3 years. I didn't like the sound of Prolia because you must take it for life and Fosamax due acid reflux issues. Over the year, I took 500 mg calcium plus Vit D supplements daily, took walks and did yoga once a week. I added frequent weight training over the last 3 months. It is hard to do everything suggested, but did the best I could. I highly recommend Evenity based on my experience.

Jump to this post

Wow, that is great news. I am to get my first Evenity infusion tomorrow and have a negative three point eight on the spine Dexa image. And also eryosion in pelvic bone. Thank you for sharing.

REPLY
@lashu

Thank you for sharing. I am to start Evenity tomorrow afternoon. How are you feeling after the first shot? Did anyone tell you why Reclast did not help? In fact, why it got worse!

Jump to this post

I am feeling fine after my first shot. I was very tired yesterday, but I think it was from all the stress and concern I had about getting the shots. I was told about it in March, and it took me until now to actually take it. I have had two falls with fractures in the last three years (patella then left hip). I believe that’s why they went the Evenity route.

REPLY
@lashu

Thank you for sharing. I am to start Evenity tomorrow afternoon. How are you feeling after the first shot? Did anyone tell you why Reclast did not help? In fact, why it got worse!

Jump to this post

I don’t know if you have had your shots yet or not. But after much research and reading comments from others, I decided to get my shots in my belly. I also took them out of the fridge about three hours before my appointment so it was totally at room temperature. I also put an ice pack on the area after each shot to lessen any swelling (the nurse provided the ice pack). Hope this bit of information on my experience helps 😀

REPLY
@lashu

Thank you for sharing. By "just started" do you mean one day ago? Have you had any side effects at all? I am to start my infusions tomorrow afternoon.

Jump to this post

I had my fourth Evenity injections last week. I don’t seem to have any side effects other than some fatigue the day after.

REPLY
@laverne23

I don’t know if you have had your shots yet or not. But after much research and reading comments from others, I decided to get my shots in my belly. I also took them out of the fridge about three hours before my appointment so it was totally at room temperature. I also put an ice pack on the area after each shot to lessen any swelling (the nurse provided the ice pack). Hope this bit of information on my experience helps 😀

Jump to this post

I am responding here to both of your posts. My first shot of Evenity will be today at 2:30 pm. I will ask the nurse about the location on my body for the shots: I think they said the shoulders and it takes a half hour: maybe they mean I have to rest afterward. Both of your comments are really helpful Laverne. Just talking with someone who has the experience is reassuring. So many factors at play in our situation! I am hoping for the very best results for us.

REPLY
@susanfalcon52

I had my fourth Evenity injections last week. I don’t seem to have any side effects other than some fatigue the day after.

Jump to this post

That is so good to hear, Susan. Thank you for sharing. This afternoon is my first treatment. Of course your positive result is very reassuring.

REPLY
Please sign in or register to post a reply.