1. < Osteoporosis & Bone Health

Anyone taken Evenity (romosozumab) for Osteoporosis?

Posted by arlene7 @arlene7, May 27, 2020

Has anyone taken Evenity? I understand it’s only been on the market for a little over a year. I’m hoping it will help with my severe osteoporosis. Any information is helpful.

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debrar | @debrar | Sep 4, 2023
In reply to @gretch19 "I am in the same boat. I was scheduled to start Evenity on Friday, then started..." + (show)
@gretch19

I am in the same boat. I was scheduled to start Evenity on Friday, then started reading reviews and backed out. I have one month to decide whether I take my chances with Evenity or go with prolia which seems safer and has been around longer. My Jackson team scores are all so bad

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I have taken both. Just finished a year of Evenity. I had absolutely no problems. Now I have to decide what is next. My doctor recommended reclast, because if I go back on Prolia, I am on it forever. I took the reclast. I had more side effects from that than either of the other two.

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2 replies
gretch19 | @gretch19 | Sep 4, 2023
In reply to @debrar "I have taken both. Just finished a year of Evenity. I had absolutely no problems. Now..." + (show)
@debrar

I have taken both. Just finished a year of Evenity. I had absolutely no problems. Now I have to decide what is next. My doctor recommended reclast, because if I go back on Prolia, I am on it forever. I took the reclast. I had more side effects from that than either of the other two.

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what side effects did you have from Reclast? How long do they last and is there something they can do to alleviate them?

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gravity3 | @gravity3 | Sep 5, 2023
In reply to @windyshores "My doc doesn't do CTX. It seems most endocrinologists don't do that kind of blood work...." + (show)
@windyshores

My doc doesn't do CTX. It seems most endocrinologists don't do that kind of blood work. I believe P1NP is an indicator of bone building and CTX is a measure of bone turnover. But docs don't seem to use these,

Yes a break after one or possibly two Reclasts depending on testing. I wonder, at this point, if my doc will do CTX and P1NP or what my doc means by "monitoring"....maybe DEXA? I am getting a second opinon next week and will ask.

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I am finding success in getting the tests I want when I tell my doc what I want rather than ask.
I wouldn't hesitate to evaluate whether my doc is the right one for me.

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neesie0159 | @neesie0159 | Sep 5, 2023
In reply to @californiakaren "I completed one year of Evenity in July. My bone density improved! My spine T-score went..." + (show)
@californiakaren

I completed one year of Evenity in July. My bone density improved! My spine T-score went from -3.0 to -2.1 which is a 13.5% improvement (the percentages are calculated using the bone density values measured in g/cm sq). My total femoral mean improved from -1.8 to -1.5 which is a 4% gain. I had no side effects except for minor swelling at the injection site in my belly which went away after a day. I have gone on Reclast to lock in my gains. It is an annual infusion for 3 years. I didn't like the sound of Prolia because you must take it for life and Fosamax due acid reflux issues. Over the year, I took 500 mg calcium plus Vit D supplements daily, took walks and did yoga once a week. I added frequent weight training over the last 3 months. It is hard to do everything suggested, but did the best I could. I highly recommend Evenity based on my experience.

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I’m hoping I can make it through the year of Evenity, second shots are today. I had a horribly sore arm the day of and day after the first shots, as well as a few nights where I barely slept. If it doesn’t get worse than that and I can improve my -4.3 spine score, it would be worth it.

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1 reply
gravity3 | @gravity3 | Sep 5, 2023
In reply to @gretch19 "I am in the same boat. I was scheduled to start Evenity on Friday, then started..." + (show)
@gretch19

I am in the same boat. I was scheduled to start Evenity on Friday, then started reading reviews and backed out. I have one month to decide whether I take my chances with Evenity or go with prolia which seems safer and has been around longer. My t scores are also bad

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In the same boat too. Tough decision making on the evenity.

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susanfalcon52 | @susanfalcon52 | Sep 6, 2023
In reply to @debrar "I have taken both. Just finished a year of Evenity. I had absolutely no problems. Now..." + (show)
@debrar

I have taken both. Just finished a year of Evenity. I had absolutely no problems. Now I have to decide what is next. My doctor recommended reclast, because if I go back on Prolia, I am on it forever. I took the reclast. I had more side effects from that than either of the other two.

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Debra’s,
What were your Reclast side effects like? I’m on Evenity and may have Reclast in my future.

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2 replies
susanfalcon52 | @susanfalcon52 | Sep 6, 2023
In reply to @susanfalcon52 "Debra’s, What were your Reclast side effects like? I’m on Evenity and may have Reclast in..." + (show)
@susanfalcon52

Debra’s,
What were your Reclast side effects like? I’m on Evenity and may have Reclast in my future.

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I meant debrar. Spell check changed it for me. 🙁

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kristie2 | @kristie2 | Sep 7, 2023
In reply to @susanfalcon52 "Debra’s, What were your Reclast side effects like? I’m on Evenity and may have Reclast in..." + (show)
@susanfalcon52

Debra’s,
What were your Reclast side effects like? I’m on Evenity and may have Reclast in my future.

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Susan,
While on Evenity did you have to have any dental work done ? If so any problems ? I am on Evenity and this is one of my fears.

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2 replies
simonmic | @simonmic | Sep 8, 2023

Hello,
I would like to know how long after my last Polia injection can I start on Evenity?
Thanks

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1 reply
windyshores | @windyshores | Sep 8, 2023
In reply to @simonmic "Hello, I would like to know how long after my last Polia injection can I start..." + (show)
@simonmic

Hello,
I would like to know how long after my last Polia injection can I start on Evenity?
Thanks

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Your doctor should know.

In Keith McCormick's book "Great Bones," he says the standard time from last Prolia to first Reclast is 6 months, but that blood testing should be done to be assured that the timing is right for the individual. Maybe the same is true for starting Evenity??????

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