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Glutathione: What dosage do you use? Where do you get it?
Hi! Yes, I have ALL these but doing surprisingly well...mostly asymptomatic. Got HMPV at Christmas, pretty sick but bounced back. On a mission to try some out of the box treatments to keep me well. If you have used glutathione in a nebulizer, can you tell me who (type doctor) prescribed and what dosage etc. and did you think it helped? Also Sodium Chloride.
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Like @rosnatale3, I’m also interested in what products people are using and the basics of what you do with it when nebulizing. I’ve thought about trying nebulized glutathione over the years but have not been able to find a practitioner that knows anything about it. I am in Ontario, Canada - if anyone knows a practitioner in this part of the country? If not, I see I might have to try this on my own.
Thanks,
Would you be able to provide a link to the talk by Dr. James Chalmers? I’m not sure where to look.
Thanks,
Here you go:
https://europeanlung.org/en/get-involved/events/bronchiectasis-patient-conference-2023/
Dr. Chalmers spoke in session 3.
This is the kind of Glutathione that I use but I get mine from Theranaturals. Yes you mix it with saline. I use one 7% saline vial and one capsule of Glutathione. For the first few inhalations or so it has an offensive sulphur smell and taste but that mostly goes away as you continue neublizing. I do this once a day a few times a week. Honestly I am not sure if it is helping or not.
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1 ReactionHello, irenea8; I checked and it comes in capsules. instructions say 1-3 capsules per 3 ml of water. how do you measure it and mix with saline 4% 3ml? when you mix it do you nebulize it together? When i asked my pulmonologist she said that I read too much.
Thank you Susan.
you can mix with saline also. Here are the instructions that I read: Break capsule/s open and empty the content into a container/cup. Add 3 ml (~1/2 tsp) distilled or DI water or pure saline solution to the container/cup. Let agitate briefly until the solution is clear. It’s now ready to use.
One capsule mixed in one vial of saline (if you nebulize saline). You probably do not want to use more than one capsule to start. It is pretty strong tasting. Saline vials are anywhere from 3 to 5 ml but it does not have to be so exact. Some Drs do not like us reading. I never trust those Drs! But we can overthink things!
I am waiting for my medical records from Kaiser and will forward them to the Arina-1 researcher for review. The study is testing a combination of vitamin C and glutathione in a nebulized solution. And, yes, our help is important to find a treatment that helps those of us suffering from bronchiectasis. I am not sure whether I'll be accepted but I do believe this is a study worth considering.
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5 ReactionsHi Rosnatale3, I have not used the glutathione yet. The link I sent has the directions. I will be trying it out once I receive the product.
As far as saline goes, my dr initially vetoed it. But, because of the research info and the supportive comments by our group members, I kept after my dr for a Rx. She finally agreed. Since she was apprehensive, I decided to start out with the 3% solution. It was well tolerated so I switched to the 7%. Since using it, my cough has improved a lot. And, yes, when I neb with the saline I cough. I look at it as a positive thing. I am bringing up mucus and isn't that what it's all about? Getting the mucus up and out of the lungs.
By the way, you need not depend on your dr to prescribe the saline. You can get it on Amazon - https://www.amazon.com/gp/product/B09X65F4PB/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&psc=1
Or, if you want to save money, get your dr to write a prescription and use GoodRx coupon - https://www.goodrx.com/ As for Medicare, I am not familiar with it and do not know if it covers the cost.
I hope this helps. Best of luck to you!
Hi everyone!
I’ve mentioned in the past that I’m opposed to doing anything or taking anything that I feel I must keep secret from my doctor. I feel this way because if I have an issue like hemoptysis, she will not have the full picture.
Currently there’s a lot of research on the lung microbiome and it turns out there are good guys, bad guys, and other bacteria that we’re not quite so sure about living in our lungs. We want to be careful not to be killing off bacteria that are the “good guys.”
If you have been nebulizing something other than saline and have had exacerbations and infections you might want to consider what you are nebulizing could be the culprit.
With that said, I understand that many of us are looking for relief. And we want it now. So certainly the ARINA-1 study is exciting and since my post, 11 people have signed up to participate. That means they just need another 14 or so. That’s fantastic progress!
Don’t forget that according to the researchers it’s important to have a ascorbic acid in the solution otherwise the glutathione can’t do it’s job ( please do not try to cook up a home brew!!) Additionally, it needs to be properly buffered to be accessible in the lungs.
Thank you everyone for letting me share my thoughts. I’m very hopeful about our future. There are many treatments that are currently being studied and I am confident that we will be able to lead better lives because of these ongoing trials.
Until then, let’s try to stay the course using our airway clearance devices and nebulizing saline.
Best,
Linda Esposito
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